Just given the diagnosis of MMMT

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Comments

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    edited October 2020 #22
    Hi Melissa:

    Hi Melissa:

    Giving you hugs!   My diagnosis of Grade 2, Stage 3A was confusing because in the report they could not fine the primary.  They indicated it could either be Endometrial Adenocarcinoma or MMMT. They decided on going with the Endo but treating it as Ovarian.   My CA125 was not an indicator.   I also had them test for Lynch Syndrome 10 years later and it was negative.  My boys at the time of my diagnosis were 11, 13 and 15.   I have had 2 recurrences since then (which I found) so thats why I say be your own advocate.   You know your body.   My sons are now 26, 28 and 30.

    Although my diagnosis isn't the same, I hope I have given you some hope.

    Also, please don't search much on the internet unless it is a well known place because so much of it is outdated.   Check out the NCBI site.  There is also many resources here.

    (((HUGS)))

    Kathy

  • SpringerSpanielMom
    SpringerSpanielMom Member Posts: 137 Member
    #23

    Melissa, I hope you're doing okay. I have MMMT also.

  • MelissaJA
    MelissaJA Member Posts: 27 Member
    #24
    https://csn.cancer.org/discussion/comment/1693883#Comment_1693883

    I'm still doing well. Almost a year an a half since diagnosis and almost a year since the end of chemo. Still no evidence of disease. I'm living life fairly normally. Staying active with swimming; eating as well as I can. I still think about it everyday and some days the depression really gets to me but the cancer is no longer my primary focus. Praying it stays that way. If you click on my profile I have some details of my journey there.

    There is hope with a stage 4 carcinosarcoma diagnosis!

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #25

    Melissa, it was so good to hear from you again and know you are doing so well. Keep it up!

  • Lyn70
    Lyn70 Member Posts: 214 Member
    #26

    Melissa,

    What an encouraging report back from you on a very difficult stage 4 dx! This will give hope to many ladies on the board including me. Keep up that healthy eating and exercise.

  • cmb
    cmb Member Posts: 1,001 Member
    #27

    Melissa,

    So glad that you checked back in with us, especially to share such good news! May your NED long continue!

  • Harmanygroves
    Harmanygroves Member Posts: 487 Member
    #28
    https://csn.cancer.org/discussion/comment/1675910#Comment_1675910

    We ALL know that rabbit hole! I'm not MMT, but I know the hole, and if you've got the same thing as CMB, you will get great information. Sending LOVE!

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