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Cancer Sucks!

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Comments

  • robinvan
    robinvan Member Posts: 1,012
    PhillieG said:

    Cancer Sucks Hard
    In Soft Places.
    Sorry to hear it's back. Get rid of it again. You've done it before Rob, now do it again.
    -phil

    Thanks Phil
    Nice guitar!!

    In appreciation of your support... Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012

    Keep on Fighting
    Hi Robin,

    I'm fairly new here but wanted to let you know how sorry I am about your recurrence. Sounds like you've really been going thru it. I've been dealing with the beast since Oct 2007 - wish I would have known about this forum then. Sorry you have to come back under these circumstances but sounds like you have alot to contribute here.

    I'll be praying for you and your family.

    God Bless You,

    Debbie (gramma - there is another Debbie here so I added gramma)

    Thanks Grammadebbie
    Oct 2007... I was doing the Naked Happy Dance then! I got my "all clear" scan on my 50th birthday, October 4, 2007. Sometimes up, sometimes down...

    All prayers thankfully received.

    Peace and blessings... Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    Sundanceh said:

    Canada Rob :)
    Hey Rob

    You posted to an RFA reply I had one time right when I first joined the site...you told me "RFA ROCKS!"

    I'm sorry to hear about the reoccurence too...luckily you were able to walk away a couple of times in your journey...that's always a blessing to get some time off.

    I join everybody by saying Welcome Back. Will be closely following your story.

    I hope everything goes really well...now we've got a Canadian brother...eh?

    Take care
    -Craig in TX

    Hey Craig
    RFA does rock! My liver is still clear and looking good!
    Yes, the long breaks are a blessing and I have enjoyed two of them on this journey.

    Be well...Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    usakat said:

    Oh, Rob! ....
    ...spoken in my best Laura Petrie (Mary Tyler Moore on the **** Van **** Show) voice....ohhhhhh, Rob!

    Gosh Rob, I'm so sorry to hear of your news. I'm struggling to find words to express my thoughts... It's very hard sometimes to fill the space with words when all you want to...or can say is...I'm here - we're here. We truly know how much cancer does indeed suck.

    I hope it goes without saying that you and yours will be in my thoughts and prayers.

    “Hope is the thing with feathers, that perches in the soul, and sings the tune without words, and never stops at all.” Emily Dickinson

    Sending you many blessings for stamina in the new fight, purpose in the sake of it all (which I know you know), and mostly a clear and unencumbered path to healing and good health.

    Hugs,
    Katie

    Hiya Katie
    I love the Emily Dickinson quote on Hope. We need hope, our spirit feeds on it!
    Hi to Bob...

    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    Sundanceh said:

    Canada Rob :)
    Hey Rob

    You posted to an RFA reply I had one time right when I first joined the site...you told me "RFA ROCKS!"

    I'm sorry to hear about the reoccurence too...luckily you were able to walk away a couple of times in your journey...that's always a blessing to get some time off.

    I join everybody by saying Welcome Back. Will be closely following your story.

    I hope everything goes really well...now we've got a Canadian brother...eh?

    Take care
    -Craig in TX

    Ooops!
    Duplicate post... can I delete this?
  • robinvan
    robinvan Member Posts: 1,012
    ldot123 said:

    Hang In Fellow Canuk
    Really sorry to hear about your recurrence. We are all here to help. Let us know how you are doing. I know you can put this into the boards once and for all.

    Cheers, Lance

    Thanks Lance
    Where in Canukistan are you?
    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    steven12 said:

    You'll make it
    Hello Rob,
    Sorry to hear about your recurrence after two years. I am pretty sure you will make it third time. It's great to be NED twice for so long. My dx/surg/chemo was 5 yrs ago and was NED more then 3 years when I've got a recurrence. I have a question: how did you get the Avastin with the Xeliri since, as far as I know, Canadian gov. is subsidizing the Avastin only with Folfiri? I am now on Xeliri and desperately trying to get the Avastin but with no success so far.
    Best wishes to everybody
    Steven

    Hi Steven
    In BC we get coverage for Avastin only for "first line" treatment. It is not covered in the case of a recurrence. I had to pay the shot for 5 treatments. Fortunately I work for an incredibly generous community and they picked up the tab!

    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    Paula G. said:

    Damn stuff
    Hi Rob,
    Sorry to hear it's back. I joined not long ago. Husband stage 4. Sounds like you have been through a lot of crap. I will look forward to reading more of your posts because we are in the learning phase. To bad you have to jump in with both feet and hope and learn and then hope some more. I agree Cancer Sucks!!! Paula

    Hi Paula and Mommy of 2
    Thanks for the welcome.
    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012

    It's Evil, Too
    Cancer doesn't just suck. It's just plain evil. It hides out and comes at you when you least expect it. We call it our roller coaster ride. (My husband was diagnosed stage IV 6 yrs. ago.) We finally got to the stage where we expected it to come back. Then when we went awhile without it, we were pleasantly surprised. When it did come back, we were less shocked. We look at treatment as buying time. That may be a pessimistic way to look at it, but it has worked for us. My prayers are with you. The fight continues.

    Hi Grandmafay
    Nothing pessimistic about buying time. Sometimes that's all we can realisticalyl hope for. It's really all I've ever wanted. And still is, more time...

    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    lisa42 said:

    so sorry
    Hi Rob,

    I definitely remember you when you posted before. Your picture makes me smile. :)
    I'm so very sorry to hear your cancer is back again. It definitely sucks big time.
    I've now had two recurrences in my two years since my original diagnosis- so I can relate and I just gave a big sigh for you. Now... onward and forward! The sighing time is over and it's on with the fight- you can do this yet once again- you can!!!

    I will be thinking of and praying for you-

    Blessings through the fight,
    Lisa

    Onward and forward
    Yes, Lisa, the only direction really. Once more into the breach! I'm grateful to have you as a companion along the way.

    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012

    Your a fighter-Keep the faith
    So sorry that you and Pam are going through this again. I know first hand it can be disheartening,( my husband has had 2 reoccurrances ), but I know that you will continue the good fight and beat it again and I look forward to seeing that NED post from you! Keeping you and all in my prayers. God Bless
    Diane

    Hi Diane
    Yes, Disheartening is a word that names it well. Especially while still adjusting.
    Thank you for the words of encouragement.

    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    Sonia32 said:

    Hello
    Hi Rob,

    I remember months ago you replied to my post about how to get through down days. I am so sorry that you have to fight this beast yet again. But I can tell as you have gone through so much you are a strong person and you will fight this horrible beast again, really hate it BIG TIME!

    Keep us posted on how you are doing etc.

    Big hugs
    Sonia

    Thank you Sonia
    I remember your post about down days. Belonging to this community is the best antidote to the down days. Thanks for being a part of it.

    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    fedester said:

    damn rob!!
    sorry to hear the beast is back.
    step back,focus and hit the beast headon.
    you did it before so do it again.
    take care
    never,ever give up!!
    bruce

    Never, ever!!
    Thank you so much Bruce. It is worth coming to this site just to hear you say those words again, and again, and again!

    Be well...Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • robinvan
    robinvan Member Posts: 1,012
    jenalynet said:

    Sorry
    I feel for you but you can fight again..I too have a new recurrence and am now off of chemo until all my latest scans are reviewed so a new plan can be made..I will keep you in my thoughts and prayers as I do all of us fighting the fight.. You are right, cancer sucks big time..Hugs to you, Audrey.

    Thanks Audrey
    All "cyber hugs" are most warmly received!

    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • PhillieG
    PhillieG Member Posts: 4,866
    robinvan said:

    Thanks Phil
    Nice guitar!!

    In appreciation of your support... Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson

    Thanks Rob
    it's a 1964 Guild JetStar. One of my favorites out of the 8 guitars I have.

    Good quote you have there. Very true.
    Also, sometimes you have to go through things and not around them...
  • dmdwins
    dmdwins Member Posts: 450
    robinvan said:

    Thanks Audrey
    All "cyber hugs" are most warmly received!

    Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson

    Keep up the fight
    Hey Rob. I've been out of town and just read the news. So sorry to hear. I remember us "chatting" in May as we awaited our scans.

    You are strong and can do this AGAIN!! Time between reoccurences is good. It allows for new advances. We can live long good lives even with cancer.

    Keep up the fight and keep in touch,

    Smiles,
    Dawn
  • fedester
    fedester Member Posts: 753
    rob
    i just went to your web

    rob
    i just went to your web site.
    you have 3 beautiful young ladies to look after!!
    you will slay the dragon.
    live well my friend.
    never,ever give up!!
    bruce
  • AceSFO
    AceSFO Member Posts: 229
    Hey Rob
    I think I mentioned

    Hey Rob

    I think I mentioned the "cyber knife" treatments that John just had a few weeks ago. If it's available up there, I'd suggest asking about it - painless, no side effects and a very high success rate. His doctors measured the success in terms of killing the tumor inside the bone with no recurrence at that same site (ever) and also reducing the pain to a manageable level. His was only two weeks ago, and although he's had some other problems that make it a little unclear, he thinks the pain level is going down. What can you lose? Just the tumor I guess...
    Anyway - just wanted to jump into the conversation with my two cents. Also Fentanyl patches are working really well for John (in combination with the morphine) to manage the pain. And it doesn't make him really dopey - he's still able to write and get things done.

    Sending good thoughts for you, Pam and your daughters...
    Adrian