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chat room

hollywooder
Posts: 20
Joined: May 2002

I saw an effective commercial on television tonight for our chat room. I have found 4-7 people in there on occasion over the last week or so, but none from our lung cancer list. Hope to see some of you in there soon...every one has been compassionate and supportive and it's amazing how there is always something to learn. The site is really easy to use.
Margaret in Carlsbad, California

kendram
Posts: 1
Joined: Feb 2003

I would like to visit this chat room, but I am unable to get there. Could you help?

betty2
Posts: 91
Joined: Apr 2002

I can get to the chat room but I can't get to the bottom of the page so I can type, can someone tell me how. I have enlarged the screen and tried to click it down I have made the screen smaller and the whole thing goes away, I'm pretty much at my wits end.
Betty

bobz1
Posts: 50
Joined: Apr 2002

How do you get on the list? And for Betty.I would sugest using someone elses computer. thanks Bobz1

michaelcie
Posts: 133
Joined: Nov 2001

we should all agree to a time when to go on chat and see if we can. Mike (michaelcie)

cpapa05
Posts: 13
Joined: Nov 2008

Yes i really need to talk to someone who's had an experience and it really helps just kinda listening to someone talk about the same/similar thing that im going through..it's not me with cancer..it's actually my mom...we just found out the day before yesterday and it's still stage 1 but just hearing that she has it is almost killing me..i havent really been myself lately..and i believe that talking about it with ppl who actually understands will help.

MadelynJoe's picture
MadelynJoe
Posts: 96
Joined: Sep 2003

Dear CPapa:

First of all, DO NOT PANIC! Let me tell you why: In May 2005 I was diagnosed with Stage I NSCLC in my right lung at the age of 55. A CAT scan revealed a 2.8 cm tumor in my right lung. I had my lower right lobe removed via laprascope in June 2005. Even though all testing and scans showed no further cancer in my body, I elected to do adjuvant chemo. That's where they are giving you chemo to make sure no tiny cancer cells are lingering in your body. It wasn't fun but chemo is doable. Yesterday was 3 and 1/2 years as a cancer survivor for me. I'm sure your Mom can expect a similar outcome. Keep the faith and message me any time.

Best regards to you and your mom,

Madelyn

michaelcie
Posts: 133
Joined: Nov 2001

hi hollywooder, I have been going to "oncochat" it is a very active cancer website with lots of chat. I am on there alot, handle is my nick there. I tried to answer your e-mail but can"t get into my mailbox to answer you back, this is why I am answering here. bye michaelcie

Ginelle
Posts: 8
Joined: Jan 2003

Hi, Mike, I tried to connect to oncochat but was imposible, the screen was gray, maybe it's because I have Windows, I dont know. How you can have access on it? Ginelle.

michaelcie
Posts: 133
Joined: Nov 2001

ginelle, try through acor.org and see if that gets you there. So far I have me over a hundred people active on chat. I also looked under cancer chat rooms and that is how I found oncochat. hope to see you there . my nick is "handle"

Glenda66
Posts: 2
Joined: Jun 2018

I am brand new to this and would love to be a part of the chat room. I am new to this journey of lung cancer and have lots of wuest. I tried once, but will try again. 

MimisMom
Posts: 3
Joined: Mar 2003

I had sugery in April 2002 for lung cancer. They removed my right upper lobe. Came through great, didn't need radiation or chemo. I'm real lucky cancer free.

MimisMom
Posts: 3
Joined: Mar 2003

I would like to visit this chat room. Can't get there can you help me.

cabbott
Posts: 1048
Joined: Aug 2006

Sorry. I haven't been able to get in in MONTHS!. I have the latest Java, but I still can't get in. Any ideas?

C. Abbott

itiswhatitis
Posts: 8
Joined: Feb 2008

Hello to all. I have been trying to get into the chat room for sometime but have been unable to do so. I have updated the Java but still no avail. I emailed the ACS and hadnt heard from them and then all of a sudden I received an email from them saying that I hadnt been in the chat room since august 2008 which is probably true with my life in chaos for a while. They had a link that I could click on and they got me in and then I changed my password. So by now maybe if you cant get in you should probably email ACS

Thanks
Pam
Survivor of breast cancer 2006 and lung cancer 2007

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mike valuska
Posts: 1
Joined: Sep 2013

trouble  coping

z's picture
z
Posts: 1413
Joined: May 2009

So sorry for your loss.  I hope you will visit the greif and berevement discussion board.  There are family and caregivers there that may help. Lori

Cnms55
Posts: 1
Joined: Jun 2018

does anyone have any experience with cll lukemia

 

kaiami's picture
kaiami
Posts: 2
Joined: Jun 2018

hello, I will try to be as brief as possible. My dad had a PET scan done recently. He has had a dry cough for about a year and he never worries about anything regarding himself. I have stayed on him about having a chest X-ray as he is an ex-smoker. Once the cough began and I noticed that it wasn’t going away, I really stayed on him about getting checked out. He had a chest X-ray done and they said they didn’t see anything and he could just go on without any further testing, but they recommend a PET scan. He had that done May 11, 2018. He never got any results, just a letter in the mail saying he needed an bronchoscopy. He went to have that done, but they weren’t able to do it because they didn’t tell him that he 1) needed to have someone with him and 2) that he needed to fast. It’s been a couple of weeks since he went and he hasn’t heard back from them with a new appointmen. He decided to go today and ask about the results from the PET scan and the results are very scary. I’m hoping someone here can help.

It says:

Indication: Lung nodule.

Comparison: CT scan - lung cancer screening from 4/2/18

Then it tells about the procedure (I don’t think this is important?)

PET FINDINGS: Hypermetabolic left hilar mass and/or adenopathy is noted with maximum SUV of 14.3 on image 96. A small FDG avid left hilar node has a maximum SUV of 4.4 on image 110. 

ADDITIONAL CT FINDINGS: There are emphysematous changes in the lungs. Small right paratracheal and precarinal nodes at midline are not FDG avid. There is a sliding hiatal hernia. Cholelithiasis is present. A low density lesion in the right kidney statistically most likely represents a cyst. Atherosclerotic vascular calcifications are noted in the carotid arteries, thoracic aorta, coronary arteries, abdominal aorta, iliac and femoral arteries. Prostate gland is enlarged. There are degenerative changes throughout the spine. No FDG avid lesions are seen in the skeleton including lucent and sclerotic focus in the L4 vertebral body. 

IMPRESSION: 1. Hypermetabolic left hilar mass and/or adenopathy, likely malignant.

2. Small FDG avid contralateral hilar node.

3. Additional findings as above.

 

They did not tell him anything! I’m trying to find out as much as I can online, but it’s hard to piece it all together. If anyone can help I would be most grateful! Thank you! God bless!

jorola's picture
jorola
Posts: 237
Joined: Mar 2016

Only a dr and nothing online can properly understand and diagnose your Dad. Although they say the mass is likely maligant ONLY A BIOPSY can confirm if it is cancer. A CT scan cannot. Researching online is only going to stress you out. Best thing is to go back to the dr and determine if a biopsy is needed. If it is then you go on to the next step. This is a hard process, I know you want answers now but like anything else you can only do one step at a time. Take a breath and help your Dad take the first step. His is lucky he has you. Just remember he is going to feed off your emotions so try to mind them while in the investigation phase ok? You can do this.  Also, I recommend you starting your own thread if you have to so it does not get lost in this old one. I hope the results come back good and you don't need to though. All the best.

kaiami's picture
kaiami
Posts: 2
Joined: Jun 2018

 I appreciate the reassurance/encouragement. I lost my mother who I was very close with not long ago and I am trying to hold it together, I am just so afraid. I know you’re right, though. I spent hours trying to Google all the terms from his results and everything I found just made me worry more! I did read on one website “Although lung tumors are often initially evaluated through a chest x-ray or CT scan, PET and PET-CT scans are highly accurate at determining whether a lung mass is cancerous and may even eliminate the need for surgical biopsy.” This came from a medical website, not just a blog or something. I can’t remember which website because I looked at too many. Again, thank you for the encouraging words and kindness. I wasn’t sure where to post, and I hope I won’t need to post again either! God bless!

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