Semi-Colon Roll Call

scouty
scouty Member Posts: 1,965
edited March 2014 in Colorectal Cancer #1
Hi Everyone,

Back in 2004/2005 when I was deep in the fight I remember a thread that everyone listed where they lived and being amazed at how many people actually read this board (there are many more lurkers than posters!!!).

I will start a new one with a little twist, stage and current status (in treatment, starting treatment, surgery scheduled, NED, etc). As a stage IV survivor I remember how I felt that there were so many others fighting and beating the beast and the stats were so WRONG!! I think it was Stacy that said "numbers are for Vegas" and we all know medical science does not understand nor can it measure internal fortitude.

For the "newbies" NED means No Evidence Of Disease. You have to be NED 5 years before the docs and insurance companies deem you cancer free.

I will start.....................


Dxed 2/04 stage IV (mets to liver and 1 lung), currenly NED 4 1/2 years, Greensboro, NC. USA

next..........
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Comments

  • 2bhealed
    2bhealed Member Posts: 2,064
    Here!
    Dx'ed 8/01 Stage III sigmoid colon cancer with 2/19 positive lymph nodes zero mets.

    Chose to forgo chemo for alternative, Traditional Chinese Medicine, CHEMIA (juice of the plant) protocol.

    Have remained NED for 7.8 years!

    Two Harbors, MN up in the hinterlands of Lake Superior in the Northwoods with the moose, bear, wolves and mountain lions. Currently. Will be moving to Racine, WI in the near future.

    peace, emily the juice chick
  • VickiCO
    VickiCO Member Posts: 917
    OK, my story
    DX'd Stage 3 rectal cancer 10/22/08
    Chemo/radiation until 12/29/08 - responded completely - tumor vanished, no lymphs involved
    Resection 2/4/09
    Currently doing mop-up chemo once a month until June 09
    Waiting for NED!

    Fort Lupton, CO - North of Denver

    Vicki
  • This comment has been removed by the Moderator
  • kmygil
    kmygil Member Posts: 876
    Present
    Dxed 08/18/2006, surgery + Folfox. Chemo over 02/2007. Dx'd w/endometrial 06/2007, surgery only. Currently NED 1 yr 8 mos. Buford, GA USA.

    count off.....
  • sheri22
    sheri22 Member Posts: 273
    my turn
    hi still fairly new dx on Jan 22 of this year with stage 4 colon mets to lung , had stage 2, 3 yrs ago got lucky for awhile hopefully itll happen again, Ohio USA
    next by the way I love the pic of your boxer We have 3 gotta have a sense of humor to own these dogs huh?
  • claud1951
    claud1951 Member Posts: 424
    When do you start?
    Hello all,

    I used to come here all the time when first Dx'd. This site really helped me with people answering my questions about chemo and what to expect. I would then try and help others with questions.

    Dx'd Nov 2006
    Stage III
    2/28 Lymph Node
    Surgery Feb 2007 Ascending colon
    Chemo May - Oct 2007

    I was actually told No Evidence of Diease in Dec. of 07 (when I had a colonosopy after chemo.

    BUT...are you NED after your surgery to remove the tumor or after chemo? I'm either NED 1 year or 2 years.

    Claudia
    Rensselaer , In (North West Indiana)
  • scouty
    scouty Member Posts: 1,965
    claud1951 said:

    When do you start?
    Hello all,

    I used to come here all the time when first Dx'd. This site really helped me with people answering my questions about chemo and what to expect. I would then try and help others with questions.

    Dx'd Nov 2006
    Stage III
    2/28 Lymph Node
    Surgery Feb 2007 Ascending colon
    Chemo May - Oct 2007

    I was actually told No Evidence of Diease in Dec. of 07 (when I had a colonosopy after chemo.

    BUT...are you NED after your surgery to remove the tumor or after chemo? I'm either NED 1 year or 2 years.

    Claudia
    Rensselaer , In (North West Indiana)

    Great question
    I did not follow any of the conventional paths to my NEDness so I talked it over with my oncologist to define my date.
  • scouty
    scouty Member Posts: 1,965
    sheri22 said:

    my turn
    hi still fairly new dx on Jan 22 of this year with stage 4 colon mets to lung , had stage 2, 3 yrs ago got lucky for awhile hopefully itll happen again, Ohio USA
    next by the way I love the pic of your boxer We have 3 gotta have a sense of humor to own these dogs huh?

    3!!!
    My one keeps me so busy and I tell everyone she is my cancer fighting dog. On those really dark days, she would always do something to make me laugh. BY FAR, the best dog I have ever had. Have you seen the video of the baby and the boxer touching hand to paw. It is so cool and I love the boxer yawn in it.
  • robinvan
    robinvan Member Posts: 1,012
    I'm Here!
    Dx Stg 4 August'04 (4.5 years!)
    Currently NED... 2 years.

    I'm in Vancouver BC

    Rob
  • peterhw
    peterhw Member Posts: 69
    My story
    OK here is the story

    05/2008 DX Stage IV Rectal Cancer, mets to liver and lung, inoperable
    11/2008 Finish 12 Folfox+Avastin tumors shrunk 50%, but not good enough
    01/12/09 Rectal Surgery, with permanent colostomy
    02/19/09 SIRT aborted, due to tumor growing
    03/03/09 Start Folfiri+Avastin

    What helps me most? Exercise, 1 hour walking, 2 hours chi gong everyday. Diet, all vegetarian and lot of juice (thank Emily). Positive attitude, and of course this board.

    Nothern Virginia


    Peter
  • FAPMom47
    FAPMom47 Member Posts: 68
    North Carolina
    My name is Jackie I live in Shelby North Carolina.


    Dx'd 10-25-2004
    no stage rectal cancer
    chemo & radiation 6 weeks 11-25-2004
    surgery 1-31-2005, temporary ileostomy and removed mass
    NED 1-31-2005
    chemo 3 weeks
    surgery 12-19-2005, polpys removed and reversal
    surgery 5-19-2006, permanent ileostomy
    waiting for more surgery but biopsy are cancer free
  • dixchi
    dixchi Member Posts: 431
    History
    The following has been my journey so far:
    Diagnosed 7/2004 Stage 2, no lymph node involvement
    Had surgery; located in colon section near appendix.
    No chemo recommended at that time.

    3/2008 Recurrence to liver; surgery and 4 treatments
    Folfox before surgery and 8 treatments after. Ended
    chemo Dec. 2008; had one scan and I am NED, CEA 1.4;
    onc says anything below 2 is normal for me; next
    scan this coming Monday and hope I am still ok.
    Would like to go to my 50th high school reunion
    in Alabama with a happy smile on my face.

    Barbara
  • spongebob
    spongebob Member Posts: 2,565
    2 4 1... 411
    Here's the 411 on us two...

    SpongeBob:

    Diagnosed Stage 3 CRC (thanks to HNPCC/Lynch Syndrome) in July of 2001 - age 36

    Right hemicolectomy, removed 26"
    Treated weekly with 5-FU/Lukovorin for 6 months

    Currently NED for - GOSH! - 7 years

    Married (to usakat) in May 2007

    Currently living in Charleston, SC but moving to Key West, FL this summer


    usakat:

    Diagnosed Stage 3 CRC (also thanks to HNPCC/Lynch Syndrome) on 5/17/2006 - age 42

    Right hemicolectomy, removed 19"
    Treated w/ Oxaliplatin/Xeloda/Lukovorin for 6 months

    Currently NED for 2 years

    Married (to SpongeBob) in May 2007

    Currently living in Charleston, SC but moving to Key West, FL this summer
  • lmliess
    lmliess Member Posts: 329
    dixchi said:

    History
    The following has been my journey so far:
    Diagnosed 7/2004 Stage 2, no lymph node involvement
    Had surgery; located in colon section near appendix.
    No chemo recommended at that time.

    3/2008 Recurrence to liver; surgery and 4 treatments
    Folfox before surgery and 8 treatments after. Ended
    chemo Dec. 2008; had one scan and I am NED, CEA 1.4;
    onc says anything below 2 is normal for me; next
    scan this coming Monday and hope I am still ok.
    Would like to go to my 50th high school reunion
    in Alabama with a happy smile on my face.

    Barbara

    History
    I live in Gardner Kansas.

    I was DX'd 12/1/08 with colorectal cancer after a colonoscopy. I went to the DR thinking I had a hemmoroid - she found a 2cm mass and ordered the colonoscopy for the following Monday. (This was the day before Thanksgiving and I was having my whole family over....) After the PET scan they found 2 small mets to the liver.

    I just had my APR surgery with colostomy March 10 at St Joseph's Hospital in KC MO. I am having my liver recection April 9 at MD Anderson in Houston. Then I will do a mop up chemo for 4 months.

    You all have inspired me that even though I have Stage IV with mets, I can still be fighting strong many many years from now!!
  • dianetavegia
    dianetavegia Member Posts: 1,942
    Diane from Georgia
    I'm Diane from Villa Rica, Georgia

    Dx'd on Jan. 2nd, 2009, just days after my 58th birthday. Had resection on Jan. 7th. Spent 42 hours in the hospital before discharge. Surgeon removed 18" of colon via lap surgery. I was put on a regular diet less than 18 hours after surgery! Port installed a few weeks later.

    Stage III
    5 out of 17 lymph nodes showed 'a few cancer cells' (surgeons words) No sign of cancer in liver biopsy.
    No mets

    Currently having chemo. 3 out of 12 completed as of April 2, 2009. . I'm getting the usual triple cocktail and am wearing the fanny pack home for 46 hours. Fluorouracil Levoleucovorin Oxaliplatin


    I am exercising, eating a Mediterranean Diet, taking vitamins and praying.
  • spongebob
    spongebob Member Posts: 2,565
    claud1951 said:

    When do you start?
    Hello all,

    I used to come here all the time when first Dx'd. This site really helped me with people answering my questions about chemo and what to expect. I would then try and help others with questions.

    Dx'd Nov 2006
    Stage III
    2/28 Lymph Node
    Surgery Feb 2007 Ascending colon
    Chemo May - Oct 2007

    I was actually told No Evidence of Diease in Dec. of 07 (when I had a colonosopy after chemo.

    BUT...are you NED after your surgery to remove the tumor or after chemo? I'm either NED 1 year or 2 years.

    Claudia
    Rensselaer , In (North West Indiana)

    IMHO
    In my humble opinion...

    I count my NED time from the time I finished chemo and had follow-up testing which showed no evidence of disease.

    Then, according to custom, I promptly went out, ordered a retro bowling shirt and had the name "Ned" embroidered on it!
  • PamPam2
    PamPam2 Member Posts: 370
    Hi everybody
    Had emergency surgery Aug. 04, so going on 5 years now. Had large tumor that went through colon wall and engulfed overy, 3 lymph nodes positive. Had colostomy reversed after about a year, chemo, port removed after 3 years. Going to college at age 50 now. Very grateful for time gained, was at the point of dying, intestines completely blocked and ready to rupture when I went to ER 5 yrs ago. Now keeping an eye on liver lesion, very small 1/2 cm, going to have it rescanned in June and colonoscopy done. Hoping shows no growth or activity, just keepin on keepin on! If I had not returned to school would never have touched a computer and never found this site, wish it had been available to me during my surgeries and treatments, but thankful for it now. I live outside Zanesville Ohio, a small rural area. Have found this site very helpful and uplifting, especially when testing times roll around. There are some very upbeat and positive people on this forum, who try to help others, no matter what bad times they may be going through themselves. I appreciate you all.
    Pam
  • sheri22
    sheri22 Member Posts: 273
    scouty said:

    3!!!
    My one keeps me so busy and I tell everyone she is my cancer fighting dog. On those really dark days, she would always do something to make me laugh. BY FAR, the best dog I have ever had. Have you seen the video of the baby and the boxer touching hand to paw. It is so cool and I love the boxer yawn in it.

    havent seen that video
    Scouty
    No I havent seen that video but it sounds like a boxer. You have that post about Florida too I think , I do have a question for you , my husband and I are going to Ocean city this month I love the ocean but the dr has warned me about the sun are the side affects that bad or is it just rash? I just thought you would be the one to ask the Florida vacation sounds like fun too hopefully next year?
  • kimby
    kimby Member Posts: 797
    Roll Call
    DX 8/07
    stage IV, mets to liver and celiac nodes
    5 surgeries
    liver radiation
    continuous chemo w/progression (I've had it all)
    still in treatment

    I live in NW Ohio

    Kimby
  • 2bhealed
    2bhealed Member Posts: 2,064
    spongebob said:

    2 4 1... 411
    Here's the 411 on us two...

    SpongeBob:

    Diagnosed Stage 3 CRC (thanks to HNPCC/Lynch Syndrome) in July of 2001 - age 36

    Right hemicolectomy, removed 26"
    Treated weekly with 5-FU/Lukovorin for 6 months

    Currently NED for - GOSH! - 7 years

    Married (to usakat) in May 2007

    Currently living in Charleston, SC but moving to Key West, FL this summer


    usakat:

    Diagnosed Stage 3 CRC (also thanks to HNPCC/Lynch Syndrome) on 5/17/2006 - age 42

    Right hemicolectomy, removed 19"
    Treated w/ Oxaliplatin/Xeloda/Lukovorin for 6 months

    Currently NED for 2 years

    Married (to SpongeBob) in May 2007

    Currently living in Charleston, SC but moving to Key West, FL this summer

    Mayor Riley
    I totally forgot y'all were living in my uncle's town!

    :-)

    peace, emily