CT Scan

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  • Ro10
    Ro10 Member Posts: 1,561 Member
    #42
    shortmarge said:

    I WENT TO FLORIDA
    Sorry to hear about your diagnosis, but we are all here for you.

    I spent five amazing, wonderful sunny days in Florida with Aunts and cousins. Had an absolute blast, lots of laughs! My energy level is getting better, my hair is growing back, even had man hairs on my chin yesterday and plucked them. I was excited about it, who would have thought you could get excited over man hair! My neuropathy is getting better too. There is life after radiation, chemo and major surgery!!!!!!

    MIND, BODY AND SOUL!

    Hugs.

    Marge glad it was a good vacation
    Glad you got to visit with family and had lots of laughs. Glad to hear your energy level is better as well as your neuropathy. I can imagine you were happy about "man hair" as that means other hair will return, too. So glad you are doing so well. Continue to take care of yourself.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #43
    lindaprocopio said:

    Life After Treatment
    I had an appointment this morning with my chemo oncologist, since he was off on Monday when I had my chemo. We needed to schedule my last (LAST!) round of chemo (tentatively scheduled for March 16th, with the realization that I will probably need an extra week again but we're going to draw blood at the 3 week interval and see if I can safely get my chemo on schedule for a change.) But the conversation was mainly on 'what's next?' Of course I still have all my radiation ahead, but he wanted to discuss HIS role with me going forward. He told me that I will have a CT-scan done again 2 weeks after my last chemo and before my radiation starts. He recommended a gynecologist who would join my 'team' for routine follow-up visits, since my gynecologic oncologist/surgeon is hours away from here. He told me that he will monitor me after treatment using 3 things: 1.) CA-125 which he considers a reliable marker for me, but of the 3 things they watch CA-125 is given the least importance. But if mine goes up it will trigger additional testing.; 2.) CT-scans; and 3.) pelvic exams. He said they rely on ME to let them know if I am having any bloating or pain or anything unusual. He seemed really pleased that I was experiencing very few side effects other than the low platelets and hemoglobin.

    We talked a little about the 15 pounds I've gained, some of which is water weight from the steroids, but he wanted to be sure that I was EATING on the extra pounds and that it wasn't anything else and examined me to be sure. Everyone has warned me not to lose weight before the radiation. No worries there! Did any of you drop a lot of weight during pelvic radiation? I would love to lose the extra weight but not with diahrea!

    Anyway, it just felt good to look BEYOND treatment with the doctor, out there with the 3-month monitoring visits, out there with eyelashes and eyebrows and hair! I can't wait to join you lucky NED-Sisters, probably in June or July for me (fingers crossed for luck!)

    Linda glad you have just one chemo left
    Hope you can get your "last" chemo treatment on schedule and your labs will be okay to recieve the treatment. My ob/ono pretty much said the same follow-up for me after all the treatment is completed (3 month CAT scans, pelvic exams, and labs). I have my 3rd chemo scheduled for March 12. Lab will be the day before, as the treatment takes me so long. After the rest period, I will be returning to Illinois for my radiation treatments and last 3 chemo treatments. I asked about if I would only have external radiation or also internal radiation. He said it was up to the radiation onocologist, so I guess I won't know until I meet with him. The ob/ono said I may have a CAT scan to determine how my anatomy is to make sure the radiation goes where they want it. I have not had a CAT scan yet. I still have really good blood counts, which makes me feel guilty when so many of you have had low blood counts, and platelets. Wish I could share of the blood with you. Started some blood pressure medication today as it is still running high. I still have a little fuzz left on my head. I am sorry for those of you who have had so much trouble with you head being sore, and having pimples. I have such dry skin. I still have my eyebrows and eyelashes. I wonder if my hair will grow back with the radiation treatments and then come out again with the last 3 chemo treatments. Linda you really put my mind at ease with referring me to the Ovarian Discussion Board regarding my CA 125 level. Thank you so much.
    The ob/onoco did tell me diarrhea could be a problem with the radiation treatments. It sounds like you have been keeping your nutrition up with the ensure. HUGS to all.
  • deanna14
    deanna14 Member Posts: 732
    #44
    lindaprocopio said:

    Life After Treatment
    I had an appointment this morning with my chemo oncologist, since he was off on Monday when I had my chemo. We needed to schedule my last (LAST!) round of chemo (tentatively scheduled for March 16th, with the realization that I will probably need an extra week again but we're going to draw blood at the 3 week interval and see if I can safely get my chemo on schedule for a change.) But the conversation was mainly on 'what's next?' Of course I still have all my radiation ahead, but he wanted to discuss HIS role with me going forward. He told me that I will have a CT-scan done again 2 weeks after my last chemo and before my radiation starts. He recommended a gynecologist who would join my 'team' for routine follow-up visits, since my gynecologic oncologist/surgeon is hours away from here. He told me that he will monitor me after treatment using 3 things: 1.) CA-125 which he considers a reliable marker for me, but of the 3 things they watch CA-125 is given the least importance. But if mine goes up it will trigger additional testing.; 2.) CT-scans; and 3.) pelvic exams. He said they rely on ME to let them know if I am having any bloating or pain or anything unusual. He seemed really pleased that I was experiencing very few side effects other than the low platelets and hemoglobin.

    We talked a little about the 15 pounds I've gained, some of which is water weight from the steroids, but he wanted to be sure that I was EATING on the extra pounds and that it wasn't anything else and examined me to be sure. Everyone has warned me not to lose weight before the radiation. No worries there! Did any of you drop a lot of weight during pelvic radiation? I would love to lose the extra weight but not with diahrea!

    Anyway, it just felt good to look BEYOND treatment with the doctor, out there with the 3-month monitoring visits, out there with eyelashes and eyebrows and hair! I can't wait to join you lucky NED-Sisters, probably in June or July for me (fingers crossed for luck!)

    Good for you Linda!
    That must be an awesome feeling to schedule your last chemo. I think you are going to breeze through the radiation. I did not lose weight on radiation, I gained weight. Prior to treatment, I had been going to weight watchers. So, the low fiber diet that I ate during radiation put a bit of weight back on me. Now with the steroids for chemo, I had to go buy a size bigger pants as I can't stand anything tight on my stomach anymore. I kept Imodium with me all the time, which a used a few times. I asked for the radiation diet paperwork before I got started so I would know what to avoid. I think as well as you have done so far, that if you watch what you eat and keep Imodium handy you will do fine.
    We will probably complete treatment about the same time. I am scheduled for my 6th chemo treatment the first week of May and anticipated doing a seventh treatment if I did okay with those. So, probably Juneish... provided I don't have to postpone any treatments.
    Yeah... it's just around the corner.
    Hugs of strength, positive thoughts and blessings to all the USPC sisters. As always, you are in my prayers.
  • fuzzytrouble
    fuzzytrouble Member Posts: 212
    #45
    lindaprocopio said:

    Life After Treatment
    I had an appointment this morning with my chemo oncologist, since he was off on Monday when I had my chemo. We needed to schedule my last (LAST!) round of chemo (tentatively scheduled for March 16th, with the realization that I will probably need an extra week again but we're going to draw blood at the 3 week interval and see if I can safely get my chemo on schedule for a change.) But the conversation was mainly on 'what's next?' Of course I still have all my radiation ahead, but he wanted to discuss HIS role with me going forward. He told me that I will have a CT-scan done again 2 weeks after my last chemo and before my radiation starts. He recommended a gynecologist who would join my 'team' for routine follow-up visits, since my gynecologic oncologist/surgeon is hours away from here. He told me that he will monitor me after treatment using 3 things: 1.) CA-125 which he considers a reliable marker for me, but of the 3 things they watch CA-125 is given the least importance. But if mine goes up it will trigger additional testing.; 2.) CT-scans; and 3.) pelvic exams. He said they rely on ME to let them know if I am having any bloating or pain or anything unusual. He seemed really pleased that I was experiencing very few side effects other than the low platelets and hemoglobin.

    We talked a little about the 15 pounds I've gained, some of which is water weight from the steroids, but he wanted to be sure that I was EATING on the extra pounds and that it wasn't anything else and examined me to be sure. Everyone has warned me not to lose weight before the radiation. No worries there! Did any of you drop a lot of weight during pelvic radiation? I would love to lose the extra weight but not with diahrea!

    Anyway, it just felt good to look BEYOND treatment with the doctor, out there with the 3-month monitoring visits, out there with eyelashes and eyebrows and hair! I can't wait to join you lucky NED-Sisters, probably in June or July for me (fingers crossed for luck!)

    life after treatment
    Hi Linda I just had my blood work today and my red blood and platelets are very low again.
    It seems like a roller coaster ride that won't end. You and are going to get out 6th around the same week. Mine is suppose to be March 11th and hoping that my blood counts are good enough too. Here's to the two of us finishing up our last treatment on schedule and no waiting and extra week.

    I haven't had the talk yet about the follow-ups except that a ct scan 2 weeks after my last treatment. Are you scared or excited? I am both.


    Have a great day,
    Sharon

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