Remission

Twine
Twine Member Posts: 18 Member
in Esophageal Cancer #1

I haven't been on here for a while (maybe a year) and have not had any more symptoms of the EC diagnosed in March 2023. They used to call it remission but I'm not sure if that term is still in use. I'd always been told what an aggressive cancer EC was and was told it was an esophagectomy or bust for me. I didn't opt for it and now I seem to be in limbo.

Comments

  • LimogesGuy
    LimogesGuy Member Posts: 18 Member
    #2

    I did opt for the surgery and also in remission. Possibly less worried? How’s your eating?

  • Twine
    Twine Member Posts: 18 Member
    edited January 2 #3

    My eating's fine. I never had the trouble swallowing and an endoscopy found the cancer. A long term niggling cough was why I had the endoscopy in the first case. The investigation found Barrett's and a cancerous lesion at T1-b nearly T-2 SM-3. I had follow up endoscopies with biopsies taken at 3 months then 6 months and my first annual one is next week. There's some really good videos by Dr. Raman Muthusamy (UCLA), I found just recently. He said T1-b would suggest an esophagectomy as the default option but there was some evidence that just a follow up had good results in some patients like me who refuse the operation. I've written to him to see where the data is that he is referring to as I trawled the net, two years ago, without finding this

  • Twine
    Twine Member Posts: 18 Member
    #4

    I should add that you might read that only 1%-2% of Barrett's goes on to develop into EC but I was not surprised to be told I had Barratts, because when you have a hiatus-hernia repair and you do the reading, you learn about Barrett's. When I was first diagnosed with EC, I complained about my cough and the fact that they hadn't got to the bottom of it. Oh don't worry about that I was told, that's the least of your worries. 😶

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