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4years-no remission

jamo
jamo CSN Member Posts: 1
edited March 2014 in Ovarian Cancer #1
I was diagnosed 1/99 stage3C Grade 3. Hysterectomy followed by Taxol/Carb -Doxil -Hycamtin - Thalidomide - Xeloda. CA125 has never been near an acceptable level, but CTscans are all clear except for a 2 cm mass on left adrenal gland. Every Dr. felt it was not cancer related. After more than 4 years without getting my CA125 down, I did go through 25 radiation tretments to the adrenal mass. CA125 continues to rise and is now at 933. Anyone had a similiar situation? I have been off chemo for the last nine months as nothing works for very long and yet my CTscans are clear! Any ideas?
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  • crtsang
    crtsang CSN Member Posts: 102 Member
    #2
    It is my impression that CA125 numbers aren't reliable--you can have high ones without cancer, and low ones with cancer. It must be awfully worrying.

    Carol
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