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Posts: 2
Joined: Aug 2001

Hi everyone! My name is Burkhard <Content removed by CSN Support Team at request of author>. I am a 36 years old German living and working in Belgium (in drug discovery research for Janssen Pharmaceutica). I have had a partial glossectomy (4 months ago) followed by radiotherapy of the mouth and neck (ended 7 weeks ago) because I had a squamous cell carcinoma of the oral tongue. I have just registered with the Cancer Survivors Network to find other people who have had tongue cancer to discuss our treatment and exchange experiences.



Posts: 2
Joined: Jul 2001

Hi! I too am 36 and new to the CS network. I registered to share my experiences. My life changed almost two years ago; I did not have a support group that understood what I was going through.

As I was recovering from the effects of radiation another young person was diagnosed with tongue cancer. One of my co-workers new the person. I mentioned to my doctors that if this person was a patient of theirs they could give him my telephone numbers if he wanted to talk to someone. He did call. From our talks I began thinking of others in the area looking for someone, so I called the local American Cancer Society and asked if they had a specific support group. They did not - so I am trying to get involved where I can.

Take care,

Posts: 1
Joined: Aug 2001

Hi Burkhard,
I had my surgery for squamous cell carcinoma of the oral tongue in October 2000, followed by six weeks of radiation. I also had a neck dissection done at that same time. If I can be of any help to you let me know.

Posts: 24
Joined: Mar 2001

Hi Burkhard. My name is Ilene and I had my first bout with tongue cancer at 32 and my second this year at age 45. Its been tough this time but at least I'm still here. Check out my personal web page for my story and write if you would like to chat further.

Posts: 2
Joined: Jul 2001

I'm around your age and 2 1/2 years out from surgery and doing very well. Can be contacted directly at jeri@yikessalon.com

Estelle_H's picture
Posts: 176
Joined: Jul 2014

Do any of you guys still come here?

phrannie51's picture
Posts: 4674
Joined: Mar 2012

you can see the last time they logged on, Estelle...


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