Prostate spread to lungs

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gator880
gator880 Member Posts: 21
edited March 2014 in Prostate Cancer #1
About 2.5 years after radical prostatectomy followed by radiation and Zoladex, PSA up a bit. Went on Lupron spring 09. Had routine chest xray June 09 showing possible lesion. Long story short, it's "metastatic adenocarcinoma of prostatic origin" in both lungs. Doesn't seem to be in bones. Oncologist says surgery, radiation not options; chemo would diminish quality of life, as pain minimal now. He recommended "observe" or possible clinical trial, maybe of Provenge. Any experiences w/clinical trials? Similar diagnoses? By the way, he's my husband--age 63, Viet Nam vet w/AO exposure.

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  • dopplerjockey
    dopplerjockey Member Posts: 39
    #2
    So Sorry
    Sorry to hear about the metastatic adenocarcinoma disease in the lungs. I know that that must be devastating news to you both. And interesting that agent orange rears it's ugly head again. As a Vietnam Vet, I can sympathize with you, as so many of our "war" buddies are having these types of complications. We wish you well in your search for clinical studies.
  • lewvino
    lewvino CSN Member Posts: 1,010 Member
    #3
    Sorry to hear about your
    Sorry to hear about your husband. Check out the site healingwell.com There are numerous guys and gals on that site with different stages of prostate cancer also.

    Will keep you in my prayers.
  • novaguy
    novaguy Member Posts: 76
    #4
    Sorry to hear about your
    Sorry to hear about your husband's situation. Sounds tough, but with this disease we never know, it does strange things, and sometimes a bad situations doesn't get worse for a long time. Have you connected with your local TOO support group? Our local one has a subgroup of advanced prostate cancer patients, and they have all kinds of different therapies and medicines they use. They are also closely tied to our local urologist who gives talks and provides advice on clinical trials and other therapies. Best of luck, and God bless you and your husband.
  • saoco
    saoco Member Posts: 43 Member
    #5
    I WILL KEEP YOU IN MY PRAYER
    I WILL KEEP YOU IN MY PRAYER EVERY DAY I LOST MY FATHER TO CANCER TWO MONTHS AGO,PLEASE KEEP THE FAITH IN GOD.
  • gator880
    gator880 Member Posts: 21
    #6
    lewvino said:

    Sorry to hear about your
    Sorry to hear about your husband. Check out the site healingwell.com There are numerous guys and gals on that site with different stages of prostate cancer also.

    Will keep you in my prayers.

    Thanks. Will check out
    Thanks. Will check out healingwell.com. Appreciate it!
  • gator880
    gator880 Member Posts: 21
    #7
    novaguy said:

    Sorry to hear about your
    Sorry to hear about your husband's situation. Sounds tough, but with this disease we never know, it does strange things, and sometimes a bad situations doesn't get worse for a long time. Have you connected with your local TOO support group? Our local one has a subgroup of advanced prostate cancer patients, and they have all kinds of different therapies and medicines they use. They are also closely tied to our local urologist who gives talks and provides advice on clinical trials and other therapies. Best of luck, and God bless you and your husband.

    Hi,
    Thanks for the advice.
    Hi,
    Thanks for the advice. Am not familiar w/TOO support group. Can you give me a little more info? Sounds like a good source.
  • Toyoungforthis
    Toyoungforthis Member Posts: 10
    #8
    saoco said:

    I WILL KEEP YOU IN MY PRAYER
    I WILL KEEP YOU IN MY PRAYER EVERY DAY I LOST MY FATHER TO CANCER TWO MONTHS AGO,PLEASE KEEP THE FAITH IN GOD.

    I will keep you in my
    I will keep you in my prayers also, God Bless you.
  • novaguy
    novaguy Member Posts: 76
    #9
    gator880 said:

    Hi,
    Thanks for the advice.
    Hi,
    Thanks for the advice. Am not familiar w/TOO support group. Can you give me a little more info? Sounds like a good source.

    Here is a link to the TOO
    Here is a link to the TOO support groups.
    http://www.ustoo.org/
    From this site you can search for groups in your local area. Not sure how active they are across the country but in our area (Virginia) they are very active, and a great source of info and support.
  • gator880
    gator880 Member Posts: 21
    #10
    novaguy said:

    Here is a link to the TOO
    Here is a link to the TOO support groups.
    http://www.ustoo.org/
    From this site you can search for groups in your local area. Not sure how active they are across the country but in our area (Virginia) they are very active, and a great source of info and support.

    Us TOO
    Thanks so much for the info! Just went online, and looks like a great site, with a wealth of info. Never would have learned of it without you, so thanks.
  • gator880
    gator880 Member Posts: 21
    #11
    novaguy said:

    Here is a link to the TOO
    Here is a link to the TOO support groups.
    http://www.ustoo.org/
    From this site you can search for groups in your local area. Not sure how active they are across the country but in our area (Virginia) they are very active, and a great source of info and support.

    Since you're in Northern Va,
    Since you're in Northern Va, have you heard anything about clinical trials/treatment at Georgetown U Lombardi Cancer Center? There is a Dr. Nancy Dawson there who seems to be very highly regarded re prostate cancer. Thanks!

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