Iressa news

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ingridmk
ingridmk Member Posts: 4
edited March 2014 in Lung Cancer #1
My husband, Tom, will begin Iressa next Tues., Oct. 1. He has Stage IV lung cancer and has been through 4 rounds of Taxol and Carboplatin. He had a CAT scan after the 3rd round and his tumors have stabilized. He is getting Iressa through the Veterans Hospital in San Francisco (he was in the service). He has been pain free since the 1st round of chemo but now complains of a new pain in his left shoulder. We are aware that Iressa has only a 20% success rate but we are hoping that he will be in the 20%. Iressa is not approved by the FDA as yet; therefore this is a clinical trial.

Comments

  • delligatti
    delligatti Member Posts: 21
    #2
    I'm sorry to hear about your husband, Tom. What type of lung cancer does he have? My husband has extensive stage small cell cancer. We are also in San Francisco. Regarding Iressa, I heard that it had been pulled, but I could be wrong. I also have heard that it has had some good responses. If you'd like to communicate, my email address is delligatti@jps.net
    With best wishes,
    Ann
  • tomo
    tomo Member Posts: 14
    #3
    Ny name is Tom and I am Stage 4 Lung Cancer and have had Taxol, Gemzar, Taxotere, and Navelbene forms of chemo. I am a Vietnam Vet, but got Iressa through the "compassionate use" program through a local Oncologist. I "popped" the first pill this morning. I also have pain in the left sholder, something like bercitus. Maybe we should talk.

    My direct email in Rhode Island is xxtomo@aol.com. Good Luck.

    Tom O
  • bobz1
    bobz1 CSN Member Posts: 50
    #4
    tomo said:

    Ny name is Tom and I am Stage 4 Lung Cancer and have had Taxol, Gemzar, Taxotere, and Navelbene forms of chemo. I am a Vietnam Vet, but got Iressa through the "compassionate use" program through a local Oncologist. I "popped" the first pill this morning. I also have pain in the left sholder, something like bercitus. Maybe we should talk.

    My direct email in Rhode Island is xxtomo@aol.com. Good Luck.

    Tom O

    Please keep us posted.Let us know how things are going, thanks Bobz1
  • tomo
    tomo Member Posts: 14
    #5
    My name is Tom and I replied to your original message right after it was posted, but didn't hear back from you. I've also started Iressa and am on the 12th day - so far, so good.

    I think it would be a good idea for all Iressa users out there to start a little chat to compare notes. What do you think.

    Tom in Rhode Island at xxtomo@aol.com
  • tomo
    tomo Member Posts: 14
    #6
    bobz1 said:

    Please keep us posted.Let us know how things are going, thanks Bobz1

    Hi Bob -
    From this bulletin board it is hard to tell who you are asking for info from, but I am in RI and am in my 16th on Iressa and so far ,so good. If you want to talk you can email me directly at xxtomo@aol.com

    Tom O
  • tomo
    tomo Member Posts: 14
    #7
    delligatti said:

    I'm sorry to hear about your husband, Tom. What type of lung cancer does he have? My husband has extensive stage small cell cancer. We are also in San Francisco. Regarding Iressa, I heard that it had been pulled, but I could be wrong. I also have heard that it has had some good responses. If you'd like to communicate, my email address is delligatti@jps.net
    With best wishes,
    Ann

    Hi Ann -
    My name is Tom and I am in RI and am Stage 4 Lung cancer. Saw your reply to Ingrid and want you to know that I started Iressa under "compassionate use" and am in my 16th day. So far, so good.
    Iressa was approved by a ote of 11 to 3 by the Oncology Comm of the FDA on Sept 24th, so it should be fully approved soon.

    I'm at xxtomo@aol.com if you want to talk.
    Tom O
  • ontime00
    ontime00 Member Posts: 15
    #8
    iressa works, it is now available. it gave me 10 months. do not let FDAapproval limit your search for a cure. only the MD'S are limited try all herbal options- good luck
  • TxLadyS
    TxLadyS Member Posts: 6
    #9
    tomo said:

    Hi Ann -
    My name is Tom and I am in RI and am Stage 4 Lung cancer. Saw your reply to Ingrid and want you to know that I started Iressa under "compassionate use" and am in my 16th day. So far, so good.
    Iressa was approved by a ote of 11 to 3 by the Oncology Comm of the FDA on Sept 24th, so it should be fully approved soon.

    I'm at xxtomo@aol.com if you want to talk.
    Tom O

    My husband is 68 and has been on Iressa for 7 mos. Would like to talk to someone who has been on it as long, or longer, about side effects. Also open for discussion on anything else you would like to talk about relating to Iressa and non-small cell lung cancer.
    Our email address is svpat@sbcglobal.net

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