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Small cell lung cancer side effects longer term

gregw
Posts: 6
Joined: Sep 2009

This is my first post, hope I am doing this correctly. I was diagnosed with small cell lung cancer 2 days (lung and nodes in left lung=considered limited still) before christmas 2007. I am now 47 years old and have three children ages 27, 15 and 12. My diagnosis was a complete surprise. I was at Mayo Clinic for what I believed was a sinus issue. I was a smoker until about six months before diagnosis. I did 4 rounds of chemo (Etoposide and cysplatin, twice day radiation to my chest. MY scans two months later came up "clean". I then did PCI radiation to my head. It has been 21 months since diagnosis and scans (MRI, Petscan, and Cat scan) all come clean. I get scans every 3 months and alternate MRI and Pet scans every other.

Over the last 6 months I have developed a scintallating scotoma (spell) in my vision (also called migraine aura without headache. I have had two MRIs during this time and no metasis (my next MRI is next week and see Neurologist at Mayo also). 5 eye doctor exams come up normal. My oncologist (my hero) does not list this as side effect.

My question is does anyone know , had or heard of this being a side effect of treatment. Obviously it scares me as to brain metasis. I am sure you all know this fear. I never had these vision issues before and now not uncommon to get 4 or 5 a week.

Also any sclc long term survivors would be nice to hear from also. You are all in my prayers and look forward to feedback on my issue.

stayingcalm's picture
stayingcalm
Posts: 654
Joined: Feb 2007

I didn't know this had another name (besides migraine), but I had it too - no headache, but a "wigglyness" in my vision that I would describe as looking like the invisible alien in the movie Predator (I know that sounds odd!). I was taking an experimental drug at that time, but a year or so prior I was on Cisplatin and Etoposide. It stopped happening after a couple of months, tho, and I attributed it to hormones and menopause. That wouldn't be your reason, however, if your name is Greg :)

gregw
Posts: 6
Joined: Sep 2009

Thank you for your response

medi_2's picture
medi_2
Posts: 509
Joined: Aug 2009

Lol, Stayingcalm; What a great description!
To Greg: I'm not a 'long time' survivor yet, but plan to be!
Everyday is a gift.
Medi

pkaz53
Posts: 84
Joined: Nov 2005

I'm 6 yrs out of sclc and had this happened as recently as this past Saturday, I was driving and had to pull over because it was as stayingcalm described it a wiggling distortion I'm glad my wife was with me when this occured I felt nauseated this has occured several times in the past I also have sensitivity to the sun and bright lights.

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