Good luck to Ed and Trew

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  • Skid Row Tom
    Skid Row Tom CSN Member Posts: 125
    #22
    Trew said:

    Small What??
    At my first uro's office I only saw the PA after surgery. "He" would tell me it was only my imagination. "He" was one of the reasons i quit that doctor. And size has changed since surgery, hormone shots and radiation. I have this picture of todays procedure- evryone one in the OR room will be a female- I know the doctor is. And it is a bit embrassing. But I am basic a eunuch now, anyway, so what is the fuss about? (soft crying sounds........)

    I do appreciate the candid commentary today.

    And there is always someone worse off, that is true. It doens't diminish the fact that those with PC have a life changing experience, too, that hangs over our heads forever. Right now we don't look like the worst cases of ca- but we have the germ and further on down the line we could be the worst cases, too. I have seen end stage PCa and its not pretty.
    Its as hard and any cancer out there.

    My turtle
    After being diagnosed, and during my research into the best options (and the consequences), I found a study that said a radical prostatectomy results in a decrease of one inch to your manhood. I can't recall the specific study and I don't believe it differentiated between open and robotic surgery. For weeks after the surgery, I joked with my wife that "it" looked like a turtle..... and after what it's been through, it wasn't comin' out.
  • Trew
    Trew CSN Member Posts: 932 Member
    #23
    Friday Update
    First of all I am very tired,but rerstless, too.

    If you want to bulk up a bit all you need to do is have a garden hose inserted in the male part for whatever time it takes and you will definitely see some bulking up. I am on vicodin right now, so I can look at this with a little humor. Of course, "it" is extremely painful right now and i have a very large cath coming out of "it."

    Good news- I am passing a lot of blood. The cath bag is bright red. While I was in recovery the Doctor told my wife that was a good sgin- it indicated healthy tissue underneath the scarring. I met with her on Wednesday to go to the next step of treatment and get the cath out.

    So at this early stage I'm a bit more hopeful.

    But also, really good news- Dr Latini got a very good look at the bladder and no signs of any kind of any cancer.

    Enough for now. I am tired and sore and need to sleep. I just thought some of you would like to know.

    And yes, Dr Latini told me you do lose size- about an inch or so. Anytime you take a section from the urethra it comes of the end. Sorry about that, for all of us who have had surgery. Proton treratment- well, just another reason to go that way if possible.

    Everyone, just thanks, ok?

    Oh, one other thing, my throat is really sore, too.
  • mrspjd
    mrspjd CSN Member Posts: 694 Member
    #24
    Trew said:

    Friday Update
    First of all I am very tired,but rerstless, too.

    If you want to bulk up a bit all you need to do is have a garden hose inserted in the male part for whatever time it takes and you will definitely see some bulking up. I am on vicodin right now, so I can look at this with a little humor. Of course, "it" is extremely painful right now and i have a very large cath coming out of "it."

    Good news- I am passing a lot of blood. The cath bag is bright red. While I was in recovery the Doctor told my wife that was a good sgin- it indicated healthy tissue underneath the scarring. I met with her on Wednesday to go to the next step of treatment and get the cath out.

    So at this early stage I'm a bit more hopeful.

    But also, really good news- Dr Latini got a very good look at the bladder and no signs of any kind of any cancer.

    Enough for now. I am tired and sore and need to sleep. I just thought some of you would like to know.

    And yes, Dr Latini told me you do lose size- about an inch or so. Anytime you take a section from the urethra it comes of the end. Sorry about that, for all of us who have had surgery. Proton treratment- well, just another reason to go that way if possible.

    Everyone, just thanks, ok?

    Oh, one other thing, my throat is really sore, too.

    Trew
    Trew,
    I thought about you many times today, as I'm sure others did as well. My heart goes out to you and all you've endured. I hope you know that by sharing your challenging PCa story with both the sadness and humor you experienced, you have touched & educated many here, and by doing so, you have also shown that you have the strength to overcome this.
    mrspjd
  • Trew
    Trew CSN Member Posts: 932 Member
    #25
    mrspjd said:

    Trew
    Trew,
    I thought about you many times today, as I'm sure others did as well. My heart goes out to you and all you've endured. I hope you know that by sharing your challenging PCa story with both the sadness and humor you experienced, you have touched & educated many here, and by doing so, you have also shown that you have the strength to overcome this.
    mrspjd

    Dear Mrspjd,
    Mrspjd, thank-you. This is a vicodin day, so I am sort of in and out of it. Mrs Trew is a gem to me like you are to your Mr. And, I know this may be difficult to understand for some, the cath is actually a blessing. I am completely relieved of the stress leaking causes. No worries, no pds, I am relaxed and comfortable and, Yes, I am enjoying having the cath in. It feels more normal than the constant dripping I put up with.

    Dr. Latini told Mrs Trew after surgery my urethra was very very narrowed. Not much of an opening left. I could tell that myself.

    Well, I just took a half vicodin about 1/2 hour ago- it's about time for another nap.

    And I am drinking all the water I want for the first time in months. This cath is a good thing. I can drink and sleep and not worry about a thing. this is such a nice break.

    And I never thought I would be saying something like that before.

    And yes, I do like vicodin. :)
  • ejn
    ejn Member Posts: 64
    #26
    Trew said:

    Dear Mrspjd,
    Mrspjd, thank-you. This is a vicodin day, so I am sort of in and out of it. Mrs Trew is a gem to me like you are to your Mr. And, I know this may be difficult to understand for some, the cath is actually a blessing. I am completely relieved of the stress leaking causes. No worries, no pds, I am relaxed and comfortable and, Yes, I am enjoying having the cath in. It feels more normal than the constant dripping I put up with.

    Dr. Latini told Mrs Trew after surgery my urethra was very very narrowed. Not much of an opening left. I could tell that myself.

    Well, I just took a half vicodin about 1/2 hour ago- it's about time for another nap.

    And I am drinking all the water I want for the first time in months. This cath is a good thing. I can drink and sleep and not worry about a thing. this is such a nice break.

    And I never thought I would be saying something like that before.

    And yes, I do like vicodin. :)

    Trew, So glad to hear there
    Trew, So glad to hear there seems to be progress made and you are comfortable. Make the best of these cath days and try to catch up on your rest. This is the start of better days for you. Thanks for keeping us up to date.
  • Trew
    Trew CSN Member Posts: 932 Member
    #27
    ejn said:

    Trew, So glad to hear there
    Trew, So glad to hear there seems to be progress made and you are comfortable. Make the best of these cath days and try to catch up on your rest. This is the start of better days for you. Thanks for keeping us up to date.

    The Tale continues....
    Whenever the urehtra is cleared of strictures the leaking increases greatly.

    I called the U of MI office this morning and asked if I could keep the cath in for another week. maybe it might help hold the strictures from reforming? I don't know, but thought I would ask.

    I just know, and Dr Latini told me, too, that when the cath comes out expect a lot more leaking.

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