Overwhelmed: Lots of questions but I don't know where to go or what to ask.
First, let me say thank you to everyone that has been participating on this board. I have found both comfort and security in a few different places.
My mom, a young 69 year old, was just diagnosed having squamous cell stage 4 NSCL lung cancer on Friday; our world was rocked to say the least. We thought we took her to the ER to find out she had a serious cold, that she was overmedicated and we ended up being admitted. The tumor measures a little more than 4 inches and it is pressing on her spine on two different vertebrae, which if it wasn't noticed and acted on would have made her a quadrepelgic. When the biopsy happened Friday night, the pulmonologist said that he found more tumors in one of her major airways from the lung. She started radiation right away. She is on her 5th treatment with 5 more to go. She wil start chemo shortly after. She is on oxygen 24/7, 3 liters at rest 5 liters when moving, if she is moving.
I feel like there are so many questions that I just can't formulate so please bare with me as I am making this transition in my life and learning this new life for my mom.
Is oxygen bad for cancer patients? Will it damage the good tissue in the lungs?
Is it common for any movement what-so-ever to be tired for the rest of the day?
Is shortness of breath a new norm that we, as her family, have to get used to?
What about sleeping? She barely keeps her eyes open most of the day. I assume this is normal?
Anyone use the AIM program (Advanced Illness Management, at least in NH that is what it means)? Is this a good program? Does this mean anything as far as her diagnosis. As in her progression through the illness?
The doctor said that her longest living patient with this illness is 5.5 years. Our prognosis is 2 years. I know that our doctor is not God, but is there anyone out there that can say differently?
Chemo? Does everyone agree this should be done? One comment that was made was someone with good working lungs and are active will do well with chemo. My mom is neither...thoughts?
I appreciate anyone that reads this and responds.
Thank you so much,
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