folfox club treatment #4

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Comments

  • OGammy01
    OGammy01 Member Posts: 67
    AnneCan said:

    Diane
    Remember everyone's experience is different. You may not have the difficulties that some have. Try to take everything one day at a time. Good luck!

    Thank you so much Anne. Your
    Thank you so much Anne. Your post has made me feel much better. I will take one day at a time...
    I will get through this. Thanks again, Diane
  • jararno
    jararno Member Posts: 186
    OGammy01 said:

    Next Tueday
    I start my chemo next Tuesday for the first time and after reading all of the above I feel like running away. I already have neuropathy in my right foot and it is not fun! Oxy. side affects sound horrible and VERY EXPENSIVE! My insurance is changing Jan. 1 and they will not be paying as much as they did for chemo. This cancer thing is for the birds! Poor birds I wouldn't wish this on them.
    Anyway, I hope you all get releif soon!
    Hugs to all, prayers too!


    I dread next week too!
    I hope it goes well with you Kenny.

    Diane

    Diane
    Sorry if we have scared you! Luckily I didn't have any idea what to expect when I went in for Chemo as I had not been told anything.....Unfortunately I still got the side effects!
    ( I actually got mad when some family members said that I shouldn't be looking up the possible side effects because then I would get them.....implying I was a hypochondriac! )

    I think knowing the possible side effects is better, so you will not be blind sided when they hit! The cold thing is kinda hard to explain to anyone! I guess the best advice is to take it one day at a time. Trying to get your family and friends to understand what you are going through is also very hard. Emotions run high and feelings can be hurt. I was probably a bit more crabby during my off days ( as most people get when they don't feel well )!

    It is great having people here who understand what we are going through and don't mind hearing about it! It is a great place to bounce off ideas, concerns and to meet wonderful people.

    Best Luck in your new journey! You will do just fine!!

    Take Care,

    Barb
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    OGammy01 said:

    Thank you so much Anne. Your
    Thank you so much Anne. Your post has made me feel much better. I will take one day at a time...
    I will get through this. Thanks again, Diane

    I am glad
    If you do have symptoms, you know where to come for answers, advice on how to deal with them etc. Please let us know how it goes!
  • Lori-S
    Lori-S Member Posts: 1,277 Member

    New member of folfox club finished 2 of 12
    I hope we all get through the folfox test! The comments make me nervous about what maybe ahead. At least downunder its summer and the issues with the cold are not so bad. Except now its so warm I have to put my vegies in the fridge so they don't go off. The catch is on the treatment days I needed gloves to get them out of the fridge to make my veg juice and then I had to wait for the juice to warmup before I could drink it. I have been up late reading posts and cannot sleep and suspect I am about to be knocked over by the folfox express this weekend. I got really tired and dizzy four days after treatment on the first dose.
    Best wishes from downunder ( Sydney , Australia ),
    Pete

    Pete from down under!
    Hey Mate!

    I have a very good friend who lives in Mullumbimby. I know, quite a bit north. But, I do know that if someone says that you're the first cab off the rank that it is a compliment!

    Welcome to the board. I just had my 3rd treatment and it hit me really hard. But, I've had some reactions to the oxi during infusion so I've already proven to be sensitive to it. I will hope that you have an easier time than I have. Good luck!
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    OGammy01 said:

    Next Tueday
    I start my chemo next Tuesday for the first time and after reading all of the above I feel like running away. I already have neuropathy in my right foot and it is not fun! Oxy. side affects sound horrible and VERY EXPENSIVE! My insurance is changing Jan. 1 and they will not be paying as much as they did for chemo. This cancer thing is for the birds! Poor birds I wouldn't wish this on them.
    Anyway, I hope you all get releif soon!
    Hugs to all, prayers too!


    I dread next week too!
    I hope it goes well with you Kenny.

    Diane

    Diane
    Best to remember "Your result may vary!" Everyone seems to tolerate the chemo in their own way. I am wishing that you have little to no side effects. Don't let us scare you but, do take things in so that if something comes up you won't be caught off guard. I like to prepare for the worse and hope for the best. I will hope for the best for you. We're here to support you and answer any questions that you might come up with. And Welcome to the board and the FOLFOX Club. Sorry you had to join.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Lori-S said:

    Pete from down under!
    Hey Mate!

    I have a very good friend who lives in Mullumbimby. I know, quite a bit north. But, I do know that if someone says that you're the first cab off the rank that it is a compliment!

    Welcome to the board. I just had my 3rd treatment and it hit me really hard. But, I've had some reactions to the oxi during infusion so I've already proven to be sensitive to it. I will hope that you have an easier time than I have. Good luck!

    Thanks for the prayers and kind wishes.
    Its strangely comforting to think someone else half way around the world is at a similar stage of the folfox treatment cycle. Sorry to hear Lori-S you have been hit hard. I hope it eases off. My lack a local support group nearby makes this board really valuable source of support and advice. My folfox side effects have been mild so far, but they did reinforce for me the belief my cancer cells are actively being destroyed. When I get a side effect I keep on thinking I am beating my cancer. And to some extent the more it hurts me, the more I believe its hurting the cancer. This is a bit simplistic but it helps me cope and I have alot of faith in being positive and maintaining my hope.

    I was lucky to get onto nbc breakfast tv last week with a scuba diving cancer story.
    Just search for peter trayhurn nbc or stateline if you want to see the video.
  • Lori-S
    Lori-S Member Posts: 1,277 Member

    Thanks for the prayers and kind wishes.
    Its strangely comforting to think someone else half way around the world is at a similar stage of the folfox treatment cycle. Sorry to hear Lori-S you have been hit hard. I hope it eases off. My lack a local support group nearby makes this board really valuable source of support and advice. My folfox side effects have been mild so far, but they did reinforce for me the belief my cancer cells are actively being destroyed. When I get a side effect I keep on thinking I am beating my cancer. And to some extent the more it hurts me, the more I believe its hurting the cancer. This is a bit simplistic but it helps me cope and I have alot of faith in being positive and maintaining my hope.

    I was lucky to get onto nbc breakfast tv last week with a scuba diving cancer story.
    Just search for peter trayhurn nbc or stateline if you want to see the video.

    Wow Pete
    What an incredible story. Thank goodness you had everyone looking for you right away. How great that your camera was found over 3 years later and you continued to take pictures during the rescue. Now, you are working amiracle with your cancer. Hang in there. Good job mate!
  • OGammy01
    OGammy01 Member Posts: 67
    Lori-S said:

    Diane
    Best to remember "Your result may vary!" Everyone seems to tolerate the chemo in their own way. I am wishing that you have little to no side effects. Don't let us scare you but, do take things in so that if something comes up you won't be caught off guard. I like to prepare for the worse and hope for the best. I will hope for the best for you. We're here to support you and answer any questions that you might come up with. And Welcome to the board and the FOLFOX Club. Sorry you had to join.

    Barb and Lori, Thanks for
    Barb and Lori, Thanks for the "pick me up". Iam so glad I found this site! Never knew how much I would be learning about cancer. Does anyone have suggestions about what to eat when taking chemo? I know it is important to eat right.
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    OGammy01 said:

    Barb and Lori, Thanks for
    Barb and Lori, Thanks for the "pick me up". Iam so glad I found this site! Never knew how much I would be learning about cancer. Does anyone have suggestions about what to eat when taking chemo? I know it is important to eat right.

    Diane
    That's so hard to say because it seems that what I ate before either doesn't taste right or tastes or smells downright nasty. I found that after a few days I eat citrus, sweet or spicy foods because they cut through the taste. Just remember to make sure foods are warm to hot. I drink alot of teas but got sick of hot chocolate. Hydrating is probably more important than eating. Make sure to hydrate! One thing that I finally found that works for me is I make lemonade at double strength and leave it out at room temp (which lately is cold) and when I drink it I heat up water and add the hot water to the room temp cup of lemonade to make it nice and warm to drink. I was surprised that I could drink warm lemonade but once I thought about it, I have lemon in my teas too so, I guess it's not that far off a thing to do.

    Seems different things work for different people. Good luck!
  • OGammy01
    OGammy01 Member Posts: 67
    Lori-S said:

    Diane
    That's so hard to say because it seems that what I ate before either doesn't taste right or tastes or smells downright nasty. I found that after a few days I eat citrus, sweet or spicy foods because they cut through the taste. Just remember to make sure foods are warm to hot. I drink alot of teas but got sick of hot chocolate. Hydrating is probably more important than eating. Make sure to hydrate! One thing that I finally found that works for me is I make lemonade at double strength and leave it out at room temp (which lately is cold) and when I drink it I heat up water and add the hot water to the room temp cup of lemonade to make it nice and warm to drink. I was surprised that I could drink warm lemonade but once I thought about it, I have lemon in my teas too so, I guess it's not that far off a thing to do.

    Seems different things work for different people. Good luck!

    Warm lemonade
    Thanks Lori, warm lemonade I can do too.
    I'll let you know how I'm doing.
    A big hug!
    Diane
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    OGammy01 said:

    Warm lemonade
    Thanks Lori, warm lemonade I can do too.
    I'll let you know how I'm doing.
    A big hug!
    Diane

    Diane
    Also, I make sure to have a whey protein drink each morning. Makes sure that I have some good things in me even if I can't really eat the rest of the day. I put about 3-4 tablespoons of heavy whipping cream in a glass (adds some unprocessed fats and calories) then I heat up about 8 ounces of water in the microwave and pour it in the glass then add the protein mix. That makes it warm enough for me to drink.
  • OGammy01
    OGammy01 Member Posts: 67
    Lori-S said:

    Diane
    Also, I make sure to have a whey protein drink each morning. Makes sure that I have some good things in me even if I can't really eat the rest of the day. I put about 3-4 tablespoons of heavy whipping cream in a glass (adds some unprocessed fats and calories) then I heat up about 8 ounces of water in the microwave and pour it in the glass then add the protein mix. That makes it warm enough for me to drink.

    Thanks again Lori. These are
    Thanks again Lori. These are the things I was hoping for. I will be ready!