Living a Long Life

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  • maglets
    maglets Member Posts: 2,576 Member
    lisa42 said:

    gained weight on chemo too
    Hi Cheryl,

    I just wanted to say, first of all, it's good to see you back here again & your picture with the baby is darling. My profile picture may not show it (I need to either delete or update my picture- I've said that before & still haven't done it)- but I have definitely gained weight & am at my heaviest ever (other than pregnancy weights). It doesn't show up as much in my face as it does everywhere else, but my face is fuller than my profile pic shows. I finally broke down and had to go buy a few new clothes at my "new" size. That's always a bummer, but I was down to just two pants that still fit- my others were all squeezing me to death!
    I'm hoping the hand/foot syndrome will let up some in my feet & I'll feel less fatigued so I can exercise more. It's hard to walk much when going anything more than just around the block once gives me blisters on the soles of my feet. I get a bit of a break from the chemo now, so I'm planning on hitting the exercise routine (when I get over this horrible cold I have at the moment which, by the way, is just the first "regular" sickness I've had since my diagnosis in 8/07- kind of amazing). In my break from chemo (even if it's short), I'm starting today with the antioxidants and wheat grass juice to build my system up again and hopefully help me get my energy back.

    An interesting sidenote, somewhat related- I saw an article yesterday that some professor is contesting past studies that had shown vitamin C was a hinderance to chemo working. He claims that the study involved giving lab mice a form of vitamin C that was not abscorbic acid, which is the form that people actually take. He claims that abscorbic acid vit C won't have the same negative effect on chemo's effectiveness. Nothing solid there yet- so I wouldn't assume he's right yet, without proof. It sure would be a shame to take chemo and then take something at the same time that would hinder its effectiveness. Anyhow, today's the day I'm going to start adding all the supplements high in antioxidants into my diet. I don't know how long my chemo break will be (still waiting for PET results to see about my "what's next" is), but I'm going to give myself some boosters in the meantime. I long for energy again!

    Take care everyone,
    Lisa

    overalls
    Lisa Cheryl Vicki help
    I can't believe it ....I am wearing overalls! denin overalls at 62 years of age. Good grief I feel silly but A) they go round the new-found girth B) they don't rub the 14 inch re-section scars

    Maybe we should start a calendar like the Colon Club....yes sireee colon plus 2 resection plus appendix plus c-section////oh she's a pretty sight I want to tell you


    :):):) mags
  • CherylHutch
    CherylHutch Member Posts: 1,375
    maglets said:

    overalls
    Lisa Cheryl Vicki help
    I can't believe it ....I am wearing overalls! denin overalls at 62 years of age. Good grief I feel silly but A) they go round the new-found girth B) they don't rub the 14 inch re-section scars

    Maybe we should start a calendar like the Colon Club....yes sireee colon plus 2 resection plus appendix plus c-section////oh she's a pretty sight I want to tell you


    :):):) mags

    Overalls
    Oh Mags... I just KNOW you would look absolutely ADORABLE in denim overalls!! Personally, I love thelook... its all about the shirt you wear underneath!! :) A cute gingham shirt, or a peasant type blouse with the scoop neck... absolutely adorable!! In the summer when it's hot and humid... then a tank top, solid colour or pattern... it all works!

    So no, you don't need no help from us... you already have made a fashion statement (which I may now have to give some serious thought to copying!) :)

    Huuuuugggggs,

    Cheryl
  • kimby
    kimby Member Posts: 797
    maglets said:

    love you pic
    love your pic cheryl. I seem to be a weirdo that puts weight on with chemo...anybody else ever do that ? so far I have put on about 12 pounds on the oxy/xeloda diet. I think because I feel nauseous so much of the time I just eat thinking maybe I'll feel better. Actually it works...I do feel less sick if my tum is jammed and of course because i hold the chemo card I think I should be be aboe to have the occasional treat like potato chips or or or:)
    I need new pants....off to the thrift store I guess

    mags

    chemo diet
    Mags,

    I gained 20 lbs on folfox - I think it was the decadron. On folfori and now my current cocktail I continue to lose. It isn't going well all of a sudden and I don't recommend it! You are doing fine and I wouldn't worry about gaining until you are done with chemo. Eat whatever gets you through the day.

    Kimby
  • maglets
    maglets Member Posts: 2,576 Member
    decadron
    Hi Kimby: I think that it is probably the decadron too. I am not really worried....it does seem ironic somehow. Sorry you are having a rough go of it. What kind of virus do you think you have and do you think it's because of your lowered immune system.

    Mags
  • CherylHutch
    CherylHutch Member Posts: 1,375
    kimby said:

    chemo diet
    Mags,

    I gained 20 lbs on folfox - I think it was the decadron. On folfori and now my current cocktail I continue to lose. It isn't going well all of a sudden and I don't recommend it! You are doing fine and I wouldn't worry about gaining until you are done with chemo. Eat whatever gets you through the day.

    Kimby

    Decadron
    Yes... that decadron, although a rather wonderful anti-nausea med, it sure does play havoc with the appetite (just what I needed... more of an appetite ).

    I'm sorry things aren't going well all of a sudden for you Kimby... you think it's the Folfiri that is causing you problems?

    Huggggs,

    Cheryl
  • CherylHutch
    CherylHutch Member Posts: 1,375
    maglets said:

    decadron
    Hi Kimby: I think that it is probably the decadron too. I am not really worried....it does seem ironic somehow. Sorry you are having a rough go of it. What kind of virus do you think you have and do you think it's because of your lowered immune system.

    Mags

    Decadron
    Ack! Sorry Mags... I wasn't making light of your situation and to tell you the truth, I had a momentary brainfart and forgot you were still on chemo (and the meds that go with that). I'm sure that once you finish your chemo treatments, the weight will fall back to normal... meanwhile, I still think you should keep up that overall fashion statement! I like that look :)

    Hugggggs,

    Cheryl
  • kimby
    kimby Member Posts: 797
    maglets said:

    decadron
    Hi Kimby: I think that it is probably the decadron too. I am not really worried....it does seem ironic somehow. Sorry you are having a rough go of it. What kind of virus do you think you have and do you think it's because of your lowered immune system.

    Mags

    Virus
    Hubby had the same crud and didn't really get to 90% for about a month but he didn't need to miss any work, just really rest evenings and weekends. I'm, of course, bedridden from it. Here is the real story:

    I was on liver radiation daily for 5 weeks along with continuing chemo. My rad onc warned me that the first week AFTER I finished would be the worst. I, of course, ignored that as it didn't apply to me. :) I finished rads on Tues, started a new cycle of chemo on Thurs, left Fri to visit my son at college 3 hours away and came back to high school commitments for my youngest. I overdid it. I rested on that Tues and was just tired but by Wed I was sick with the crud. I've been pretty down since then even though my blood work isn't horrible. I lost 17 lbs in the last 2 1/2 weeks and you can't do that without losing muscle mass, so I'm sure that is taking it's toll, too.

    I'm getting there and I'll be ok. Just sucks for now. I'm resting all I can and trying to push myself to do whatever I can to try to build back up.

    Kimby
  • VickiCO
    VickiCO Member Posts: 917
    maglets said:

    overalls
    Lisa Cheryl Vicki help
    I can't believe it ....I am wearing overalls! denin overalls at 62 years of age. Good grief I feel silly but A) they go round the new-found girth B) they don't rub the 14 inch re-section scars

    Maybe we should start a calendar like the Colon Club....yes sireee colon plus 2 resection plus appendix plus c-section////oh she's a pretty sight I want to tell you


    :):):) mags

    Mags
    I live in sweats now! When I knew I was going to have chemo the first time, i bought out Penney's sweats section! They are comfy and don't constrict, AND they are handy for the frequent bathroom runs! No zippers, buttons, etc.

    I didn't think of overalls...as an ex-farmer, I think I have some around somewhere. I love the calendar idea! I have appendectomy, tubal ligation, hysterectomy, resection scars....hummmm. Looks like a railroad yard on my midsection!

    Hang in there girlfriend. Vicki
  • VickiCO
    VickiCO Member Posts: 917
    kimby said:

    Virus
    Hubby had the same crud and didn't really get to 90% for about a month but he didn't need to miss any work, just really rest evenings and weekends. I'm, of course, bedridden from it. Here is the real story:

    I was on liver radiation daily for 5 weeks along with continuing chemo. My rad onc warned me that the first week AFTER I finished would be the worst. I, of course, ignored that as it didn't apply to me. :) I finished rads on Tues, started a new cycle of chemo on Thurs, left Fri to visit my son at college 3 hours away and came back to high school commitments for my youngest. I overdid it. I rested on that Tues and was just tired but by Wed I was sick with the crud. I've been pretty down since then even though my blood work isn't horrible. I lost 17 lbs in the last 2 1/2 weeks and you can't do that without losing muscle mass, so I'm sure that is taking it's toll, too.

    I'm getting there and I'll be ok. Just sucks for now. I'm resting all I can and trying to push myself to do whatever I can to try to build back up.

    Kimby

    Kimby
    I am so sorry you are sick on top of everything else. Yes, the week after my radiation ended was the worst ever. I couldn't even walk. Please, please take care of yourself. I know you want to push it, but be careful. It's a fine line.

    Vicki
  • maglets
    maglets Member Posts: 2,576 Member
    VickiCO said:

    Kimby
    I am so sorry you are sick on top of everything else. Yes, the week after my radiation ended was the worst ever. I couldn't even walk. Please, please take care of yourself. I know you want to push it, but be careful. It's a fine line.

    Vicki

    Kimby


    ahhh Kimby that is rough tough going. Again...sorry you have been so sick....rest and build for sure.

    Hugs and hugs,

    Mags
  • Kanort
    Kanort Member Posts: 1,272 Member
    Thanks!
    Thanks, Cheryl, for the link to the article. His attitude and outlook on life is amazing! I love how he has his calendar booked for many years in advance.

    Hugs,

    Kay
  • CherylHutch
    CherylHutch Member Posts: 1,375
    Kanort said:

    Thanks!
    Thanks, Cheryl, for the link to the article. His attitude and outlook on life is amazing! I love how he has his calendar booked for many years in advance.

    Hugs,

    Kay

    You're Welcome, Kay!
    Oooh, I do believe I owe you an email, Kay.... trust me, I will get to it, but this social butterfly is off to see my friends one last time in the production of "The Full Monty" (which closes this weekend).

    I agree so much with you ... his attitude and outlook on life is what we all should be striving for. He happens to love his career as Doctor and Educator and that is a major key here, I think. So many of us may enjoy our jobs or just put up with them because they pay the bills... but we all look forward to when we can afford to retire. When, in reality, you should work at a job/career that you love doing so that retirement doesn't even become an issue because you would continue doing your career for fun after you retired ;)

    I think where he has all kinds of things booked for the next 7 years relates very much to where a lot of us find ourselves today. We shouldn't put our lives on hold wondering what we can do a year from now, let alone 2, 3 and 4 years from now... we should go ahead and book our dates/years/events! I already know what I'm going to be doing for the next 10 summers... I just couldn't tell you what shows they will be because that hasn't been decided yet :)

    Hugggggs,

    Cheryl
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    love the article
    Hi Cheryl,
    I love the article, "How to live a long life." I think my favorite line is "I think music and animal therapy can help more than most doctors imagine." Don't you know it... music and animals... what gifts. Little Kennedy is absolutely darling! Fabulous picture!
    Aloha,
    Kathleen
  • CherylHutch
    CherylHutch Member Posts: 1,375

    love the article
    Hi Cheryl,
    I love the article, "How to live a long life." I think my favorite line is "I think music and animal therapy can help more than most doctors imagine." Don't you know it... music and animals... what gifts. Little Kennedy is absolutely darling! Fabulous picture!
    Aloha,
    Kathleen

    Animals and Music
    Hey Kathleen!!

    I loved that line too!! I could sooooo relate to it as I read it. It doesn't matter what kind of music you enjoy... if you surround yourself with music you love and have a pet(s) around who gives you unconditional love (or in my case, a pet who reminds me that the world revolves around her and her wants ), then you can't help but be less stressful. Bridget constantly cracks me up with her insistence that as far as she is concerned, my role in life is to cater to her. She is the only dog I know who, once she has curled up on the bed for the night and I come to bed... she will not budge! She will be awake and even look at me (without moving her position). When I tell her, "Ok, move over!", she actually closes her eyes and pretends she is asleep and hasn't heard me.

    Hahaha... how can one be stressed out when they have a four-legged critter who has no idea she is a critter?? :D

    Hugggggggs,

    Cheryl
  • Hatshepsut
    Hatshepsut Member Posts: 336 Member

    Animals and Music
    Hey Kathleen!!

    I loved that line too!! I could sooooo relate to it as I read it. It doesn't matter what kind of music you enjoy... if you surround yourself with music you love and have a pet(s) around who gives you unconditional love (or in my case, a pet who reminds me that the world revolves around her and her wants ), then you can't help but be less stressful. Bridget constantly cracks me up with her insistence that as far as she is concerned, my role in life is to cater to her. She is the only dog I know who, once she has curled up on the bed for the night and I come to bed... she will not budge! She will be awake and even look at me (without moving her position). When I tell her, "Ok, move over!", she actually closes her eyes and pretends she is asleep and hasn't heard me.

    Hahaha... how can one be stressed out when they have a four-legged critter who has no idea she is a critter?? :D

    Hugggggggs,

    Cheryl

    Weight Loss
    Hello Cheryl and Everyone:

    When my husband was originally diagnosed with colon cancer in 2006 (Stage 3 at that time/Stage 4 later), he experienced heart problems after his surgery. The cardiologist we originally used wanted to do an angiogram on him (and anticipated an angioplasty) immediately. We weren't enthusiastic about an invasive procedure given the long and difficult colon cancer operation my husband had just had. So...I did some research and discovered Dr. Ornish's program. Ornish believes a VERY low-fat diet along with exercise and stress relief can actually reverse heart disease. That is the route we took. Three years later my husband's heart issues have improved considerably and the side effect is that the healthy eating/exercising/meditation program Ornish espouses has led to weight reduction for both of us. My husband had to have a second major surgery in 2007 for colon cancer and a very minor surgery in 2008. During both surgeries he experienced no heart difficulties. I believe my husband was stronger and able to tolerate the second and third operations in part because we were living a healthier life. My husband is 91 and is currently NED for colon cancer.

    Perhaps Dr.Ornish's program might help you. There is nothing to buy, although you might want to check out his books at your local library.

    Hatshepsut
  • CherylHutch
    CherylHutch Member Posts: 1,375

    Weight Loss
    Hello Cheryl and Everyone:

    When my husband was originally diagnosed with colon cancer in 2006 (Stage 3 at that time/Stage 4 later), he experienced heart problems after his surgery. The cardiologist we originally used wanted to do an angiogram on him (and anticipated an angioplasty) immediately. We weren't enthusiastic about an invasive procedure given the long and difficult colon cancer operation my husband had just had. So...I did some research and discovered Dr. Ornish's program. Ornish believes a VERY low-fat diet along with exercise and stress relief can actually reverse heart disease. That is the route we took. Three years later my husband's heart issues have improved considerably and the side effect is that the healthy eating/exercising/meditation program Ornish espouses has led to weight reduction for both of us. My husband had to have a second major surgery in 2007 for colon cancer and a very minor surgery in 2008. During both surgeries he experienced no heart difficulties. I believe my husband was stronger and able to tolerate the second and third operations in part because we were living a healthier life. My husband is 91 and is currently NED for colon cancer.

    Perhaps Dr.Ornish's program might help you. There is nothing to buy, although you might want to check out his books at your local library.

    Hatshepsut

    91 and still going strong!
    Hatshepsut, that is wonderful!! Dr. Ornish is well-known in North America (and I would think in other parts of the world) for his heart-health recommendations. His diet has been used for exactly as you explained above... for a healthy heart first and one of the side affects is a healthy weight loss.

    I have not (knock on wood) had any heart issues so far in my life, although they were watching closely while I was on chemo because it is not uncommon for chemo to cause heart damage.

    I thought Dr. Ornish's diet was a wonderful, well-balanced diet, whether you were thinking heart-healthy or not... but alas, I did feel like I was on a "diet" the whole time I was on it. That wouldn't have been bad and I could tolerate that if I were actually seeing results... but I either stayed the same or gained. Granted, that was before my cc diagnosis (don't know if untreated cancer has any role in weight fluctuation) but the diet, like many others (Weight Watchers, TOPS, Calorie-Counting, and various fad soup/fruit diets) they did not work for me.

    The only diet I can honestly say I have gotten any positive results (both in weight loss and stabilizing blood pressure and blood sugars) is a low carb/high protein diet. Some people cringe at them because of the fat content but just like everyone's metabolisms are different, every body's resistance to various diets are different. You have to find the one that not only works for you and your metabolism, but it's one that you don't think of as "going on a diet" but rather, "this is now my WOE - way of eating" and you stick to it. Like any "diet", the minute you fall off the wagon, that's when the weight gain starts up.

    I just have to get off my butt and seriously get back on the way of eating that I know has worked for me in the past. Today is one of those gorgeous, gorgeous Vancouver Spring mornings... and just the change in weather has given me more energy to be productive. So far I've stripped and changed the bed and am finishing two loads of laundry... all because the sun is out!! My neighbour has taken Bridget for her long morning walk, but I'm thinking once I have the laundry done, I'm going to take Bridget for a short walk... hahaha... more like get Bridget to take ME out for a short walk!! This will be the first baby step towards getting out and starting to reclaim my physical movement!!

    Huggggggs,

    Cheryl
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member

    Weight Loss
    Hello Cheryl and Everyone:

    When my husband was originally diagnosed with colon cancer in 2006 (Stage 3 at that time/Stage 4 later), he experienced heart problems after his surgery. The cardiologist we originally used wanted to do an angiogram on him (and anticipated an angioplasty) immediately. We weren't enthusiastic about an invasive procedure given the long and difficult colon cancer operation my husband had just had. So...I did some research and discovered Dr. Ornish's program. Ornish believes a VERY low-fat diet along with exercise and stress relief can actually reverse heart disease. That is the route we took. Three years later my husband's heart issues have improved considerably and the side effect is that the healthy eating/exercising/meditation program Ornish espouses has led to weight reduction for both of us. My husband had to have a second major surgery in 2007 for colon cancer and a very minor surgery in 2008. During both surgeries he experienced no heart difficulties. I believe my husband was stronger and able to tolerate the second and third operations in part because we were living a healthier life. My husband is 91 and is currently NED for colon cancer.

    Perhaps Dr.Ornish's program might help you. There is nothing to buy, although you might want to check out his books at your local library.

    Hatshepsut

    Dr Ornish
    Hi Hatshepsut,
    I too have read a lot of Dr. Ornish's books. It so happens a friend of mine knows him well and set us up for a phone call after **** was diagnosed. Dr. Ornish was fantastic and he has been working on the diet - cancer link. He actually worked on a study that showed early stage prostate cancer being controlled with diet. He and I talked about colon cancer and diet and he feels there is a huge part diet can play in beating cancer. Dr. Ornish also talked about the necessity of meditation and community support. Soooo I agree with you Dr. Ornish has a lot of info to help.
    Aloha,
    Kathleen