It's Worry Time Again!

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edited March 2014 in Colorectal Cancer #1
Hi all! I'm glad to report that so far everything has been going very well for Bert and my mom. Bert has finished chemo...he did a full four months of 5fu/leuc, followed by another full six months of 5fu/leuc/oxal and latest scans done back in early June showed no evidenc of disease. Port was removed today (on doctors orders) and
new scans were done last Thursday (another PET/CT contrast). CEA dropped to 6.0 after six weeks of being off chemo. As most of you will recall, it started to rise back in January when he started
Oxaliplatin and had been climbing very slowly (tested every two weeks)to 9.0 in May, yet all test, including colonscopy showed NOTHING.
Then off chemo and it drops a full three points. Anyway, results from latest tests/scans will be ready this Thursday and I guess I need say no more...I'm anxious as can be. Mom's latest test were done last Friday and her results will be in on Friday this week, a day after Bert's....so I will know more what's going on end of the week.
I guess I need your thoughts a prayers that Bert continues to remain free of this disease and that mom's current chemo is continuing to work on her lung cancer. I'm just having a moment where I need
support. Thanks for listening.

Hugs to all,
Monika

Comments

  • alihamilton
    alihamilton Member Posts: 347 Member
    #2
    Hi Monika,

    I can imagine your anxiety...waiting for test results is awful...and you have two persons to worry about! However, don't forget that Bert's previous results were good and there is no reason to believe that they will not be good again. We have had 3 weeks of terrible anxiety as a CT scan done on my husband post chemo (5fu/leukovorin) showed two lesions in the liver, indicative of mets. His CEA was 3.1...not bad...but we were so afraid that his stage 3 with 11 out of 18 lymph nodes involved, had become stage 4. We had to go to Miami for a PET scan and the great news on Friday was that it was all clear and that the lesions were nothing to worry about at all. On Friday too, he had a colonoscopy and that was completely clear. After a year from hell, we were able to rejoice. He has been advised to have another CEA done in 3 months and a PET in 6. So we are trying to learn to relax a little, at least for the time.

    Good luck with your results. My feeling is that if you get regular checks (and Bert is obviously getting that) anything that might pop up should be in an early stage and treatable.
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    #3
    ((((((monika, bert, mom)))))))

    prayers are with you. The boogie man is always hanging out waiting itsn't he? Ready to pounce.

    peace, emily
  • jsabol
    jsabol Member Posts: 1,145 Member
    #4
    Monika,
    Time for another slow deep breath...what a roller coaster. You, Bert and mom remain in my thoughts and prayers. I do take inspiration from your strength!! Hang in there, Regards, Judy
  • belinda25
    belinda25 Member Posts: 44
    #5
    Hey there Monika,

    I can understand that there is just an overwhelming feeling of uncertainty when you are waiting for test results. I hope that all the tests come back with good results for your mum and Bert.

    My thoughts and prayers are with you
    Belinda
  • StacyGleaso
    StacyGleaso Member Posts: 1,233 Member
    #6
    Congrats on the progress so far Monika! (and Bert and Mom, too, of course!) I still have my port, and toy with the idea of removing it, but still may wait a little bit longer.

    What a wonderful feeling to have accomplished so much! You will continue to be in my thoughts and I will still be sending all my positive energy to everyone here.

    All the best,

    Stacy

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