SOME ONE JUST SHOOT ME NOW !!
had my second dose of irinotecan today (no evil atropine!)
my head is killing me,I am nauseous, and ache all over.
I have diarhea ( not too bad ,because the last thing I want is food,but I WILL
force myself to eat,and drink.
I am dog tired and wide awake ( the dekadron)
and from experience I know the next 2 days will be worse.
I don't have a fever,but it feels like august in my apt.
and I have a dry non productive cough without lung or sinus congestion.
Can't they just put you in a drug induced coma for a week? (lol just kidding)
I know I've felt worse (folfox) , but that's NOT NOW!!
for nausea I have zofran,which works ok,doesn't kill all the nausea, leaves a little bit. and something called TRIMETHOBENZAMIDE,300 mg CAMPC every 8 hrs,which I can not find in my prescription drug book from 2006 ,must be a new generic,anyone know what this is? I accidentally threw away the drug info sheet that came with it.
I don't want to try it until I know.once they gave me REGLAN and it made me SICKER !
ANY advice, suggestions, ideas, jokes, etc, etc, WELCOME!!
I know I am being a big baby,(isn't today nat'l big baby day ...I could have sworn..)
kATE :-{
Comments
-
this should make you laugh
Ok, I will set the scene. When I had my illeostomy I would always rinse the bag out by using a glass of water in the bathroom. (by the way this is a chemo brain moment)
So, one day I was in the bathroom and taking care of business and I still had water in the cup after rinsing out my bag and I just reached over and opened a drawer and dumped it in. Not the sink, a drawer!!!! As soon as I did it, I was laughing my **** off, why did I do this?????
The best part of the story is that a week later I did the same thing!!!!
Kathy0 -
Hello
I HATE FEELING NAUSEUS!!!!! I had my treatment on thurs. irrenetican ( BAD SPELLING) I have it every 3 weeks with 2 weeks of xeloda. I am nauseus for 2 1/2 weeks. I do take zofran but it only helps a little. Unfortunaley I know where you're coming from. I give you props for eating. I try, I can't. I can get liquids down though. I hope you feel better soon. It sucks to feel this way! I will keep you in my thoughts!
Karyn0 -
That's too funny!khl8 said:this should make you laugh
Ok, I will set the scene. When I had my illeostomy I would always rinse the bag out by using a glass of water in the bathroom. (by the way this is a chemo brain moment)
So, one day I was in the bathroom and taking care of business and I still had water in the cup after rinsing out my bag and I just reached over and opened a drawer and dumped it in. Not the sink, a drawer!!!! As soon as I did it, I was laughing my **** off, why did I do this?????
The best part of the story is that a week later I did the same thing!!!!
Kathy
I keep
That's too funny!
I keep trying to make phone calls on my t.v. remote,
and change channels with my phone!
The other day,I stopped at a green light,and couldn't figure out why this guy behind me was leaning on his horn!0 -
new symptom
now I keep loosing my balance,
NOT DIZZY
happened last time, last time 3 days told onc ,she said was probably from atropine.
NO atropine this time.
my onc is out of town til end of month
doing bone marrow transplants at UNIV OF PENN HOSP.
can only reach her by cell,during day
don't want to talk to doc I don't know
anyone have this?
kATE0 -
You're Not A Baby!unknown said:This comment has been removed by the Moderator
Kate, ask for Emend, that was a lifesaver for me for the nausea, I've never heard of those other drugs you mentioned, but taking an Emend, for the 1st 3 days, and Dexamethasone, with the Zofran and Compazine really worked for me, I'm on my 17th treatment of Folfiri and have never puked, and not felt very nauseous since my first treatment, which was hell! From the second treatment on, it's been fine, but of course I do lose balance sometimes as well, especially in the shower, I feel abit lightheaded, and believe me, I've walked into rooms and stopped, looked around and then forgot what I went into that room for in the first place! LOL!
Ativan is awesome, it helps me sleep, and is good for nausea as well, I take 1 mg every night before bed, and it helps me sleep, as does Xanax, let your onc know you can't sleep..though I told mine I couldn't sleep and she suggested "Benadryl" because sleeping aides she said only work for so long, and I can't take Benadryl, it gives me the creepy crawlies, making me itch under my skin or something, but I hate it.
Are you staying on top of those meds? I know I take them every few hours, NOT every 8 hours, since it doesn't last that long anyway, take them sooner. Try some saltines, it calms the tummy, some nice hot herbal tea, and definitely some soup! Sorry to hear you're having such a hard time with it, but it's been ok for me since taking that Emend, I don't know what I'd do without it!
Hugsss!
~Donna0 -
YEAH,I have been taking theShayenne said:You're Not A Baby!
Kate, ask for Emend, that was a lifesaver for me for the nausea, I've never heard of those other drugs you mentioned, but taking an Emend, for the 1st 3 days, and Dexamethasone, with the Zofran and Compazine really worked for me, I'm on my 17th treatment of Folfiri and have never puked, and not felt very nauseous since my first treatment, which was hell! From the second treatment on, it's been fine, but of course I do lose balance sometimes as well, especially in the shower, I feel abit lightheaded, and believe me, I've walked into rooms and stopped, looked around and then forgot what I went into that room for in the first place! LOL!
Ativan is awesome, it helps me sleep, and is good for nausea as well, I take 1 mg every night before bed, and it helps me sleep, as does Xanax, let your onc know you can't sleep..though I told mine I couldn't sleep and she suggested "Benadryl" because sleeping aides she said only work for so long, and I can't take Benadryl, it gives me the creepy crawlies, making me itch under my skin or something, but I hate it.
Are you staying on top of those meds? I know I take them every few hours, NOT every 8 hours, since it doesn't last that long anyway, take them sooner. Try some saltines, it calms the tummy, some nice hot herbal tea, and definitely some soup! Sorry to hear you're having such a hard time with it, but it's been ok for me since taking that Emend, I don't know what I'd do without it!
Hugsss!
~Donna
YEAH,I have been taking the zofran 8 mg, every 6 hours
she gave me the dexamethasone (decadron) in my premeds,
along with 1mg of ativan,and the zofran.
I take 1 mg of ativan every night to sleep,but I'LL take 2-3 mg
tonight because the dexamethasone hypes me up.(my doc said that was ok)
and I probably still won't sleep
I can't take benedryl either it gives me the heebee jeebees too.
my doc told me she would save the Emend as a last resort,
because it has to be taken along with steroids for 3 days,
and they hype me up.
well , I feel better that some one else gets off balance too,
( not that its GOOD that you do)
I found out that the trimethobenzamide is generic for Tigra and I have taken that before,
it will make me sleepier and help with the headache.with the folfox,I took it before I went to bed and then back to the zofran in the morning
I just made myself a cup of decaf white tea and
I AM GOING TO TRY TO MAKE MYSELF EAT SOME SALTINES.
Thank you everyone for your imput.
kATE0 -
Yesterday, I walked up to my front door and tried clicking the unlock button on my car's remote to open the front door. Obviously, it didn't work!KATE58 said:That's too funny!
I keep
That's too funny!
I keep trying to make phone calls on my t.v. remote,
and change channels with my phone!
The other day,I stopped at a green light,and couldn't figure out why this guy behind me was leaning on his horn!0 -
This comment has been removed by the ModeratorKATE58 said:YEAH,I have been taking the
YEAH,I have been taking the zofran 8 mg, every 6 hours
she gave me the dexamethasone (decadron) in my premeds,
along with 1mg of ativan,and the zofran.
I take 1 mg of ativan every night to sleep,but I'LL take 2-3 mg
tonight because the dexamethasone hypes me up.(my doc said that was ok)
and I probably still won't sleep
I can't take benedryl either it gives me the heebee jeebees too.
my doc told me she would save the Emend as a last resort,
because it has to be taken along with steroids for 3 days,
and they hype me up.
well , I feel better that some one else gets off balance too,
( not that its GOOD that you do)
I found out that the trimethobenzamide is generic for Tigra and I have taken that before,
it will make me sleepier and help with the headache.with the folfox,I took it before I went to bed and then back to the zofran in the morning
I just made myself a cup of decaf white tea and
I AM GOING TO TRY TO MAKE MYSELF EAT SOME SALTINES.
Thank you everyone for your imput.
kATE0 -
Oh do take care!
Oh I'm so sorry you don't feel good Kate! I hope things get better after these first two! When I was on folfox, I used to lose my balance all the time, kinda wobbly. I asked the Onc and he said that could be a side effect! I thought really, my kids used to hold onto me all the time whenever would walk somewhere, it's like I was a little old lady! I too used to get anxiety and amped up from the dexamethazone, had to take the Ativan to counter that, I thought I was going crazy or something. Hang in there, I'm rooting for you!
Much love
Donna0 -
Hey Kathy!pokismom said:Oh do take care!
Oh I'm so sorry you don't feel good Kate! I hope things get better after these first two! When I was on folfox, I used to lose my balance all the time, kinda wobbly. I asked the Onc and he said that could be a side effect! I thought really, my kids used to hold onto me all the time whenever would walk somewhere, it's like I was a little old lady! I too used to get anxiety and amped up from the dexamethazone, had to take the Ativan to counter that, I thought I was going crazy or something. Hang in there, I'm rooting for you!
Much love
Donna
Yeah, my onc has me on all those meds, and always checks with the pharmacy to make sure they are ok to take together. She said everything gets processed through the liver, and when I go for chemo treatments, my pre-meds before infusing is 1 Emend, 3 Dexamethasone, 2 Compazines, and a shot of a longer lasting Zofran, which lasts a week in your system, and works great, where I don't have to take the pill form Zofran, or it could counteract..I have to wait 5 days before taking the Zofran pills, but the Emend I take in the morning, and then the next, (it's a 3 days pill) and the dexamethasone I take with it, and then 1 dexaemethasone during a late lunch. I will take the Compazine about every 4 hours with it.
My onc said it seems like alot, but she wouldn't give me prescription pills that didn't work together, they do watch that, and make sure they mix well with each other.
Hugsss!
~Donna0 -
Kate and KathyShayenne said:Hey Kathy!
Yeah, my onc has me on all those meds, and always checks with the pharmacy to make sure they are ok to take together. She said everything gets processed through the liver, and when I go for chemo treatments, my pre-meds before infusing is 1 Emend, 3 Dexamethasone, 2 Compazines, and a shot of a longer lasting Zofran, which lasts a week in your system, and works great, where I don't have to take the pill form Zofran, or it could counteract..I have to wait 5 days before taking the Zofran pills, but the Emend I take in the morning, and then the next, (it's a 3 days pill) and the dexamethasone I take with it, and then 1 dexaemethasone during a late lunch. I will take the Compazine about every 4 hours with it.
My onc said it seems like alot, but she wouldn't give me prescription pills that didn't work together, they do watch that, and make sure they mix well with each other.
Hugsss!
~Donna
ohhh you poor things...hang on
here come the hugs........
mags0 -
direct-tvunknown said:This comment has been removed by the Moderator
SUCKS too dont waste your money!!!!!Godbless..johnnybegood0 -
i dokhl8 said:this should make you laugh
Ok, I will set the scene. When I had my illeostomy I would always rinse the bag out by using a glass of water in the bathroom. (by the way this is a chemo brain moment)
So, one day I was in the bathroom and taking care of business and I still had water in the cup after rinsing out my bag and I just reached over and opened a drawer and dumped it in. Not the sink, a drawer!!!! As soon as I did it, I was laughing my **** off, why did I do this?????
The best part of the story is that a week later I did the same thing!!!!
Kathy
things like that all the time.i am always putting things in the microwave when they really are supposed to go in the refridgerator.it frustrates me but then when i get on here and read things other people do i laugh about it.im so glad im not alone and going crazy....Godbless....johnnybegood0 -
Laughing out Loudkhl8 said:this should make you laugh
Ok, I will set the scene. When I had my illeostomy I would always rinse the bag out by using a glass of water in the bathroom. (by the way this is a chemo brain moment)
So, one day I was in the bathroom and taking care of business and I still had water in the cup after rinsing out my bag and I just reached over and opened a drawer and dumped it in. Not the sink, a drawer!!!! As soon as I did it, I was laughing my **** off, why did I do this?????
The best part of the story is that a week later I did the same thing!!!!
Kathy
Now that is funny. You got me laughing in my office like a nut. That was funny...Thanks for the laugh...
Beth0 -
Kathyunknown said:This comment has been removed by the Moderator
Do you have a decent internet connection? If so, you should go to Hulu.com. It is a website where all the major networks stream their programming for free...you can watch tons of TV shows (and movies) whenever you want. It has really helped me when I have insomnia. I just hook up my earphones to my laptop so I don't keep anyone else awake.
http://www.hulu.com/browse/alphabetical/tv0 -
A bit of help from nature....
well, maybe nature via Canada Dry...lol...
NOTHING worked for me, nausea-wise, drug-wise....so, I got creative....
The dutch, forever, use ginger in their deserts, especially after a big meal, as a 'digestive'.
I bought REAL ginger ale (not the flavored stuff...it says on the can...I bought Vernor's). The bubbles helped, and the ginger REALLY helped...I just sipped it. It is a sharp taste, so for a milder experience, I have also nibbled on candied ginger, or even the pink ginger served in chinese restaurants...take it slow, it's a bit of an aquired taste.
That, and making sure that I always had a bit in my tummy...scalloped potatoes worked GREAT for me, and still, to this day I LOVE 'em....
Another thought from the dutch: licorice!!! It is reported to also help, like ginger. I don't care for it, so I can't say, but my beau always has some after a stomach proceedure...he says it really helps!
Hugs to you, dearheart, and I always kept in mind that if I was this sick, the cancer MUST be getting sick, too~!
Hugs, Kathi0 -
yeah,Kathyfringetree said:Kathy
Do you have a decent internet connection? If so, you should go to Hulu.com. It is a website where all the major networks stream their programming for free...you can watch tons of TV shows (and movies) whenever you want. It has really helped me when I have insomnia. I just hook up my earphones to my laptop so I don't keep anyone else awake.
http://www.hulu.com/browse/alphabetical/tv
i forgot about
yeah,Kathy
i forgot about hulu
i end up watching the canadian shows
davinci's inquest,regenesis,cold squad,etc
but you can watch them when you want they list all the shows episodes for all seasons,
except current.
you pick the one you want to watch.i have comcast cable and internet i can hook in thru
www.fancast.net
my problem is i have my antivirus software to run at 3:30am the first takes an hour and a half,the second an hour 15 minutes,if i am on computer they just kick me off.0
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