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Welcome to plh4gail, LeesburgKate, and elaineG

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

OK you guys kind a snuck in and just to let you know, I'd like to formally welcome you to the board. While I'm sorry that you have to go through this s***y disease, I am so happy to welcome you to the board. There are a lot of really great people here with a whole lot of experience under their belts. I am so glad you found us. Welcome!

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

expanding belts....hahah this is a good thing

welcome all

mags

Jaylo969
Posts: 827
Joined: Jan 2010

Indeed, welcome.Hope you all like the forum and stay to help us all in our battle and we hope to do the same for you.As the song goes "I (we) get by with a little help from our friends..."

Welcome!

-Pat

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Welcome to the board. I hope we can provide support and information to you along this difficult journey. This board has been a pillar for us for the past 23 months.

Aloha,
Kathleen

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Thank you so much! It's been a hard 4 months. I want to think I'm an optimist and look for the positive but what the heck...I can't help but wonder what's the next curveball, missle, or brick coming my way. I seem to have been glued to my computer today with all of the information and inspitation all of you share. This (right up there with my family and treatment) has got to be the best thing I have found for recovery! I promise I will be checking on here daily. As you can read in my information, I went through the simultaneous radiation/chemo pump in July and August. I had my resection October 8th and woke up with an iliostomy, although temporary, still hard to get used to. Now after 3 weeks post op my iliostomy isn't working as intended and I go back to surgery November 12 to reverse it. I'm so happy about that, but at the same time I don't want to delay my upcoming chemo which will happen. Now, after reading all the comments about the different chemotherapies, I'm wondering which one I will be receiving and how I will tolerate it.....well, the important thing on this day is I'm ready to get it and the surgery started. And I hope I wake tomorrow with the same motivation.

Just wondering....does anyone else live emotionally moment to moment at times like I do?

Thank's soo much, Gail

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I will appreciate any information about that, was it hard? was it manageable ?you can use, PM to don't interfere this thread.
thank you in advance.
Pepe.Barcelona.

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

It was easier in the beginning than in the end. I actually worked for the first 3 weeks. I am an ER RN. Then about week 3/4 I called in one day and then knew that was it for me. By week 5 I was pretty tired, but it was the diarrhea that was at it's worse at that time I had to go on the BRAT diet, could only eat white rice, white toast, and bananas, no applesauce. About week 5 lasting for 3 weeks I could feel the effects of the radiation on my pelvic area. And boy did that hurt I'm sorry to say. Felt like a very bad UTI. .....I wish you the best with it and I know if I can do it so can you! I didn't miss a radiation treatment, although I had some rough days in the end. I got to where I just took my nausea meds on schedule and that helped a lot too. Much luck and lot's of hugs, ....Gail

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

It's a emotional roller coaster. Would be great if I didn't have a fear of roller coasters!!!
Yeppers, hang in there. Glad to see you in one way, being we're here for each other, sorry that you here because of the insidious cancer.
Winter Marie

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Gail,
I hope that all goes well on November 12 and that chemo proceeds as planned.
Yes, this is an emotional roller coaster. My husband has been fighting Stage 3c for 22 months. This month, he got a NED (no evidence of disease) scan so we are currently living a bit lighter. I know the way we have gotten through this is day by day. The fear seemed to come in when projecting the future. I think for both of us we tried (and sometimes I had to try very, very hard) to find something positive in the day. On days when he felt good we just soaked it up.
Glad you found us.

Aloha,
Kathleen

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Sounds so much like me. Moment to moment. That's how most of my days go, and I too look for something each day to be grateful for. It's so good to know it's not only me.

Thank's so much, Gail

AnneCan
Posts: 3692
Joined: Oct 2009

Welcome to all of you; this is a great place for information, comfort, laughter, etc. when you are going through what we are.

Annabelle41415's picture
Annabelle41415
Posts: 6531
Joined: Feb 2009

Thank you for starting this post. I've noticed some new posters as well. Just wanted to welcome you all to the best group of people and to let you know that you are now a part of a great family. If you would like to do a small introduction of yourself and condition that would be good so we can help you through your journey. Once again welcome, plh4gail, LessburgKate and ElaineG. Always feel free to post any thoughts or concerns and jubilations.

Kim

elaineG's picture
elaineG
Posts: 20
Joined: Oct 2010

Thank you all for your welcome to the group. I have now updated my profile with some information about myself - briefly as follows - stunned during a colonoscopy on July 12 this year to be told I had cancer in my colon, surgery on 4 August, then staging (early Dukes C/Stage 3), and now undergoing chemo, and awaiting each cycle with lots of different feelings - especially as my emotions seem all over the place these days - reading your welcomes had me all weepy!! I chanced upon your site when googling for info about Oxaliplatin side effects.
I live in the UK (Scotland) and it's good to speak to people from other parts of the world about something we all have in common!!
Elaine

cwork's picture
cwork
Posts: 37
Joined: Oct 2010

Welcome to you 3 from me as well. I am the sister of one of the girls on the forum here and new myself. I have to say I am absolutely shocked at the "faces" of this disease. So many young beautiful girls, and attractive men. In my mind I just had an image of an older demographic for this disease, especially since the age that a colonoscopy is recommend has traditionally been age 50. I do think doc's need to start suggesting baseline colonosocopy at age 40 as so many on here are in that age group. Anyway, welcome to each of you and I cannot being to tell you how much I have benefitted from this group in the short amount of time I have been on here.

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

In response to your mention of this diease and the younger group here is a link from a Boston news station about that very issue:

http://www.thebostonchannel.com/video/25589634/detail.html

It seems that while the incidence of colorectal cancer is declining, those diagnosed under 40 are on the increase.

abrub's picture
abrub
Posts: 2132
Joined: Mar 2010

Elaine,
Just wanted to let you know that there is good quality of life, even after Oxaliplatin! I'm a curler (in upstate NY)and I only missed one season of curling. I'm now awaiting the Scots Tour that will be coming our way in January, and I hope to curl against the Scottish women.

A side note - I was raised by a Scottish nanny, so I feel "adopted Scot"!

Best wishes,
Alice

elaineG's picture
elaineG
Posts: 20
Joined: Oct 2010

Hi there Alice
It's heartening to hear stories like yours - back to active life so soon! Looking forward to next spring, when I will be chemo free. What a coincidence your Scottish connections too! Good luck with your curling tournament.
All the best
Elaine

AnneCan
Posts: 3692
Joined: Oct 2009

My paternal grandparents both came from Scotland to live here in Canada. They met over here. Our Christmas is filled with Scottish-type sweets. I was brought up to believe the Scots are made of tough stock, so you will do well.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Come to Barcelona!
LOL.
Hugs to everybody!

abrub's picture
abrub
Posts: 2132
Joined: Mar 2010

How is the curling in Barcelona?

HollyID's picture
HollyID
Posts: 951
Joined: Dec 2009

A very warm welcome to you three! I hope you find friendship, information and a little humor thrown in. :)

Love and many hugs to all of you!!

Holly

geotina's picture
geotina
Posts: 2120
Joined: Oct 2009

Just wanted to jump in and say Welcome to the Board. It is a club we wish you didn't have to join but are here to help you in any way possible. Ask away and someone will be on to relate their experience. Many people on here know as much or more than the docs especially relating to side effects, different cocktails, etc.

Looking forward to chatting with each of you.

Take care - Tina

dmdwins
Posts: 453
Joined: Aug 2008

I hope we can be a source of hope and encouragement to you all. A place where you feel comfortable to share the good and the bad and know that we truly understand your battle and deeply care about each of you.

Smiles,
Dawn

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luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

Ditto to what the others have said!

-Sheri

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

How's the newlywed life treating you? I hope you and new hubby are doing well.

Aud's picture
Aud
Posts: 480
Joined: Oct 2009

welcome Elaine, Gail, and LeesburgKate. I, too, am sorry that you all have to deal with this but you're at a good place here.
~Aud

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