Has anyone had any reoccurence - I'm scared!
Comments
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Hi Bethdixiegirl said:Welcome Andrea
I am so glad you found this site. I think it should be a pre-requisite for all doctors to send their patients here, from the very beginning especially while waiting for test results. I think the torture of waiting for results is worse than the treatments. I do think waiting is nothing but emotional torture!
The people here are terrific. It's a great place to share your anger, depression, fear, helplessness and the best is HAPPINESS and HUMOR.
Without a good laugh sometimes the negative takes over and we seem to run with it. We all would do better to pick up the laughs and run with them with huge smiles all over our faces....wouldn't that make our families think we're nuts LOL.
Take care honey,
Beth
LPL/MALT/FNHL stage 3 (4/7/2006)
I agree it should be a pre-requisite ~ I've already felt the benefits and I see that so many others have too. I'm so not looking forward to my upcoming appts but I know I have to do it...not knowing would be so much worse. But I have to keep a positve attitude and keep my sense of humor right? So I will run to my appts with a big smile on my face
With or without a smile my family thinks I'm nuts. They shook the family tree and guess who fell out me...;) Take Care Beth and again thank you so much for coming by and putting that smile on my face!
Hugs ~ Andrea0 -
also am Hodgkins survivorSwtkoolaid said:Hmmm
That is strange that it accepted the other 6...LOL oh well I've seen worse screen names. LOL... I decided on mine before I got Hodgkins I drank a lot of koolaid and it was sweet...swtkoolaid. I now only drink sweet organic fruit juice but I think that name would be way too long...LOL I already love all the people on here and I feel safe and happy here. I'm glad I found all of you! Its helped to get through these days of waiting. BTW I or we own a 1970 Ford Mustang Fastback...super sweet car. I love car shows and we try to take it out every now and then to show it off I hope you had a great weekend and hey I understand the whole fuzzy head thing and sitting back waitng for the growth - At least us women have wigs we can play with while we wait
Hi, I welcome you here and enjoyed reading your posts. I know how that is about waiting to see the results what you may or may not have. So it is nice to reach out here and it does help me a lot too. I just completed 3rd round (6th treatment of chemo) and still have 3 more rounds. Feel like I am running a long marathon but people tells me that it will be over before I know it. Hope so!! I have lost my hair and most of my eyebrows (fine with me, no waxing needed!) but do enjoy wearing different fashionable scarves.
Wish you best of luck with everything,
Liz
(HL4B - 8/2010)0 -
Hi Liztruckingalong said:also am Hodgkins survivor
Hi, I welcome you here and enjoyed reading your posts. I know how that is about waiting to see the results what you may or may not have. So it is nice to reach out here and it does help me a lot too. I just completed 3rd round (6th treatment of chemo) and still have 3 more rounds. Feel like I am running a long marathon but people tells me that it will be over before I know it. Hope so!! I have lost my hair and most of my eyebrows (fine with me, no waxing needed!) but do enjoy wearing different fashionable scarves.
Wish you best of luck with everything,
Liz
(HL4B - 8/2010)
Thanks for the warm welcome and right now I need it... its blowing and snowing here I know the whole marathon feeling, but they are right it will be over before you know it. I lost my hair too, but I had so much that it took a long time before I decided it was time to "cover up".... I really never lost all my hair, but it was definitely a mess to say the least. But oh well, a small price to pay for life right? I think my daughter was concerned more about my hair then I was - funny how people react in different ways. And yes the waiting for results is a nightmare. But I did get some good news today about my thyroid that we thought may be cancerous, but it turned out that it wasn't so I will take that and run. I have to see the onco next Monday and I'm not looking forward to that visit at all, but know I have to go and make sure that everything is okay and if it is not, then to get things under control. But I'm glad to hear you are on your way to recovery...hang in there and thanks for coming by. Andrea 0 -
Thanks for the good wishesSwtkoolaid said:Hi Liz
Thanks for the warm welcome and right now I need it... its blowing and snowing here I know the whole marathon feeling, but they are right it will be over before you know it. I lost my hair too, but I had so much that it took a long time before I decided it was time to "cover up".... I really never lost all my hair, but it was definitely a mess to say the least. But oh well, a small price to pay for life right? I think my daughter was concerned more about my hair then I was - funny how people react in different ways. And yes the waiting for results is a nightmare. But I did get some good news today about my thyroid that we thought may be cancerous, but it turned out that it wasn't so I will take that and run. I have to see the onco next Monday and I'm not looking forward to that visit at all, but know I have to go and make sure that everything is okay and if it is not, then to get things under control. But I'm glad to hear you are on your way to recovery...hang in there and thanks for coming by. Andrea
Thanks, Andrea, for the good wishes!! I really am glad to hear of your good news about your thyroid. Yeah, my children are warriors for me - they instill fire in me and so are good to me so I am blessed.
Take care and thanks for sharing,
Liz0 -
Your Welcome Liztruckingalong said:Thanks for the good wishes
Thanks, Andrea, for the good wishes!! I really am glad to hear of your good news about your thyroid. Yeah, my children are warriors for me - they instill fire in me and so are good to me so I am blessed.
Take care and thanks for sharing,
Liz
Yes I have one daughter and a grandbaby and they are my world too. My boyfriend is wonderful too...he was not there with my first bout with Hodgkins, so he is quite concerned about what is going on and of course confused, but he is a trooper and my rock. Its good to have family and a spirtual connection to whatever it is we believe in without it I'm sure we would all be lost..... I think that our virtual family too is very important and I'm glad you came by... keep in touch and let me know how things are going. Many pryaers and hugs, Take Care my friend ~ Andrea0 -
I was diagnosed with lymphoma 3 years ago, never been in remission. I have been having back pain for the past two years, thought it was from a herniated disc, low and behold the results from an MRI discovered a mass between two of my vertebrate. I can empathize about scary feelings! Besides that, my oncologist is on vacation, so I don't no what's going on?0
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Been there done thatktjc129 said:I was diagnosed with lymphoma 3 years ago, never been in remission. I have been having back pain for the past two years, thought it was from a herniated disc, low and behold the results from an MRI discovered a mass between two of my vertebrate. I can empathize about scary feelings! Besides that, my oncologist is on vacation, so I don't no what's going on?
Hi Ktjc129,
I'm sorry that you have been dealing with NHL for the past 3 years now. I also was diag. with NHL in December of 2007. After treatment with Rituxan I was in remission until July 2009 when a CT scan showed recurrance. Like you my oncologist was on vacation. What a stressful time that was for me. His partner kept saying that it wasn't an emergency and there was time to wait until my onc came back into town. I wasn't satisfied with that, so he emailed my doctor who said to start the re staging with a PET scan and to schd a biopsy and second oppinion wuth a major cnacer center and go from there. I had 6 cycles of RCHOP and currently am in remission. I would push my doctors office to get someone to follow up with you to see if this mass is lymphoma. The sooner you know what's what the sooner those scary feelings can go be eased.
Blessiings to you,
Leslie0 -
Tumorktjc129 said:I was diagnosed with lymphoma 3 years ago, never been in remission. I have been having back pain for the past two years, thought it was from a herniated disc, low and behold the results from an MRI discovered a mass between two of my vertebrate. I can empathize about scary feelings! Besides that, my oncologist is on vacation, so I don't no what's going on?
The day I had my MRI for low back pain and numbness in my butt, was the day my hell began. I was hospitalized a few hours following the radiologists reading of this MRI. In my case, the mass grew super fast and my symptoms in creased in only one day to the point where I had much difficulty walking. My tumor was too complex for surgery. Please seek emergency care if you begin to suffer from any symptoms that may be caused by spinal cord compression. I am in remission from my DLBC but still suffer from what are irreversible issues with ambulation, pain and numbness. My doctor's informed me that symptoms of spinal compression is a medical/surgical emergency, please don't let them go. Let us know how it goes. Best of Luck, Kellie0 -
3 yearsktjc129 said:I was diagnosed with lymphoma 3 years ago, never been in remission. I have been having back pain for the past two years, thought it was from a herniated disc, low and behold the results from an MRI discovered a mass between two of my vertebrate. I can empathize about scary feelings! Besides that, my oncologist is on vacation, so I don't no what's going on?
Sorry to hear you are still dealing with lymphoma and the results of the MRI. Scary doesn't even say enough does it? I'm still waiting for my results. I'm sure the Onco doc has them by now. I'm hoping he is not holding off telling me bad news before the holidays..that would bite! I'd much rather know. I thought about calling them, but I can't bring myself to well, chasing down my own fate ;( I'm sure if there was something seriously wrong they wouldn't care that the holidays are coming up - would they? Ugh! I hope that you can get in to see your oncologist as soon as possible so you will know what you are dealing with and I pray that its nothing serious and that you will go into remission from lymphoma... my thoughts and prayers and thank you so much for stopping by. Andrea0 -
Sorry to hear about your reoccurence. Unfortunately this stuff does come back. I had swollen lymph nodes and night sweats back in 1989 was put on cytoxin pills and interferon and was in remission in one year. I was cancer free from 1991 till this past october 2009 when I discovered a lump the size of a golf ball in my groin. This time no pills or shots I had to get a port and was hooked up to a chemo drip for four days a week. I have been on disability since. Yes I am remission but the side effects of this chemo are a daily struggle with pain. I hope everything goes well for you, remember that it is treatable and a positive attitude can be a great equilizer.0
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Which Doctor?Swtkoolaid said:3 years
Sorry to hear you are still dealing with lymphoma and the results of the MRI. Scary doesn't even say enough does it? I'm still waiting for my results. I'm sure the Onco doc has them by now. I'm hoping he is not holding off telling me bad news before the holidays..that would bite! I'd much rather know. I thought about calling them, but I can't bring myself to well, chasing down my own fate ;( I'm sure if there was something seriously wrong they wouldn't care that the holidays are coming up - would they? Ugh! I hope that you can get in to see your oncologist as soon as possible so you will know what you are dealing with and I pray that its nothing serious and that you will go into remission from lymphoma... my thoughts and prayers and thank you so much for stopping by. Andrea
Hi, I am trying to keep busy with the holidays... cooking,cleaning,shopping.etc.... It's hard though isn't it? Also thinking and worrying what is going to happen next? Should I call my oncologist or wait for the three month appointment I have scheduled in two weeks? I also had to cancel the back surgeon because I developed shingles- because of the back problems, stress, low immunity? Why does every doctor pass your problem on to another doctor? My thoughts and prayers are with you, too.0 -
Arthritis vs CancerKC13167 said:Tumor
The day I had my MRI for low back pain and numbness in my butt, was the day my hell began. I was hospitalized a few hours following the radiologists reading of this MRI. In my case, the mass grew super fast and my symptoms in creased in only one day to the point where I had much difficulty walking. My tumor was too complex for surgery. Please seek emergency care if you begin to suffer from any symptoms that may be caused by spinal cord compression. I am in remission from my DLBC but still suffer from what are irreversible issues with ambulation, pain and numbness. My doctor's informed me that symptoms of spinal compression is a medical/surgical emergency, please don't let them go. Let us know how it goes. Best of Luck, Kellie
Who would have thought that having a routine MRI for a herniated disc and back pain could result in an unexplained mass? I was totally shocked to find out this happened to me. The positive side of this equation is that supposedly having radiation and/or chemotherapy will take away the pain. Anyone have any comments to that? Also, how many of you have been eligible for disability? I would like to talk about that. I will keep you updated. Thanks for your concern.0 -
Which Doctor?ktjc129 said:Which Doctor?
Hi, I am trying to keep busy with the holidays... cooking,cleaning,shopping.etc.... It's hard though isn't it? Also thinking and worrying what is going to happen next? Should I call my oncologist or wait for the three month appointment I have scheduled in two weeks? I also had to cancel the back surgeon because I developed shingles- because of the back problems, stress, low immunity? Why does every doctor pass your problem on to another doctor? My thoughts and prayers are with you, too.
If you can wait 2 weeks for your appt that should be okay, but wouldn't wait much longer. However, if things are bothering you and you need some piece of mind make an appt or call and seek some immediate answers. It is hard - the waiting and everything. I'm glad though that you are able to keep yourself busy - busy is good and a blessing that any of us have the energy to be busy Thats one positive right? I don't like the "pass the patient" either but sometimes its best to see a doc that specializes in any certain area of concern. That was a long hard journey I learned to adapt to. I wish you well and hope that you have a blessed Thanksgiving. Come back and let me know how your appt goes okay? Take Care! 0 -
So Far So Goodfrdad1 said:Sorry to hear about your reoccurence. Unfortunately this stuff does come back. I had swollen lymph nodes and night sweats back in 1989 was put on cytoxin pills and interferon and was in remission in one year. I was cancer free from 1991 till this past october 2009 when I discovered a lump the size of a golf ball in my groin. This time no pills or shots I had to get a port and was hooked up to a chemo drip for four days a week. I have been on disability since. Yes I am remission but the side effects of this chemo are a daily struggle with pain. I hope everything goes well for you, remember that it is treatable and a positive attitude can be a great equilizer.
Hi Frdad1,
I have not heard from my Onco yet for my results, but my appt is on Monday. Hoping for good news. My tests I know have been in his office for over a week now so I'm hoping that if it was anything of concern he would of contacted me by now. He is the type of doctor though that likes to sit with his patients and go over results. Soooooo I'm keeping my fingers crossed. I did however, get a lot of other things taken care from all these appts/doctor visits, symptoms ect... at least the doctors have a few things they can work with. I hope that your daily struggles become easier for you. I'm also glad you are in remission...thanks for the kind words of hope. Have a blessed Thanksgiving.... Andrea0 -
finally glad to hear from someoneSwtkoolaid said:So Far So Good
Hi Frdad1,
I have not heard from my Onco yet for my results, but my appt is on Monday. Hoping for good news. My tests I know have been in his office for over a week now so I'm hoping that if it was anything of concern he would of contacted me by now. He is the type of doctor though that likes to sit with his patients and go over results. Soooooo I'm keeping my fingers crossed. I did however, get a lot of other things taken care from all these appts/doctor visits, symptoms ect... at least the doctors have a few things they can work with. I hope that your daily struggles become easier for you. I'm also glad you are in remission...thanks for the kind words of hope. Have a blessed Thanksgiving.... Andrea
Hi Andrea, I've been trying to connect to anyone on the boards for a year now. I guess i'm not that tecnically savvy. But here is wishing for the best news from the doctor. I've had all kinds of doctors and the oncologist seem to be the most secretive when it comes to giving out results. I don't know why. But anyway enjoy this day and the weekend and I hope for many more for you. Sincerely, Frank0
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