Here we go again

2

Comments

  • eric38
    eric38 Member Posts: 583
    lisa42 said:

    Eric
    Hi Eric,

    Man, oh, man. Yes, getting news like this does knock the wind out the sails. I'm sorry. BUT you are starting the trial, so that will hopefully knock it all back down. I went through a time back in Feb and March when I went without any treatment for a while after I had already had a bad scan, so I was really scared waiting that additional time. I started on it & my first follow up scan after starting on the new treatment (Gemzar (gemcitabine), Xeloda, & Avastin) showed things as stable- basically the same as my scan before. I was hoping for better, but at least it had stopped any new growth. That was the beg. of May & now my next scan will be in August. Meanwhile, my CEA (which has been reliable for me) has been dropping. It was 44 last time it was checked 3 wks ago & I get it checked again Wed. I'm counting on the dropping CEA as a good sign & that my scan will show reduction in tumors- we shall see.
    I just want to encourage you that there still could be something out there for you that will knock it back!
    Keep Gemzar as something to consider, as it does seem to be doing ok w/ me & the side effects are pretty minimal (at least compared to oxy and irinotecan). What is the clinical trial you're starting?

    Eric, knowing you're a believer- you can believe I'm praying for you!

    Take care,
    Lisa

    lisa42
    Thank you for the prayers and encouragement. I hope that your next scan blows yours and the doctors socks off! i hope it will exceed even your most positive hopes.
  • eric38
    eric38 Member Posts: 583
    unknown said:

    This comment has been removed by the Moderator

    luvinlife2
    they did put me back on erbitux. It worked like a charm the first time and was virtually useless the second time. I hope this is not a sign that he cancer has decided to grow no matter what.
  • eric38
    eric38 Member Posts: 583
    Sonia32 said:

    Eric
    You and everyone on this board are such an inspiration to me. I was talking to big brother Craig yesterday, and we were talking about our online family. I was telling him how unique it is, and there is none other like it out there in cyber world. There might be but I haven't come across it. What am I trying to say is, you have the support and prayers from me and all your online family, and I will be praying that the new drugs work on you fast! So as you know already, you are not on your own.

    Hugs

    sonia32
    I do appreciate the care and support here and the concern for one another even though the person trying to console you might be having the same problems or worse. This is the first place I ran to when I found out because noone can understand what we go through except for the ones who are going through it too and there is always someone here to make you feel better with their warm heart and support or a story about beating the odds.

    love you guys,
    Eric
  • pluckey
    pluckey Member Posts: 484
    Eric - echoing all the other
    Eric - echoing all the other beautiful posts by our semi-colon family: praying for good outcomes for you. I am a miracle and you can be too!!!

    ((HUGS))

    Peggy
  • geotina
    geotina Member Posts: 2,111
    Eric:
    I am so sorry for the disappointing news you received. I sure hope the clinical trial will stop the progression and growth. George has mets to the liver and lungs so I know how hard it is, you just want this stuff to disappear, but the worry, I don't know if that will ever disappear although we try.

    Take care and put all your positive energy into the new treatment. You are way too young to be dealing with this crap and I'm so sorry for that. It is just not fair.

    Tina and George
  • angelsbaby
    angelsbaby Member Posts: 1,165
    geotina said:

    Eric:
    I am so sorry for the disappointing news you received. I sure hope the clinical trial will stop the progression and growth. George has mets to the liver and lungs so I know how hard it is, you just want this stuff to disappear, but the worry, I don't know if that will ever disappear although we try.

    Take care and put all your positive energy into the new treatment. You are way too young to be dealing with this crap and I'm so sorry for that. It is just not fair.

    Tina and George

    Eric
    I wish the very best outcome for you. and pray for a miracle.

    michelle
  • coloCan
    coloCan Member Posts: 1,944 Member

    Eric
    I wish the very best outcome for you. and pray for a miracle.

    michelle

    You can't give up--no one can--hard as it is.....
    at times a retreat is in order to recover,regain your strength, clear your mind, seek other options, get pissed and divert that energy to this insidious parasite we have in us......Spontaneous remission, positive thinking, clinical trials, new discoveries or approaches to fighting this beast....A little over a year at this and I'm learning to take nothing for granted as there are so many things that can send you back to the hospital or back to the drawing board....Hoping your new treatment proves successful and you regain your fighting spirit......steve
  • lmliess
    lmliess Member Posts: 329
    coloCan said:

    You can't give up--no one can--hard as it is.....
    at times a retreat is in order to recover,regain your strength, clear your mind, seek other options, get pissed and divert that energy to this insidious parasite we have in us......Spontaneous remission, positive thinking, clinical trials, new discoveries or approaches to fighting this beast....A little over a year at this and I'm learning to take nothing for granted as there are so many things that can send you back to the hospital or back to the drawing board....Hoping your new treatment proves successful and you regain your fighting spirit......steve

    Hey there...
    Eric – this actually brought tears to my eyes because I know how you feel and it is so darn tiring!

    I just completed my 3rd round of Folfori and Avastin and I am tired of it. I am tired of the achy feeling and nauseasness for about 5 days after chemo and not being able to play and enjoy this summer everyday. I KNOW I AM BEING WHINY!! I know I should be happy because they found these ‘areas of concern’ as early as they could and we are on it with the chemo, but I feel too like maybe this is just going to go on and on and on, and at some point my ‘spirit’ may not stay up.

    Chemo makes you feel like crap and that wears you out and really does affect your mood. BUT – WE HAVE TO KEEP THE FAITH! Not that I am losing mine, but I am starting to ask a lot of questions to the man above as to what exactly am I supposed to get out of this and can you please send me a sign because I am jus not seeing it!! Is it my diet? Is it my genes? Why am I the ONLY one under 50 in my family that had this DX’d. I really am a good person! Why do I get, in my eyes, my perfect little family, for me to turn around and put them through this stress?
    I turn 40 this year and I planned on being in the best shape ever, but it is hard when you are doing a round of chemo!

    I am not sure I am being very uplifting for you here but I want you to know I am praying and thinking of you. And you are not in this alone. We have to keep a positive attitude because I truly believe it does help. But honestly, if cancer is a ‘gift’, where the heck can we return it?? 


    A big HUG your way!

    Linda
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Set Sail - 1st Star on the Right.....
    Well, you've got the whole army behind you, Eric.

    I know you always try to paint a portrait of being rough and tough and then you shade it with a sense of humor - I know this is done to hide some of your real feelings on what's going on deep inside you.

    I think it also helps you to come to grips with this and deal with it better - and by doing this, you give yourself the strength to continue your fight.

    See, I know a little bit about how Eric ticks. I know you're feeling a sense of hopelessness and helplessness right about now, but by coming here, you are trying to wrap your arms and mind around it - and that's a good thing to do.

    I'll be following your progress when I get out of the hospital - you know I wish you all the best going forward. Ours is never an easy road to walk down - but with so many of us on the road, it is well-traveled and there is safety in numbers.

    Wish I could say something more - I like to think I can talk my way out of anything, but I don't have any magic words this time, just hang in there and keep swingin'.

    -Craig
  • dorookie
    dorookie Member Posts: 1,731
    Totally on the way
    Eric, I am so very sorry to hear this news...but I to believe in God and miracles, it could happen, but in the mean time I sure hope this new trial works for you, sometimes miracles (in my opinion) come from God just giving some one the knowledge or skill to help someone else. Stay strong, and keep the faith...Praying for you my friend..

    HUGS
    Beth
  • dorookie said:

    Totally on the way
    Eric, I am so very sorry to hear this news...but I to believe in God and miracles, it could happen, but in the mean time I sure hope this new trial works for you, sometimes miracles (in my opinion) come from God just giving some one the knowledge or skill to help someone else. Stay strong, and keep the faith...Praying for you my friend..

    HUGS
    Beth

    This comment has been removed by the Moderator
  • vchildbeloved
    vchildbeloved Member Posts: 133
    unknown said:

    This comment has been removed by the Moderator

    Eric as I was reading your
    Eric as I was reading your post, I immediately began to pray; for I do believe in the power of God to heal. Whether it be through this clinical trial or His ability to just "touch" us where we are. That's my prayer for you.

    Such regard,
    Valerie
  • Patteee
    Patteee Member Posts: 945
    dorookie said:

    Totally on the way
    Eric, I am so very sorry to hear this news...but I to believe in God and miracles, it could happen, but in the mean time I sure hope this new trial works for you, sometimes miracles (in my opinion) come from God just giving some one the knowledge or skill to help someone else. Stay strong, and keep the faith...Praying for you my friend..

    HUGS
    Beth

    here I am! On the sidelines
    here I am! On the sidelines of your journey, cheering you on NO MATTER WHAT

    for- the clinic trial to beat this beast down, down, down
    for- stable times to feel better so the motions of life and living take on new and great meaning
    for- family, friends, loved ones and yes this community of semi-colons to surround you with love, hope and strength

    Always here Eric- your battle will always be my (and all of ours) war

    hugs and prayers from Minnesota

    Patteee
  • SueRelays
    SueRelays Member Posts: 485
    Patteee said:

    here I am! On the sidelines
    here I am! On the sidelines of your journey, cheering you on NO MATTER WHAT

    for- the clinic trial to beat this beast down, down, down
    for- stable times to feel better so the motions of life and living take on new and great meaning
    for- family, friends, loved ones and yes this community of semi-colons to surround you with love, hope and strength

    Always here Eric- your battle will always be my (and all of ours) war

    hugs and prayers from Minnesota

    Patteee

    Hey Eric
    Chiming in from the

    Hey Eric
    Chiming in from the anal board! One can NEVER have too many prayers....so YOU will be added to mine!!!!
  • taipei
    taipei Member Posts: 33
    Pray
    Hi Eric: I am glad to pray for you, knowing you believe in God, miracles does happen, it is understandable you feel discourage now, just keep hoping, it will get better, and clinical trial will work for you.

    Winnie
  • Fight for my love
    Fight for my love Member Posts: 1,522
    You are in my prayers as
    You are in my prayers as always.I hope the next treatment will be working well.Best wishes and best luck to you.Take care.
  • sfmarie
    sfmarie Member Posts: 602
    Fight!
    Like mad. It means being your own advocate as you know but leave no stone unturned.
    Praying that the new treatment on Monday works.
    Blessings,

    Marie
  • GOOFYLADIE
    GOOFYLADIE Member Posts: 232
    Hi Eric
    Sounds like you have had a few days for the pity pot. Reach down and pull those big boy shorts up. God, this board and your doctors have your back. Keep asking questions and push to get started on something now, as moving forward and in motion keeps us from frivolas thought. Right now what matters, is your health, family and happiness. You can't get there with that stick in your crawl. I am not being mean.I am giving you a ginormous hug hug right now and whispering in your ear hold on,and breathe. I don't know why you were handed this ordeal but you have made it a great ride just ask all these board members. Honey you can do this, that and the other. Don't fill your plate, take on only what matters for today, and what floats your boat. Each day will get easier again as you were once comfortable in who and what is going on in your life. You are one jammin Sunshine!
    Make it a great day, Ps sorry I haven't been on the board, been dealing with own health issues and awaiting surgery again.
    Lots of huge warm hugs
    Goofyladie (Cass)
    p,s,s, you have the right to be pissed, angry, sad, and everything, but I can't stand to see, or read your words and feel how down you are. You are better than that sugar.!!
  • HollyID
    HollyID Member Posts: 946
    This news totally blows.
    Eric, I have to echo the others. There is nothing new I can say to you, but my prayers, good vibes and whatever else I can think of is coming your way!

    Love and Hugs,

    Holly
  • nudgie
    nudgie Member Posts: 1,478
    Your request
    has been answered. I will pray and continue to pray for you daily