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    • Anaplastic Astrocytoma Grade 3 - 15yr Survivor

    JakeLee
    JakeLee Member Posts: 10
    in Brain Cancer #1

    Any other long term survivors on here?

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    • HAILEYSMOM
      HAILEYSMOM Member Posts: 5
      #2
      Can you tell me a bit about

      Can you tell me a bit about your tumor and  treatment?  Amount of resection, radiation and chemo, any follow-up events?  Where did you have your treatments?

    • JakeLee
      JakeLee Member Posts: 10
      #3
      HAILEYSMOM said:

      Can you tell me a bit about

      Can you tell me a bit about your tumor and  treatment?  Amount of resection, radiation and chemo, any follow-up events?  Where did you have your treatments?

      It was entirely removed

      It was entirely removed (well, all they could see). 3 months of radiation (daily) and 1 1/2 yar of chemo (weekly vincristine and monthly ccnu). 

    • urtbhafe
      urtbhafe Member Posts: 1
      #4
      JakeLee said:

      It was entirely removed

      It was entirely removed (well, all they could see). 3 months of radiation (daily) and 1 1/2 yar of chemo (weekly vincristine and monthly ccnu). 

      Congratulations

      That is wonderful to hear. Can you share where you were treated and who your Drs were?  I am trying to find the best treatment option for my husband. 

       

    • JakeLee
      JakeLee Member Posts: 10
      #5
      urtbhafe said:

      Congratulations

      That is wonderful to hear. Can you share where you were treated and who your Drs were?  I am trying to find the best treatment option for my husband. 

       

      Sorry for the delayed

      Sorry for the delayed response. I don't get on here often. I was treated at MUSC in Charleston SC (Hollings Cancer Center). 

    • attila
      attila Member Posts: 1
      #6
      JakeLee said:

      It was entirely removed

      It was entirely removed (well, all they could see). 3 months of radiation (daily) and 1 1/2 yar of chemo (weekly vincristine and monthly ccnu). 

      thank you for sharing

      dear JakeLee, I am so happy to read Your post. We really appreciate that You share Your story with us really need Hope. I am a Father of a five and a half years old Beautiful Young Lady diagnosed with Anaplastic Astrocytoma Grade III in brain stem in this Feb. We are after the operation (the “troublemaker” couldn’t be touched basically :o( and the first round of the treatment (radiation- and Temodal) and will start the next round as of tomorrow (Temodal in 5/23 cycle). We strongly believe in God and are sure that our Little Princess will be fully recovered (as You :o) but Your words provides more strengths for the ordinary days. God Bless You, Attila from Hungary

    • Nell37
      Nell37 Member Posts: 3
      #7

      Recently i came across an article which talks about a new treatment called SPMF, for Cancer, in India at SBF Healthcare. This article is about a 33 yrs old woman with recurrent anaplatic astrocytoma,she took standard treatment but it failed, so she underwent this new treatment SPMF for 28days. The result showed improvement in patient condition. 

       http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2919998/

      When i did a search for this treatment I could get some positive findings, like this is a non invasive therapy without any side effects and no pain.  The treatment was completely safe and patients are able to do his daily chores and shows long term survival rate.

    • a09082038828
      a09082038828 Member Posts: 5
      #8
      HI Jake. :)

      Hi. Mi mother was diagnosed with grade 3 astrocytoma. I'm from the Philippines. I've been reading here a lot after my mom's surgery. I Love my mom so much. It's really inspiring to know that there are many survivors that beat the doctor's timeline of 2-5 years. her tumor was removed last april. God Bless us all ! i want my mom to be treated in the United States but we don't have enough money to go there.

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