Need your help/advice

Options
drookID
drookID Member Posts: 20
edited March 2014 in Colorectal Cancer #1
My father passed away Saturday after fighting colorectal cancer for 7 years. We are getting requests for where to send donations. We would like the money to go to a foundation that supports patient advocacy, especially for colorectal cancer if possible. Dad always felt so lucky that his insurance coverage was so helpful and wanted to help others who didn't have coverage, or needed assistance for other associated costs. I've been searching on-line and found the Colorectal Care Line (associated with PAF). I'm curious whether any of you have dealt with them or whether you've heard positive or negative feedback.

Thanks for your help.
Danialle

Comments

  • Lori-S
    Lori-S CSN Member Posts: 1,277 Member
    #2
    Danialle
    I have experience with both organizations and they both are great. I will tell you that PAF was the most helpful of all the organizations. They assigned me an advocate manager who was caring, prompt and efficient. She went so far to make conference calls with me on the line while we negotiated my treatment and the costs associated with it. I am uninsured and without help from PAF, I might still be going around in circles trying to get very necessary things done. I can recommend them whole heartedly. As far as colorectal care line, they also help and they do help with associated costs such as transporation, parking, some medications. PAF also helps with these sort of costs but, I found PAF to be a bit more personal in their approach. I even helped them back by checking back in with my advocate manager and giving her all sorts of information regarding treatment and what the bottom lines were in accepted fees for chemo, follow ups and labs where I am being treated. so she could know how to best help others in my community.

    I am also sorry to hear of your father's death. You and your family have my prayers. May he rest in peace.
  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #3
    Lori-S said:

    Danialle
    I have experience with both organizations and they both are great. I will tell you that PAF was the most helpful of all the organizations. They assigned me an advocate manager who was caring, prompt and efficient. She went so far to make conference calls with me on the line while we negotiated my treatment and the costs associated with it. I am uninsured and without help from PAF, I might still be going around in circles trying to get very necessary things done. I can recommend them whole heartedly. As far as colorectal care line, they also help and they do help with associated costs such as transporation, parking, some medications. PAF also helps with these sort of costs but, I found PAF to be a bit more personal in their approach. I even helped them back by checking back in with my advocate manager and giving her all sorts of information regarding treatment and what the bottom lines were in accepted fees for chemo, follow ups and labs where I am being treated. so she could know how to best help others in my community.

    I am also sorry to hear of your father's death. You and your family have my prayers. May he rest in peace.

    So Sorry
    My condolences to you and your family. Raquel
  • drookID
    drookID Member Posts: 20
    #4
    Lori-S said:

    Danialle
    I have experience with both organizations and they both are great. I will tell you that PAF was the most helpful of all the organizations. They assigned me an advocate manager who was caring, prompt and efficient. She went so far to make conference calls with me on the line while we negotiated my treatment and the costs associated with it. I am uninsured and without help from PAF, I might still be going around in circles trying to get very necessary things done. I can recommend them whole heartedly. As far as colorectal care line, they also help and they do help with associated costs such as transporation, parking, some medications. PAF also helps with these sort of costs but, I found PAF to be a bit more personal in their approach. I even helped them back by checking back in with my advocate manager and giving her all sorts of information regarding treatment and what the bottom lines were in accepted fees for chemo, follow ups and labs where I am being treated. so she could know how to best help others in my community.

    I am also sorry to hear of your father's death. You and your family have my prayers. May he rest in peace.

    Thanks!
    Thank you for the greaat info about PAF. That sounds exactly like the type of organization my dad would want to help. I'm glad they were able to help you.

    I'm going to miss my dad so much, but I am relieved that he is no longer in pain and is at peace. I'm not sure about the "resting" part since he has lots of people to look after from up there :-)

    ..Danialle
  • drookID
    drookID Member Posts: 20
    #5
    Nana b said:

    So Sorry
    My condolences to you and your family. Raquel

    Thank you.
    Thank you. We have so many wonderful memories to hold us up.
    ..Danialle
  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    #6
    Sorry
    I'm so sorry about your dad. Sounds like he really fought the good fight.

    *hugs*
    Gail
  • bruins1971
    bruins1971 Member Posts: 227
    #7
    drookID said:

    Thanks!
    Thank you for the greaat info about PAF. That sounds exactly like the type of organization my dad would want to help. I'm glad they were able to help you.

    I'm going to miss my dad so much, but I am relieved that he is no longer in pain and is at peace. I'm not sure about the "resting" part since he has lots of people to look after from up there :-)

    ..Danialle

    Sending Condolences
    I am so very sorry to hear that your Dad has passed away. After 7 years he was called home but he certainly beat the odds of seeing that 5 year marker. He must have been one heck of a man to kick cancers **** for that long. May God bless you and your family during this difficult period.

    Bobby
  • drookID
    drookID Member Posts: 20
    #8
    bruins1971 said:

    Sending Condolences
    I am so very sorry to hear that your Dad has passed away. After 7 years he was called home but he certainly beat the odds of seeing that 5 year marker. He must have been one heck of a man to kick cancers **** for that long. May God bless you and your family during this difficult period.

    Bobby

    Thank you
    He was one tough cookie, and an amazing man. God Blessed us to let us have him for all those years. We have so many people here to support us through this time, so we continue to be blessed!
  • drookID
    drookID Member Posts: 20
    #9
    tootsie1 said:

    Sorry
    I'm so sorry about your dad. Sounds like he really fought the good fight.

    *hugs*
    Gail

    Thanks Gail.
    He certainly fought the good fight; otherwise we never would have had him with us for so many years!

    ..Danialle
  • lesvanb
    lesvanb CSN Member Posts: 905
    #10
    PAF
    Sorry to hear about your Dad's passing Danialle. I wish you and your family peace and care during this time.

    PAF has been very helpful to me dealing with my insurance company and are easy to work with. I recommend them.

    all the best, Leslie
  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #11
    Your father's passing
    Dear Danialle,
    How wonderful of you to spend the time researching a foundation to send donations to after your father's death. I'm sure he's looking over you with a few tears of joy in his eyes at your thoughtfulness, and thinking you're "superhero strong" in his mind.
    I'm sorry for the loss of your father's physical being, but glad you seem to have his spirit being in your heart, and able to understand he's in a better place at this time.
    I have no suggestions, so sorry about that. I just wanted to let you know, how proud we are here on the CSN, that you are taking the time, to in essence help us all, by directing donations to any part of research or help for those with Colorectal Cancer.
    I humbly thank you.
    Winter Marie
  • Lovekitties
    Lovekitties CSN Member Posts: 3,364 Member
    #12
    Daniallle
    I am so very sorry for your loss.

    Your love and admiration for your father come through in your posts.

    May the wonderful memories fill your heart.

    Marie
  • jararno
    jararno Member Posts: 186
    #13
    So Sorry
    Sorry to hear of your Father's passing. You are such a special lady who has done so much for so many people. Please know that we are all thinking about you and your family.

    Take care,

    Barb
  • John23
    John23 CSN Member Posts: 2,121 Member
    #14
    Lori-S said:

    Danialle
    I have experience with both organizations and they both are great. I will tell you that PAF was the most helpful of all the organizations. They assigned me an advocate manager who was caring, prompt and efficient. She went so far to make conference calls with me on the line while we negotiated my treatment and the costs associated with it. I am uninsured and without help from PAF, I might still be going around in circles trying to get very necessary things done. I can recommend them whole heartedly. As far as colorectal care line, they also help and they do help with associated costs such as transporation, parking, some medications. PAF also helps with these sort of costs but, I found PAF to be a bit more personal in their approach. I even helped them back by checking back in with my advocate manager and giving her all sorts of information regarding treatment and what the bottom lines were in accepted fees for chemo, follow ups and labs where I am being treated. so she could know how to best help others in my community.

    I am also sorry to hear of your father's death. You and your family have my prayers. May he rest in peace.

    PAF (Patient Advocate Foundation)
    PAF (Patient Advocate Foundation)

    For those that are not familiar with that acronym:

    Patient Advocate Foundation

    Please Save that link for future reference!


    John
  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #15
    Danialle
    I am so sorry for the loss of of your father. You are a terrific daughter + I know he must have been very proud of you.

Discussion Boards