ROLL CALL 2018 - Updated January 1, 2018 CLOSED!! DO NOT POST HERE!

Hi!

I am excited to report that I am 10 months post treatment Right Tonsil and three lymph nodes Stage 4a, and doing reasonably well. Went through TORS robotic surgery to remove 4 tonsils and base of tongue resection, then 33 rounds of radiation and 2 mega doses of Cisplatin. Long term side effects suck, but are doable. Progress seems at a snails pace, but there is steady progress for sure. I love this group and check on everyones updates every couple of days. We are definitely a unique bunch. Love and prayers to all.

Nancy

Nancy

Hi All, I joined Sept 11, 2017. Stage lll, HPV+, BOT primary (less than .19") with mets to lymph nodes in neck. Surgery and chemoradiation. After a year of watching had the neck surgery, BOT surgery a month later, 8 wks later the chemoradiation. 13 wks since treatment. Worst 17 months of my life! Will life get better? Who knows, I am not going to sit around to find out because enough time has been wasted. Going to meet it head on. Best of luck to all of you!

Klingels- Kent is 7 months post treatment. He is back to work part-time. Still has feeding tube, but anticipates its removal in the next couple of weeks. He has little saliva and has developed neuropathy in his feet. Eating continues to be a challenge and he has trouble keeping weight on. Has lost bout 45 pounds. Otherwise, he is enjoying the sweetness of life and being with family.

Marietta from Manitowoc, WI and snowbird in Panama City Beach, FL! I joined in March  2018. Diagnosed with SCC of tongue HPV+, in March 2018. Had 35 rads and 2 chemos. Last rad on May 16th. PEG tube came out the end of June. Lost 15 lbs and although I am holding my own, the weight is not coming back on. Am eating normally, but taste buds are at best 40% back and dry mouth is fairly severe. Of course, I am only 8 weeks post-rads, so I guess I am doing ok. Still have a sore soft palate. No PET scan until October. I will check back then.

I'm new here. Vicky from Maine. My dad was diagnosed in February with verrcuous carcinoma in his mouth. He had a mandiblectomy and fibular free flap reconstruction at Mass Eye and Ear in May and is about to undergo 30 radiation treatments and 5 or 7 chemo treatments. Just stumbled upon this forum while searching for the best cream to buy for his radiation.

Long time reader and recently signed up as a member in the club nobody wants to be in.

Name-Russell

Location-Washington Boro, Pennsylvania

First cancer in 2012 when I was 58 recently had second cancer,  just turned 65 in July

First I would like to give honor to Hawvet who this is in memory of, he and those who traveled this journey

before us and others like Kteacher and Longtermsurvivor.

And a shout out and thank you to Matt for continuing it-Thanks Matt

In late November 2012, I had a sore throat that would not go away.

After 2 runs of antibiotics for 10 days each in which a sore throat

would go away and then resume again after the antibiotics wore off so

my family doc sent me to see an ENT.

He did a scope job and said not good news you have a tumor in your throat.

Confirmed as cancer with biopsy squamous cell probably stage 4 they wondered

why I did not have some trouble swallowing.

Starting January 1 they had my treatment plan all made, and treatment was started

I had my mask and had many meetings and my treatment was started.

Had the whole routine feeding tube, port, mask.

I did 2 stints in the hospital for 5 days on 24-hour chemo with time between for blood count to build up.

Then started a plan of 35 rads and chemo in the beginning middle and end of rads.

At some point in this treatment, my Parotid gland got infected and I spent several days

in the hospital on heavy antibiotics and the left side of face swelled up.

I was transported by ambulance to not miss any rad treatments and had a difficult time

with the mask as my face was swelled but a great rad gal talked and worked me through it. I owe her great gratitude what a blessing.

All scans now show cancer free.

Fast forward recently had sore on the bottom left of the tongue that would not go away.

Back to ENT and he did a biopsy and confirmed cancer same type as before and diagnosed as stage 1.

He says not a recurrence but another round of cancer.

Operated on recently 6/21/18 recovering well mostly healed up and doing well. Lost very little tongue tissue.

Always an avid reader of this forum I decided this time around to make it

official and join in. SORRY to make this so long. New member but old reader so wanted to explain a bit.

God Bless and Strengthen you in your journey and may cancer not darken your door step again.

This is one great group of people sharing help and hope.

CivilMatt said:

Russell

Russell,

Just what are doing in this closed Roll Call Post?  Did you see the CLOSED  with the DO NOT POST HERE label?

Usually, Edits to the Roll Call happen at updates, but I have made your edits now.

Matt

Yes, I understood it was closed. I apologize sincerely if I was severely remiss by editing. I respect you and all you do for the folks here you are a great guy with a big heart and give a lot of your personal time to this forum. Even though I had sent and requested changes to you personally about the roll call 2018 final, I went to the page in question and saw that I had the ability to still edit the changes there also as it was not restricted to editing on that posting and thought since it was not actually locked I would not be hurting anything adding to my Roll Call Profile 2018. Matt thank you for making the edits it is appreciated. Again I sincerely apologize and will do my best to follow forum decor. Russ