CSN Login
Members Online: 0

You are here

CSN Outage 9/17/20

CSN will be down for maintenance 7/19/20, from 10pm-11pm EST. We apologize for the inconvenience. 

The moment of truth is fast approaching.

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Hi to all,
Hope everyone is doing alright and hanging in there. I am currently a basket case! I go back for my first follow up PET scan tomorrow to see if I am still in remission. It seems to have come so fast and I am nervous and all creeped out. It's hard to say how I'm feeling physically because I don't think I have all of my pre chemo stamina back yet but it gets better each day. Wish me luck. Thanks.
Mary

natalie14's picture
natalie14
Posts: 36
Joined: Mar 2010

I hope your PET scan comes back clear and your remission continues. Prayer will help ease your mind. Natalie

jerzpilot's picture
jerzpilot
Posts: 39
Joined: Nov 2009

Hello Merry, Your PET scan will come back clear and healthy. How many sessions did you go thru?

Edwin

Tracie1981's picture
Tracie1981
Posts: 125
Joined: Mar 2010

I have faith everything will come back wonderful! Prayers!

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Hey Edwin,
I got back from Mayo a short time ago and my PET scan showed a complete remission. I am so relieved and thankful. I had 6 treatments of R CHOP from Oct.6Th,2009 thru Jan.26Th,2010. All in all it went very well. Now I am faced with a very big decision as to where to go from here. I can either have Rituxan once every 3 months as maintenance or Zevalin. My MD will leave it up to me. I am not knowing what to do. The research is showing Zevalin to be far superior so it seems like a no brainer but there's a lot involved. With Rituxan I know what to expect but the payoff won't be as good. I am going to post now and see if anyone has any info or advice for me. Thanks for your response. Hope all is well.
Mary

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Hey Edwin,
I got back from Mayo a short time ago and my PET scan showed a complete remission. I am so relieved and thankful. I had 6 treatments of R CHOP from Oct.6Th,2009 thru Jan.26Th,2010. All in all it went very well. Now I am faced with a very big decision as to where to go from here. I can either have Rituxan once every 3 months as maintenance or Zevalin. My MD will leave it up to me. I am not knowing what to do. The research is showing Zevalin to be far superior so it seems like a no brainer but there's a lot involved. With Rituxan I know what to expect but the payoff won't be as good. I am going to post now and see if anyone has any info or advice for me. Thanks for your response. Hope all is well.
Mary

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Hey Edwin,
I got back from Mayo a short time ago and my PET scan showed a complete remission. I am so relieved and thankful. I had 6 treatments of R CHOP from Oct.6Th,2009 thru Jan.26Th,2010. All in all it went very well. Now I am faced with a very big decision as to where to go from here. I can either have Rituxan once every 3 months as maintenance or Zevalin. My MD will leave it up to me. I am not knowing what to do. The research is showing Zevalin to be far superior so it seems like a no brainer but there's a lot involved. With Rituxan I know what to expect but the payoff won't be as good. I am going to post now and see if anyone has any info or advice for me. Thanks for your response. Hope all is well.
Mary

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Hey Edwin,
I got back from Mayo a short time ago and my PET scan showed a complete remission. I am so relieved and thankful. I had 6 treatments of R CHOP from Oct.6Th,2009 thru Jan.26Th,2010. All in all it went very well. Now I am faced with a very big decision as to where to go from here. I can either have Rituxan once every 3 months as maintenance or Zevalin. My MD will leave it up to me. I am not knowing what to do. The research is showing Zevalin to be far superior so it seems like a no brainer but there's a lot involved. With Rituxan I know what to expect but the payoff won't be as good. I am going to post now and see if anyone has any info or advice for me. Thanks for your response. Hope all is well.
Mary

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Hey Edwin,
I got back from Mayo a short time ago and my PET scan showed a complete remission. I am so relieved and thankful. I had 6 treatments of R CHOP from Oct.6Th,2009 thru Jan.26Th,2010. All in all it went very well. Now I am faced with a very big decision as to where to go from here. I can either have Rituxan once every 3 months as maintenance or Zevalin. My MD will leave it up to me. I am not knowing what to do. The research is showing Zevalin to be far superior so it seems like a no brainer but there's a lot involved. With Rituxan I know what to expect but the payoff won't be as good. I am going to post now and see if anyone has any info or advice for me. Thanks for your response. Hope all is well.
Mary

jerzpilot's picture
jerzpilot
Posts: 39
Joined: Nov 2009

Thank God you're ok I'm happy for ya. I am going to start my chemo hopefully by next month. I have to search on zevalin to see if it's a better drug than rituxamab. Well keep in touch and let us now how you feel and your check ups. God bless you and your family.

Edwin

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

I have no idea why that reply posted so many times!! I wanted only one. Good luck with the chemo. I expected it to be worse than it was. When the time comes let me know how you are doing and if I can help. Also thank you for remembering my family. They have all been great while I get all the attention!! LOL
Mary

yesyes2
Posts: 592
Joined: Jul 2009

Hi Mary,

Congratulations on your clear PET scan, good for you. I love good news. I wish my onc could get results same day, I always have to wait days, this time almost a week because of his schedule and our slow slow hospital. The waiting is the worst. I had a CT today and won't get results until next Wednesday. I think by than I'll be on Xanax to sleep. Just have to think positive and keep my nerves under control.

Anyway, I'm so happy your results were wonderful!
Leslie

Tracie1981's picture
Tracie1981
Posts: 125
Joined: Mar 2010

Its always a blessing to hear such good news!! Congratulations!!!! God Bless!

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

My onc told me that if the lymphoma is not in your bone marrow that zevalin could cause problems for me down the road (he said 10-15 years from now) and that's when I chose only the rituxan for now.

I wonder why they recommended both chemo and zevalin.

yesyes2
Posts: 592
Joined: Jul 2009

Hi Dixiegirl,
Do you have any idea why your onc said it might cause problems down the line. I wonder if it had to do with the radiation. I know I did recently ask my onc if it was used with aggressive lymphomas, which is what I have, and he said I'd be getting more radiation. Since I've already had problems with radiation I don't think I'd want to use it but would like as much information as I can get.
Thanks and good luck to you,
Leslie

hilde451's picture
hilde451
Posts: 229
Joined: Oct 2009

Congratualtions on your remission. I am so happy for you , It is so nerve racking when you have to wait for the results all the time. But wait I will.
Hope you have a good weekend. And thank God for Remission.
Hilde

bytheC's picture
bytheC
Posts: 2
Joined: Feb 2010

Good Luck Mary ! I hope for you that you get a full remission and the cancer is gone for the time being !

Subscribe to Comments for "The moment of truth is fast approaching."