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is this the end?

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Comments

  • msccolon
    msccolon Member Posts: 1,917
    totally off topic
    Every time I see this thread topic I think of the Jesus Christ Superstar "... the end. This is my blood you drink, this is my body you eat..."
    mary
  • Monicaemilia
    Monicaemilia Member Posts: 455
    Erbitux and Irinotecan
    Hi Sue: I don't think you mentioned whether your dad had tried Erbitux and Irinotecan. If one is KRAS Wild Type (which the hospital can check for you), Erbitux can work synergistically with Irinotecan (even though your dad is already refractory to it) and I have seen some pretty amazing results. And I would definitely get a second opinion. My prayers are with you and your dad. Monica
  • snommintj
    snommintj Member Posts: 601

    Erbitux and Irinotecan
    Hi Sue: I don't think you mentioned whether your dad had tried Erbitux and Irinotecan. If one is KRAS Wild Type (which the hospital can check for you), Erbitux can work synergistically with Irinotecan (even though your dad is already refractory to it) and I have seen some pretty amazing results. And I would definitely get a second opinion. My prayers are with you and your dad. Monica

    Try Wake Forest
    When I seemed to run out of options I sent all of my info to wake forest university, I forget the name of who I sent it to but if you call they will tell you who to send it to. According to the first few Drs I spoke with my situation was pretty bleak, noone gave me a chance little less a plan of action. I overnighted the information to WFU hospital. Within 48 hrs, half a dozen Drs had called and informed me of possible treatment options. I took that info to Drs in my area until I found Drs that were up to date with the most current treatments. Get those tumors ablated, cyberknifed, resected, therosphered, or what ever else is available.

    To help strengthen the liver, try milk thistle, juice 6-8 fresh lemons(everyday), and resveratrol(500+mg per day,get at walgreens). This combo along with daily 400mg vit-d boosted my liver into overdrive. I had as little as 25% of my liver at one time, I credit the above for helping me through.
  • hoagiemom
    hoagiemom Member Posts: 87
    snommintj said:

    Try Wake Forest
    When I seemed to run out of options I sent all of my info to wake forest university, I forget the name of who I sent it to but if you call they will tell you who to send it to. According to the first few Drs I spoke with my situation was pretty bleak, noone gave me a chance little less a plan of action. I overnighted the information to WFU hospital. Within 48 hrs, half a dozen Drs had called and informed me of possible treatment options. I took that info to Drs in my area until I found Drs that were up to date with the most current treatments. Get those tumors ablated, cyberknifed, resected, therosphered, or what ever else is available.

    To help strengthen the liver, try milk thistle, juice 6-8 fresh lemons(everyday), and resveratrol(500+mg per day,get at walgreens). This combo along with daily 400mg vit-d boosted my liver into overdrive. I had as little as 25% of my liver at one time, I credit the above for helping me through.

    Roswell
    Hi Sue, I'm sending you my prayers for your father. I go to Roswell and love it there. Who is his Dr? I'm stage III so I don't know too much about the regime he is on but I just wanted to let you know that Roswell has been wonderful for me and I hope they can help you. Keeping you in my prayers.Michelle
  • midnte0708
    midnte0708 Member Posts: 166
    hoagiemom said:

    Roswell
    Hi Sue, I'm sending you my prayers for your father. I go to Roswell and love it there. Who is his Dr? I'm stage III so I don't know too much about the regime he is on but I just wanted to let you know that Roswell has been wonderful for me and I hope they can help you. Keeping you in my prayers.Michelle

    Thanks,
    Hi MIchelle,

    My Dad's appointment is with Dr Marwan Fakih. Not sure if you are familiar with him . He has been highly recommended to us.
    I'm glad you are happy with their care.
    Sue
  • midnte0708
    midnte0708 Member Posts: 166
    snommintj said:

    Try Wake Forest
    When I seemed to run out of options I sent all of my info to wake forest university, I forget the name of who I sent it to but if you call they will tell you who to send it to. According to the first few Drs I spoke with my situation was pretty bleak, noone gave me a chance little less a plan of action. I overnighted the information to WFU hospital. Within 48 hrs, half a dozen Drs had called and informed me of possible treatment options. I took that info to Drs in my area until I found Drs that were up to date with the most current treatments. Get those tumors ablated, cyberknifed, resected, therosphered, or what ever else is available.

    To help strengthen the liver, try milk thistle, juice 6-8 fresh lemons(everyday), and resveratrol(500+mg per day,get at walgreens). This combo along with daily 400mg vit-d boosted my liver into overdrive. I had as little as 25% of my liver at one time, I credit the above for helping me through.

    Thanks
    I will try this and see if I can get my dad to take it. Thanks, I was just wondering if there was anything I could give him to help his liver function better. I hope it is not too late for him. I can't believe you got such fast action from WFU. It seems like I've been jumping through hoops for the past week and still playing the waiting game.

    Sue
  • choihe
    choihe Member Posts: 9
    kimby said:

    Prayers
    Sue,

    Your father can get a second opinion quickly. You need an NCI Comprehensive Canzer Center - here is the link: http://cancercenters.cancer.gov/cancer_centers/cancer-centers-names.html but you will need to copy and paste. When I called for a second opinion (I self referred) I was in within days. Keep calling and bugging if you need to. Schedule with more than one facility now if possible. If your father wants to continue, get as many opinions as you can as quickly as you can.

    I was diagnosed stage 4 August 2007 and have had folfox, folfori and erbitux and currently on: mitomycin,avastin and xeloda. Xeloda is the pill form of 5fu and it does, often times, react differently within the body than 5fu. Is your father in liver failure? Why do they think he will decline so quickly? My liver is still not operable (surgeon was talking months for me) but I did just complete 5wks of liver radiation which I expect will extend my life considerably and will probably have various forms of ablation,embolization,more surgeries, hai pump....the list goes on. There may be other options for your father, but he needs a TEAM: medical onc, surgical onc and radiation onc. No more chemo doesn't mean no more hope. There are dozens of treatments that may be available but you need to find them!

    YMMV

    Kimby

    Stop Chemo at 8th (9th)???
    My husband is currently going through 8th Chemo (8th out of 12). I’m really concerned if his body can manage to complete 4 more treatments. He looks really weak today. He can't eat anything at all. My son is saying that he should stop Chemo, but I’m not sure what is a right thing for my husband to do at this point.

    He wants to still go on treatment as far as he can, but I wonder, I should advise him stop Chemo if his health deteriorates further. What possible outcome would be if he does not complete all the recommended 12 treatments (may be stop at 9th or 10th)?

    I would like your inputs and advices.

    Amy
  • midnte0708
    midnte0708 Member Posts: 166
    choihe said:

    Stop Chemo at 8th (9th)???
    My husband is currently going through 8th Chemo (8th out of 12). I’m really concerned if his body can manage to complete 4 more treatments. He looks really weak today. He can't eat anything at all. My son is saying that he should stop Chemo, but I’m not sure what is a right thing for my husband to do at this point.

    He wants to still go on treatment as far as he can, but I wonder, I should advise him stop Chemo if his health deteriorates further. What possible outcome would be if he does not complete all the recommended 12 treatments (may be stop at 9th or 10th)?

    I would like your inputs and advices.

    Amy

    Amy
    Amy,

    There were days my father couldn't get out of bed and did not eat often. I don't know what kind of chemo your husband is on but it really takes a lot out you. My father was also able to work full time with chemo, he had bad and good days of course.
    Considering stopping chemo is a discussion that needs to be made with doctors.

    Also, if you start a new topic and post more specific details about your husbands condition you are likely to find lots of input and more advice than you can imagine.

    They may not see your message here in this tread.

    Sue