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Not exactly what I was hoping to hear - CEA

Kathryn_in_MN's picture
Posts: 1258
Joined: Sep 2009

After my resection my CEA was 2. It slowly climbed until chemo and during the first few treatments, and then slowly dropped back to 2 and stayed there. It was 2 mid-May after completion of chemo. I am back up to 8.1. I'll have a re-check next week, and then see my onc the following Friday (he's on vacation next week). For now, I'm just a little nervous...

First time back in the onc's office since the end of May. I had my share of medical crap in June, but it only involved the hospital and my primary. I was surprised by how much it bothered me once I was there. I sat across from a lady accessed for chemo. The nurse came to call her, with 3 little bags for chemo in hand. I actually gagged and felt like vomiting. I can clean up cat barf without trouble - but I can't look at chemo bags... crazy.

HollyID's picture
Posts: 951
Joined: Dec 2009

I'd probably do the same.

Kathryn, I'm keeping you in my positive thoughts and wishes.

Love and Hugs,


Buzzard's picture
Posts: 3073
Joined: Aug 2008

just keep up the good thoughts and you will be ok...Love to you and yours, Buzz

greybeard64's picture
Posts: 254
Joined: Mar 2010

I cant look at them either. went to the Onc's office yesterday just blood work and scheduling of the next scan (OCT). anyway I went to the back, my wife was talking to one of the nurses and there where all those lazy-boy recliners. One gentlemen was receiving his treatment and just like you I saw those bags hanging from that silver pole and my stomach rolled right over.

As for those creaping numbers, as they say dont go lookin for trouble, I know easier said then done. Your in my thoughts, stay strong my friend!

ktlcs's picture
Posts: 360
Joined: Jan 2010

But don't worry until there is something to worry about. Anything else going on medically that could cause the CEA to rise?

Good Luck on the re check, hopefully things will have turned around


Posts: 3692
Joined: Oct 2009

I hope it is nothing but I know worrying is a b&%^#! As for the chemo, I am still on it + I try to think of it as what is keeping me here. Otherwise I would probably be gagging, etc. too. Here's hoping for good news when you get re-tested.

pepebcn's picture
Posts: 6352
Joined: Aug 2010

I,m sure after doc visit you will bring us superb news!

Annabelle41415's picture
Posts: 6549
Joined: Feb 2009

Rising CEA can be caused by other things and it doesn't always mean another cancer. Hoping that it is just due to something insignificant and you will be back to normal soon. Will be thinking of you and your upcoming appointment.


abmb's picture
Posts: 311
Joined: Sep 2009

My thoughts and Prayers are with you. take care. Margaret

tootsie1's picture
Posts: 5056
Joined: Feb 2008

I can understand the nervousness. Seems like cancer takes away our ability to shrug off any symptom without thinking it might be a step back into ickiness. Hopefully your CEA is up for some silly reason, and you'll be able to sit back and enjoy for awhile.


geotina's picture
Posts: 2120
Joined: Oct 2009

Sorry for the late response, been off the boards of a few days. Anyway, here is hoping that you have nothing to worry about. I get your site updates and you sure are one busy lady. If you can, take it easy, let your body heal. You had one of the toughest times I have every read about with chemo so now your body has to heal itself. Here is hoping that that is all it is, your body healing.

Take care - Tina

Posts: 965
Joined: Nov 2008

It's not what we want to hear when we get CEA results but hopefully just a simple explanation and nothing to worry about. I will keep you in my thoughts and prayers.


herdizziness's picture
Posts: 3642
Joined: Apr 2010

Thoughts and prayers are with you dear. Holding out for the best scenario.
Winter Marie

Posts: 22
Joined: Jul 2009

Hi Kathryn,

I posted a CEA question yesterday, should have scrolled down further to see your post. I'm sort of in the same situation. My pre-surgery CEA results were 4.5 and 2.0 (different labs) and my post-treatment numbers were 3.1 (Feb) and 1.8 (May) again different labs but following the same pattern. Had another test Thursday at Memorial Sloan (NYC) and the number was 4.0. Didn't get the result until I got home, they have a site where you can log on and see your numbers. Needless to say I was bummed by the jump and sent an e-mail to my surgeon looking for reassurance.....hopefully I'll hear something tomorrow. I took reassurance from the responses to your post and hope you did too but know how stressful it is waiting for that next appointment, test, result and breathing a sigh of relief when all is well only to be put into limbo again with another result. Please keep us posted on your next test and onc visit.

Re: chemo - all I have to do is think about it and my stomach turns. I did quite well through treatment, had some neuropathy issues and other annoyances but always figured it could be worse but the memory of how you felt through treatment especially as you got closer to the end really stays with you so no, you are definitely not crazy.

Hugs to you, fingers crossed that all goes well.


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