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Aug 18, 2009 - 1:45 pm
About 2.5 years after radical prostatectomy followed by radiation and Zoladex, PSA up a bit. Went on Lupron spring 09. Had routine chest xray June 09 showing possible lesion. Long story short, it's "metastatic adenocarcinoma of prostatic origin" in both lungs. Doesn't seem to be in bones. Oncologist says surgery, radiation not options; chemo would diminish quality of life, as pain minimal now. He recommended "observe" or possible clinical trial, maybe of Provenge. Any experiences w/clinical trials? Similar diagnoses? By the way, he's my husband--age 63, Viet Nam vet w/AO exposure. |
Joined: Jul 2009
So Sorry
Sorry to hear about the metastatic adenocarcinoma disease in the lungs. I know that that must be devastating news to you both. And interesting that agent orange rears it's ugly head again. As a Vietnam Vet, I can sympathize with you, as so many of our "war" buddies are having these types of complications. We wish you well in your search for clinical studies.
Joined: May 2009
Sorry to hear about your
Sorry to hear about your husband. Check out the site healingwell.com There are numerous guys and gals on that site with different stages of prostate cancer also.
Will keep you in my prayers.
Joined: Aug 2009
Thanks. Will check out
Thanks. Will check out healingwell.com. Appreciate it!
Joined: Jul 2009
Sorry to hear about your
Sorry to hear about your husband's situation. Sounds tough, but with this disease we never know, it does strange things, and sometimes a bad situations doesn't get worse for a long time. Have you connected with your local TOO support group? Our local one has a subgroup of advanced prostate cancer patients, and they have all kinds of different therapies and medicines they use. They are also closely tied to our local urologist who gives talks and provides advice on clinical trials and other therapies. Best of luck, and God bless you and your husband.
Joined: Aug 2009
Hi, Thanks for the advice.
Hi,
Thanks for the advice. Am not familiar w/TOO support group. Can you give me a little more info? Sounds like a good source.
Joined: Jul 2009
Here is a link to the TOO
Here is a link to the TOO support groups.
http://www.ustoo.org/
From this site you can search for groups in your local area. Not sure how active they are across the country but in our area (Virginia) they are very active, and a great source of info and support.
Joined: Aug 2009
Us TOO
Thanks so much for the info! Just went online, and looks like a great site, with a wealth of info. Never would have learned of it without you, so thanks.
Joined: Aug 2009
Since you're in Northern Va,
Since you're in Northern Va, have you heard anything about clinical trials/treatment at Georgetown U Lombardi Cancer Center? There is a Dr. Nancy Dawson there who seems to be very highly regarded re prostate cancer. Thanks!
Joined: Aug 2009
I WILL KEEP YOU IN MY PRAYER
I WILL KEEP YOU IN MY PRAYER EVERY DAY I LOST MY FATHER TO CANCER TWO MONTHS AGO,PLEASE KEEP THE FAITH IN GOD.
Joined: Aug 2009
I will keep you in my
I will keep you in my prayers also, God Bless you.