Update on my second clinical trial

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  • clier
    clier Member Posts: 29
    #22
    peterhw said:

    Hi Lisa
    I live in northern VA and have my clinical trial at Johns Hopkins. The purpose of the trial is to find out if Sorafenib combine with Erbitux will make it more effective not just for KRAS WT but also for KRAS mutant. It is a new trial. Not many participants yet. My research onc think I am the first one to report posititve results. They are all very excited. There is another similar trial at NCI, but without Irinotecan. I don't have to get genetic test for the trial. I am sorry to hear that Dr. Cantrell's treatment does not work for you. There are so many clinical trial going on now for mCRC. I am sure you will find out that works for you.


    Peter

    your trial
    Any idea if this trial is closed? I just left a msg w/ their scheduling dept & hope to hear back tomorrow. I'm in my second 6 month cycle for Stage IV Colon, mets to liver and most recently to lungs. Did surgery to remove primary, then 6 months FolFox, then 2 courses of Radiospheres & now am finishing treatment #4 of a 6 month cycle of Folfuri. Onc is suggesting experimental/trial treatments and I am very encouraged to hear about yours. Hoping it's still open, at JH or somewhere!

    Best to you

    Chris
  • peterhw
    peterhw Member Posts: 69
    #23
    clier said:

    your trial
    Any idea if this trial is closed? I just left a msg w/ their scheduling dept & hope to hear back tomorrow. I'm in my second 6 month cycle for Stage IV Colon, mets to liver and most recently to lungs. Did surgery to remove primary, then 6 months FolFox, then 2 courses of Radiospheres & now am finishing treatment #4 of a 6 month cycle of Folfuri. Onc is suggesting experimental/trial treatments and I am very encouraged to hear about yours. Hoping it's still open, at JH or somewhere!

    Best to you

    Chris

    The trial is ongoing
    But it looks like they are not recruiting participants.
    see:
    http://clinicaltrials.gov/ct2/show/NCT00134069


    Peter
  • lesvanb
    lesvanb Member Posts: 905
    #24
    peterhw said:

    Happy Chinese New Year
    Isn't it amazing. I got the good news right after the Chinese New Year. What they said "A new year, a new fortune" is true. I wish everybody has godd fortune in the year of tiger.


    Peter

    Best wishes and congrats
    in the Year of the Tiger!

    all the best, Leslie
  • dorookie
    dorookie Member Posts: 1,731 Member
    #25
    peterhw said:

    Thank you all
    Thank you all for the encouragement. I have just started the 2nd cycle of treatment. So far so good. No severe side effect yet. Before this trial, I was having severe liver pain. My liver was swollen and press against the rib cage. I am very happy to report that after 5 treatments, the pain is gone completely. It is another sign that the treatment is working. I will keep on fighting and will let you guy know if there is any new development.


    Peter

    Good For you
    I am so happy you are having such good results with your treatment and that you are not in much pain. Stay strong, and know we are all pulling for you.

    *HUGS*
    Beth
  • clier
    clier Member Posts: 29
    #26
    good for you
    Peter, your trial inspired my wife & me to look into trials. I am KRAS mutant, Stage IV Colon w/ mets in liver & now in lungs. Asked J Hopkins if I could join your study, but it's closed. Still, I'm submitting med records to JH, MD Anderson & Mayo to start with, in hopes that I'll get somewhere. Thanks for your story.
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #27
    peterhw said:

    Thank you all
    Thank you all for the encouragement. I have just started the 2nd cycle of treatment. So far so good. No severe side effect yet. Before this trial, I was having severe liver pain. My liver was swollen and press against the rib cage. I am very happy to report that after 5 treatments, the pain is gone completely. It is another sign that the treatment is working. I will keep on fighting and will let you guy know if there is any new development.


    Peter

    wonderful
    This is wonderful! No bad side effects, and it is taking away the pain! That must mean the liver swelling has gone away, or at least mostly resolved. I hope this continues to work well for you.

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