The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Hi! I'm new here and want to introduce myself.

JOinMO
JOinMO CSN Member Posts: 9
in Brain Cancer #1

Hello!  My dear friend was diagnosed with inoperable grade 4 GBM in May.  She had no other symptoms other than confusion one weekend.  She started her 6th and final week of daily radiation and chemo today, and is looking forward to returning to a new normal in her life.  With the addition of Dexamethazone the confusion quickly subsided and she has not been nauseaus with her treatment - only fatigued.  Currently she is unable to drive or work, but she hopes after her scan next month she will be able to return to both.  In addition she will be starting a 5/23 regimine of Temodor as well as receiving TTFs from Optune.  My friend doesn't own/use a computer, so I research everything possible and bring it back to her.  While I can't tell her everything is going to be ok, I have told her no matter what the future holds, I will be with her every step of the way.

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