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Pet scan Thursday

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

I have a Pet scan tomorrow at 1pm. I haven't had one in 14 months. The person in charge of PET scan told me to drink a gallon of this kind of red tea afterward to get out the radiation. I never heard of that. I will let you all know what it is called.

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

I will send some prayers your way and also pray for positive results. I hope you won't have to wait too long. Hmm...red tea, interesting. I'll also look forward to hearing about that. Mary(FNHL-1-4A-8/08)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Joanie,
Good luck with that pet scan tomorrow. I know you are on pins and needles. I am sure the reults will be great. Keep us posted. John
(FNHL-1-4A-5/10)

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Good luck on that PET Scan!!! Good thoughts your way........ Vinny

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Joanie,
You said you were feeling good and haven't had any new signs or problems, so I can only imagine that your scan is going to be very, very good! . Maybe you will have a "hottie" radiologist doing your scan....hahaha! I'll be thinking good thoughts and sending prayers your way!...Love...Sue (FNHL-2-3A-6/10)

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

The technician was definetly NOT a hottie. The male nurse in the office told me to get my radioactive butt out of the office. I guess he didn't want me to hug him:)

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Good luck tomorrow, Joanie.

I'm looking forward to hearing great news!

Tom (DLBCF-4-7/10)

britta
Posts: 107
Joined: Apr 2010

Joanie,

Praying for good results tomorrow. Does anyone know why sometimes they do pet scans and sometimes cat scans. My doctor told me you actually get more radiation from the cat scan, and yet that's what he orders???

Darlene

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Darlene,
the ct scan is good for pin pointing exact location of anything that does not belong. The pet scan shows more detail in a 3-d view.You can tell exact size of any abnormality. The pet scan is a combo of an MRI and CT scan. I asked that question of the radiologist when I had my 1st PET scan. John
(FNHL-1-4A-5/10)

truckingalong
Posts: 444
Joined: Aug 2010

Joanie, I will be thinking of you with good news!

John, always a challenge to remember which is which so I will use CAT scan to remember like as a cat going for the rat - to the exact location as opposed to PET as a general 3-D view. That helps.
Thanks!

Liz

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Liz,
Another point to make about the pet scan is it can actually tell an abnormal cell from a normal cell. It is measured in the SUV's. The pictures are taken so rapidly its like a moving picture of still shots. The more rapid the SUV's tells them the cells are abnormal. The normal cell has a high uptake as well, but no ways as fast as an abnormal cell. SUV (sugar or standard uptake value). The ct scan would show about the same thing but it would be a little more difficult to tell exactly how quick the cells are responding to the sugar and radio-active shot we get before the test. That would mean a lot of hot spots,if there are any would be missed. The scans are read by a computer and interpeted by the radiologist. The bad news is the pet scan emits a bit more radiation thru the body. John
(FNHL-1-4A-5/10)

yesyes2
Posts: 592
Joined: Jul 2009

Hmmm, I've been told that CT scans give off more radiation than PET/CT. Both are not good for you, but we need them. My Oncs use CT to follow after a remission is reached. They us PET to stage. False positives are common with PETs as any inflamation will be picked up as increased SUV. I had SUV of 25 in the lining of my stomach on an otherwise clean PET, after biopsy told just normal but inflammed tissue. So not so cut and dryed as if it lights up its cancer. I also have a spot on sacra which has always lite up but is normal bone and tissue. We are all different.

Leslie

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Leslie,
I don't really know anymore. They could tell me the moon is green cheese and I would wonder how it taste. I hear so much stuff. I even ask them the same questions and get 5 different answers from 5 different experts. Even a simple x-ray is not good for people. As long as they keep us in the dark about certain things the more experiments they can do. I know what you mean about the SUV's lighting up. I had lighted hip bone marrow, but it was determined as normal because of the neulasta shot stimulating the marrow cells. It makes me hope they know what they are talking about.
I know when I had my ct scan about 8 months ago the enlarged nodes were seen. They scheduled me for a pet scan so they could size and stage the lymph nodes. They said the pet scan will give them a 3-D look at the nodes which will allow them to measure lenght,width and depth of each node. The contrast and radio-active isotope will highlight the uptake of the SWEEEEEET contrast (pint of sugar and 3 tsps of water mixture) they have us drink an hour ahead of time. This aids them to tell the density of the node. John
(FNHL=1=4A-5/10)

yesyes2
Posts: 592
Joined: Jul 2009

John,
I agree, I think we are all canarys in the coal mines, some giant experiment. Just hope I don't turn green and glow, lol. I've never been given anything to drink with my PET, only receive the radioactive sugar as a shot into a vein. They can't use ports for this injection as I was told it could destroy the port and the sugar would stay more around the heart. But I know some centers do use ports for theiir injections. Wish everything was standardized, drives me CRAZY.
Leslie

forme's picture
forme
Posts: 1162
Joined: Aug 2010

I have only had it as an injection. Never drank anything.
BTW a ct scan of the abdomen is equal to about 400 chest xrays in radiation dose. Very LAME

yesyes2
Posts: 592
Joined: Jul 2009

Wonder what a ct of chest/abdom/pelvus totals. See, I will turn green. And it's even scarier for us that have had radiation. I had 6 1/2 wks of radiation to my right breast and 15 days of rads to my underarm for breast cancer in 1992 and am at increased risk for lung cancer and sarcomas because of this radiation. When I was diagnosed with BC to my other breast in 2008 I refused to do radiation. Never again. But I am getting these darn CTs every 4 months. Feel like I'm a petri dish just waiting to grow more cancer cells.
Sorry to go off just that kind of day. Need to get off of this darn computer.
Leslie

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

The sugar drink was 16 ozs. of very very sweet pineapple flavored sugar water. It didn't taste that bad, just hard to swallow being so sweet. The radio injection was in a lead coated box with a needle on one end and the plunger on the other. It was a little longer than a matchbox. The amount was so small I hardly saw the plunger move. Even though the amount was small it made my arm feel cool for about a minute. It is supposed to attach to the sugar mix I had just drank. They wait about 10 minutes and put me on the gurney in front of the pet machine and then hook a dye solution drip to the needle they placed in my arm earlier. I lay on the gurney for another 10-15 minutes to be sure the dye is circulating thru the arteries and veins and the organs and then they start the photo session that only last 15 minutes. They go from the head to the knee. They said its 1000's of pictures that are sorted and put together by a computer. The info is then printed out along with the compiled pictures and left for the radiologist to interpret in language we can't understand. John
(FNHL-1-4A-5/10)

yesyes2
Posts: 592
Joined: Jul 2009

Hey John
Very interesting. Not very much like my PET/CT scans but guess the results are similar. I do not receive an IV with any type of dye nor drink anything. Need to eat only protiens for 24 hoours, fast for at least 8 hrs with drinking only water and receive the radioactive injection same as you. My understanding isn't that the PET is lots of different pictures but could be. Have you ever seen your PET scan. It's interesting as it compiles your entire body, plus organs, over a ct scan. You can see your organs and exactly how many and how hot the active areas are Way cool.
Leslie.

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Hi Guys!

I'm surprised at the amount of variability that is discussed with "standard" testing.

My PET/CT are even more different.

I have to first drink 2 or 3 16oz bottles of contrast material over a 3 hour period. The last hour has to be in a dark room with zero movement, no crossed legs or arms, no music or any other diversion. (They tell me that is because any movement, even eye movement, will attract the material to the area of movement.)

Then I go into the machine room and they provide me with a bonus enema of contrast material.

Then I assume the test position, enema tubes and all, and the machine starts. About half way through they let loose with the injection. For me it is heat, not cold, and it starts at the injection site and I feel the wave of intense heat making its way down my body. By the time the heat reaches the enema site (and other areas) its a downright otherworldy experience.

I have no idea how many years worth of radiation that might be, but it is what it is.

Tom (DLBCL-4-7/10)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Tom,
The last pet scan I had they had a little music playing. I guess because of all the waiting time in the room. Oh yea, You are gonna love the song. "You light up my life" John
(FNHL-1-4A-5/10)

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I've only had CT's where I have had to drink stuff. I just get the shot for pet/ct.

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Hey Joanie,

Get any results yet?

Tom (DLBCL-4-7/10)

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Thanks so much to everyone that posted. The Dr called 2 hours after I had my scan and said he would call me back. Well the next day he called and told me the reason he did not call back is that he saw something in my stomach and it didn't look like cancer but he had to talk to the radiologist. I got a clean PET scan. The thing they saw was not cancer , They said it was some sort of movement like my stomach growling. I would rather he just had said all is O.K and not explain why he didn't call back because now I want to know if my stomach was growling or what:) The Dr. said they both knew it was not cancer. Anyway I feel so blessed. Thank you to all of you for your caring and support. I'd like to do a group hug:)

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Joanie,
Thats wonderful news! If both doctors agree that what they saw was NOT cancer, then that would "work" for me! Sorry your radiologist wasn't a hottie...don't feel slighted..mine wasn't either. I think the "hottie" doctors might be the ones that do plastic surgery..ha! The one on t.v... 90210...is pretty hot! Love...Sue (FNHL-2-3A-6/10)

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Great new picture, Sue.

Can I have your hair when you are done with it? I can be an old hippy.

Tom (DLBCL-4-7/10)

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Tom,
Thanks...My grandaughter Chelsie got a new fancy pants phone so she took the picture and then sent it to my computer. I think she could fly a plane with that fancy phone...wayyyy too technical for me to figure out. Yep...I still have my hair...don't know how long it will last...I'm finding alot of hairs all over the house, and Steve's constantly pulling blonde hairs out of his food..probably should wear a hair net when cooking...(NOT!)...ha! I enjoyed the hippie days, even though I wasn't one....well maybe a little bit.. a moderate "flower child" I suppose...ha!
Sue...FNHL-2-3A-6/10)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

What new picture? I didn't see any new picture. The one that is on there now has been there for awhile,right. John(FNHL-1-4A-5/10)

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

It's a new picture from yesterday John. Chelsie was trying out her new camera, internet, fancy phone and said she wanted a picture showing I still had hair after round 3. She's a worry wart with me possibly loosing all of my hair, so she drops by every day after her classes to see if it's fallen out overnight...ha! ...Sue

Chris17's picture
Chris17
Posts: 175
Joined: Oct 2010

That is a beautiful picture, your grand daughter did a good job! By round 3 majority of my hair hair was gone, i started out with hair past my waist and decided to shave it off before it started to fall out,you are lucky to still have your hair,after mine was gone i got used to it, tried to see some humor in it and told myself i was saving money on hair products ha ha! Good luck to you Sue!
Chris(FNHL stage3) 4-08 in remission

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Sue,
No I'm not kidding. The picture I have on my site is you sitting on your husbands lap. I believe its been on there for awhile. Don't know if its just my computer or what. John(FNHL-1-4A-5/10) REMISSION

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Thats weird John...the picture was changed yesterday. I'm sitting on the patio wearing the USMC t-shirt my youngest son sent me from the MCRD in San Diego when he was in boot camp. I wonder why your computer didn't make the switch from the other pic of me and Steve? Oh well..you arn't missing anything...same old me just a few months older, tireder and paler, and still with hair...ha!..Sue (FNHL-2-3A-6/10)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Sue,
I don't know what happened. Maybe because I veered off the the subject yesterday the site is getting back at me. hahahaha. John (FNHL-1-4A-5/10)

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Still doesn't show it yet? Uhhhh ohhhh...run out the back door if a big black SUV comes down your driveway...hahaha!...Sue

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Joanie,
Geat news. Congratulations. We are all right behind you.

Tom (DLBCL-4-7/10)

truckingalong
Posts: 444
Joined: Aug 2010

Great to hear the good news of your results!!

Liz

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