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    jcorum
    jcorum Member Posts: 54 Member
    in Anal Cancer #1

    My 7 yr follow up is this month and i expect all to be good. But do any of the long time survivors on here still have regular anal discharge? 

     

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    • mp327
      mp327 Member Posts: 4,440 Member
      #2
      jcorum

      Hi!  It's nice to see you back here and congratulations on being 7 years out of treatment!  That's awesome!

      About anal discharge, I am 9 years out of treatment and I experience that quite frequently.  I have learned to live by the rule "Never trust a fart."  Frown  I think this is just one of the things some of us deal with post-treatment--part of our new normal, unfortunately.

      I wish you many, many more years of NED.  Please let us know how your followup goes--I am thinking all good thoughts for you!

    • Phoebesnow
      Phoebesnow Member Posts: 600 Member
      #3
      Leakage

      Try anal kegels.  It helped me overcome that.  urgency...is another matter 

    • adkspinner
      adkspinner Member Posts: 4
      #4
      Never trust a fart!

      Thanks, I needed that giggle! ;-) Also completely true. I buy gauze pads by the case. Fold once and wear between cheeks if tolerable.

    • Nellebelle
      Nellebelle Member Posts: 1
      edited March 2018 #5
      Post traumatic stress

      Hello everyone

      ive tead through these forums and comments several times since I was diagnosed, went through treatment, and am now cleared after the first round of “finger” and spatula check ups. My first scan is coming up in a few weeks and the soecialusts are confident I’ll be all clear. I’ve been having twinges and some light mucous occasionally and a few leakage accidents. Reading all these comments helps me but still I feel fearful. It’s been suggested to me I’m going through post traumatic stress, which I’m told is normal. i’ve been back to my colo rectal specialist a couple of times now due to twinges and fears and beefing reassurance. Which thankfully I receive. Is anyone going through this, and if so, how do you cope? I’m actually speaking with two counsellirs but still feeling traumatised. 

    • mp327
      mp327 Member Posts: 4,440 Member
      #6
      Nellebelle

      Post-treatment anxiety is very common, so you are not alone.  I am almost 10 years out of treatment and still get nervous prior to exams or when my bowels are not happy.  I have found lots of things to distract my mind, including exercise, spending time with friends, etc.  I hope that your scan will show that your cancer is gone so you can relax.  Best wishes to you!

    • Scubajoe
      Scubajoe Member Posts: 39 Member
      #7
      you are not alone

      NelleBelle,

          I just had my first biopsy check three months out.  The Radiation oncologist felt residual mass which did not decrease from month 2 to month 3.  It did not increase either.  I was hit so hard with the radiation that I was certain it was scar tissue but our minds always tries to think of what if.  I was a nervous wreck and did lots of praying.  I tried to keep myself busy but I don't think the anxiety ever left.  I had lots of reassurance from friends and this site helped a lot too.  Everything came back clear for me just lots of scar tissue present.  I have another check in three months.  Use the support of this site and friends to help get you through this anxious time.  Wish you the best.

       

      Joe

    • Wisteria83
      Wisteria83 Member Posts: 160
      #8
      Mucous

      Nearly a year out of treatment and I still have mucous.  There are special pads...called Butterflies, that stick to your backside with a pad at your anus.  They aren't cheap, and honestly, I never tried them, the box is still full.  The directions are clear, but it seems a lot of people have difficulty getting them in the right spot.  You can find them on Amazon if you're interested.

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