Frodolass Update...

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  • frodolass
    frodolass Member Posts: 34 Member
    #22
    sunflash said:

    Hi Donna,
    Good to hear from

    Hi Donna,

    Good to hear from you........it sounds as if you're doing well for the most part. Glad you're getting this behind you and still feeling well enough to work. It sure helped me to keep going, and then you have the summer to collapse and think about what you've been through. lol!

    I don't know anything about the neulasta shot because I never needed one. My blood counts stayed within the right range even though my 5th chemo counts were exactly on the border line. One tiny bit lower and I would have needed the shot.....but it didn't happen.  

    Does your doctor prescribe neulasta as a precaution without waiting to see what your blood counts will be? 

    It sounds like Ro has some pretty good advice....maybe you can have the shot administered in the ER, or talk to the chemo center for another option for you. Sometimes you have to be a squeaky wheel. 

    Glad you're getting through this.......have a Happy New Year!

    Cheers to you from Houston!

    Neulasta

    The doctor said that I couldn't get the chemo without getting the Neulasta. I would rather get chemo and then see if I need it for the next round. I had 6 rounds of Cisplatin and my blood counts were fine. It's been about two months since I finished up the Cisplatin. I'm hoping they will go ahead and let me get the first chemo treatment. I got an answer from the insurance company about the Neulasta. It's covered, but I have to come up with over $2,000 for the co-pay. That's more than I bring home in a month. I just can't do it.

    Thanks for the responses. I'm so glad to know that you all are here when I need to vent.

    Donna in N. FL.

  • sunflash
    sunflash Member Posts: 197 Member
    #23
    frodolass said:

    Neulasta

    The doctor said that I couldn't get the chemo without getting the Neulasta. I would rather get chemo and then see if I need it for the next round. I had 6 rounds of Cisplatin and my blood counts were fine. It's been about two months since I finished up the Cisplatin. I'm hoping they will go ahead and let me get the first chemo treatment. I got an answer from the insurance company about the Neulasta. It's covered, but I have to come up with over $2,000 for the co-pay. That's more than I bring home in a month. I just can't do it.

    Thanks for the responses. I'm so glad to know that you all are here when I need to vent.

    Donna in N. FL.

    That's outrageous about

    That's outrageous about having to come up with a $2,000 copay when you may not even need that shot. I would definitely pursue answers and other avenues, even though  at this point I have no idea what those would be. 

    Is that the policy of all the doctors in this cancer center, or only your particular doctor? 

    I would at the very least talk to him and see if he can explain his reasoning behind this and see what he can offer you as far as paying for it. 

    Certainly you're not the only patient of his who has encountered this issue before. 

    Besides talking to a social worker at the cancer center, maybe the American Cancer Society could offer some assistance. I remember when I first came down with cancer I called them and they told me to contact them if I had trouble coming up with copayments. 

    I'm sure hoping you can get this resolved before your next chemo.  

  • frodolass
    frodolass Member Posts: 34 Member
    #24

    Hi there! Still kicking. Had a couple of recurrences, but been clear since 2018. Thank you for your help when I needed you the most.

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,515 Member
    #25

    frodolass!!! So good to hear from you and that you are doing well. It certainly has been years - and that is a good thing.

    sorry to hear you had a few recurrences, but good to hear you are doing well now. I am sure your post has lifted many with letting us know you are still with us. What a great gift for the season.

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