Lung cancer that spread to brain-Metastatic- Very Devastated

  Hello Michael. I also want to say how sorry I am to hear your mother is going through this. I can tell you first hand, as long as she is still alive there IS still hope. I am 46 and last year I almost died from this very same thing. I had lung cancer (I did not know about) that had also spread to my brain and caused a single tumor. One Saturday May 5th, Cinco Da Mayo 2012, I was in the shower getting ready for work and I passed out and nearly dropped dead right then and there. I had such massive brain sewlling that it turned the light out on me. It's a long story I won't go into here, but all my doctors, the cancer doc, Neurosurgeon, the Thorasic lung surgeon all said it's a mirical I'm alive. The swelling was so severe it should have killed me. My doctor said only about 1 or 2 % of people with that much brain swelling survive, and most end up with some form of disibility from the brain damage due to the swelling. I had 7 1/2 hours of brain surgery to remove the tumor. I had one radiation treatment to my head.

  Then about a month and a half later I had 1/3 of my right lung removed in another 7 hour surgery. I also had a 3 hour biopsy surgery to check my Lymph Nodes in my chest, they was clear thank god. I've been through hell in the last year and a half. Surgery recovery was absolutely brutal. But I AM alive and fighting this thing with all I've got. I have a young son who was 10 at the time, and a girlfriend of 15 years, both have been through hell with me along the way. But, we are together and fighting this together. DO NOT GIVE UP HOPE brother. No it does not gaurantee a positive outcome, but without hope there is no fight period, and without a fight, there is no positive outcome. She has to want to live, which I'm sure she does. I live and work near the Torrance area. Infact I grew up in Torrance most my life. I'd be happy to discuss anything you want if it would help. I was treated at the UCLA medical center in Wenswood. One of the top brain tumor cancer hospitals in the country. My doctors have been awesome. You let me know and we can exchange numbers in a PM. I'm still taking chemo meds. Have for a year and I went through infusion chemo too. I have 20 inches of new scar to show for this fight, and my life. I'll happily accept these news scars as my battle scars fighting this aweful desease. They only add to my already vast collection for all the many near death experiences I've had throughout my life. I have more then nine lives for darn sure. I AM a survivor. Good luck and prayers sent to you and your mother and family. God speed.

Rob

mikeneo3450 said:

Lung Cancer-Metastatic to the Brain

Hello All,
Thank you sooo much for all the replies. I really appreciate it! It has been a crazy week. After I wrote here. A Day later my mother felt severe headaches and her left eye vision was affected. She was seeing a lot of shadows and left sight was really bad. We rushed to the ER. they gave her pain meds for pain and did another Scan of her head. they then said that her tumors were swollen, pressuring the organs causing her symptoms. she was admitted for 2 days to the hospital. They prescribed her 6mg every 6 hrs of steroid to bring swelling down and recommended Whole brain radiation right away. So we started whole brain radiation. They recommended 40gy doses for 15 treatments of whole brain radiation. She is feeling a little better, left eye is much better, but she's often weak and dizzy sometimes. We are on day 4 of radiation. When I asked the radiation oncologist they recommended Whole btain because she has more than 2 tumors possible 3rd and there could be other small ones.
WAS this the best recommendation?
I have all her results/scans and exactly size location.
The lung tumor is only on the left lung apprx size is 3cm, and it spread to 3 possible 4 lymph nodes near by and to the brain. I was looking at the MRI, it shows 2 and maybe some other very tiny mets in the brain. (very hard to see) MRI report says 2 mets possible 3rd one. the sizes of the mets are 2cm and 3cm . the location is Basil Ganglia and Occipital. Was Whole Brain the most recommended best way? could any other ways/ a more aggressive approach have been done? higher doses? or targeted to the big more noticeable mets for more affective results? We have 2 apt with oncologist to discuss the over all treatments. What do we expect? what question to ask and prioritize? I am reading about Gerson therapy? (nutrition treatments) does it really work? I don't want to reply on it mainly, but want to try it, can I combine with the conventional treatments? I am having my mother only eat greens, vegetable and fruits, and lots of vitamin C. As far as mutation, they are still trying to conduct testes with the tissue they removed from her biopsy and will let us know the final results.
I want to fight and not give up, and so does she!. Everywhere I read says few month left. I am very sad and worried. But we want to keep the fright. Any thoughts and recommendations will be greatly appreciated. Thank you soo much Mike

Stereotactic radiation is something that might have been explored if you'd had more time.  the severity of the side effects dictated rapid response so, yes, this was the right choice.  In the event that there are recurrences in the future she will likely be able to have gamma knife surgery or (if she is EGFR+) pulsed tarceva maybe even one of the newer ones in development that can break through the blood brain barrier.

There is a gentleman who participates on the boards at lovelunglink.org whose lung cancer was diagnosed much the same as your mom's and Rob's fourteen years ago.. Yes 14!  Rob's story is compelling as well   and I thank him for sharing it.  

Gerson is dangerous.  he uses only anecdotal information and has no hard scientific data to back it up.  There is no single cause or failure in our cells that cause cancer.  Therefore there is no single treatment for cancers.  If he had truly found one, he would have received the Nobel Prize.  His name would be a household word, Big Insurance would not let Big Pharma bury it.  Too many times I've fought back tears reading stories of families who put their life savings into treatment there at stage two or three only to come home after being told they were cured and learn a week or month later that the disease never abated only grew to stage four and were too numerous to count.  

Seriously?  Juicing is a great idea and really helpful at this stage of treatment where fatigue and mental fog make it hard to stay on top of eating and drinking enough.  It is important to note that vegetarians (including Vegans) who never smoked, develop lung cancer, too.    So do google the terms Gershon and quack together to learn more. 

mikeneo3450 said:

Lung Cancer-Metastatic to the Brain

Hello All,
Thank you sooo much for all the replies. I really appreciate it! It has been a crazy week. After I wrote here. A Day later my mother felt severe headaches and her left eye vision was affected. She was seeing a lot of shadows and left sight was really bad. We rushed to the ER. they gave her pain meds for pain and did another Scan of her head. they then said that her tumors were swollen, pressuring the organs causing her symptoms. she was admitted for 2 days to the hospital. They prescribed her 6mg every 6 hrs of steroid to bring swelling down and recommended Whole brain radiation right away. So we started whole brain radiation. They recommended 40gy doses for 15 treatments of whole brain radiation. She is feeling a little better, left eye is much better, but she's often weak and dizzy sometimes. We are on day 4 of radiation. When I asked the radiation oncologist they recommended Whole btain because she has more than 2 tumors possible 3rd and there could be other small ones.
WAS this the best recommendation?
I have all her results/scans and exactly size location.
The lung tumor is only on the left lung apprx size is 3cm, and it spread to 3 possible 4 lymph nodes near by and to the brain. I was looking at the MRI, it shows 2 and maybe some other very tiny mets in the brain. (very hard to see) MRI report says 2 mets possible 3rd one. the sizes of the mets are 2cm and 3cm . the location is Basil Ganglia and Occipital. Was Whole Brain the most recommended best way? could any other ways/ a more aggressive approach have been done? higher doses? or targeted to the big more noticeable mets for more affective results? We have 2 apt with oncologist to discuss the over all treatments. What do we expect? what question to ask and prioritize? I am reading about Gerson therapy? (nutrition treatments) does it really work? I don't want to reply on it mainly, but want to try it, can I combine with the conventional treatments? I am having my mother only eat greens, vegetable and fruits, and lots of vitamin C. As far as mutation, they are still trying to conduct testes with the tissue they removed from her biopsy and will let us know the final results.
I want to fight and not give up, and so does she!. Everywhere I read says few month left. I am very sad and worried. But we want to keep the fright. Any thoughts and recommendations will be greatly appreciated. Thank you soo much Mike

How is your mother doing?  My mother also had lung cancer that spread to her brain. That's when I learned that alot of lung cancers spread to the brain, it wouldn've been nice to know that earlier so we'd be prepared for it or at least knew the symptoms. Unfortunately my mother chose to not have any further treatments after it was discovered since she had gone through a year of chemo and radiation. She said if it came back she wouldn't do it again. It was exactly 10 yrs from the time she was diagnosed with lung cancer to her diagnosis of brain cancer. She never missed a dr. appt. She went to her cancer dr. in November and was diagnosed with brain cancer in December. When she had pain in her left eye, we took her to the doctor that said she had pink eye and prescribed drops. The very next day she was in excrutiating pain in her eye and forehead. Went to ER where they did a CT scan and we were told of the cancer. The next evening she had the pet scan, the cancer was throughout her brain, stomach, kidneys, liver and lower intestines and starting in her bones. It's rough. Hope your mother is able to stand the treatments.