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first chemo treatment, Nausa questions

irene77's picture
irene77
Posts: 28
Joined: Dec 2008

Having extreme nausa the medicine that I am taking for it is Zofran which makes me dizy and tired, also tried saltin crakers and 7up, nothing works, lost my appatate I eat very little wondering if the nausa gets worst with each treatment? I have to do this for six months every two weeks. I feel like the chemo is killing me, it feels like the worlds worse case of the flew. Would appreciate any suggestions to help with the nausa.
Irene

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Hydration and Emend...the best nausea med around I think..Its a 3 pack dosage 1 each day before treatment...I don't eat or drink either for 4 days but hydration gets it out of your system faster other than that its just a nasty ride we have to take to NED...Hang in there , Im on my 11th of 12 a week from Monday.....Try Sunkist Orange Drink...its the only thing now I can drink that I can actually keep down......God Bless ya.....

irene77's picture
irene77
Posts: 28
Joined: Dec 2008

Thanks for the feed back, is hydration and emend a prescription drug or over the counter?
trying to eat small amounts and drink lots of water, now having cold chiles will see the Doctor tomarrow will let him know all my symtems.
Irene

sheri22
Posts: 278
Joined: Jan 2009

I take phenegran and it has worked really good so far. I have had that feeling too but the phenegran seems to work, maybe ask your Dr about trying this good luck hope this helps

Sheri22

taraHK
Posts: 1961
Joined: Aug 2003

I also have had pretty good luck with Emend. But the important thing to realize is that there are a LOT of anti-nausea medicinces out there. If one doesn't work for you, tell the nurses/doc, and try another. I had to try several before I found the best for me. That being said, I did always have SOME nausea. Eat what you can. But, I tended not to eat much for a few days. If you can stay hydrated, that's the important thing. I didn't find that the nausea got worse over time.

Good luck to you, Irene. You are not alone.

Tara

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

Oh Irene: I am so sorry you have got such bad nausea.
Is there anyway someone else could prepare you a little plate of something for you and bring it to in another room. Sometimes if you aren't in the kitchen smelling those smells it helps.

Apple slices, slices of cucumber....try to think of something you would love to nibble on.

Yes and a different anti nausea drug might help to,

Good luck Irene
All the best
Maggie

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

Irene, I had my first chemo treatment last week, and also had a horrifying 2 night bout with nausea! I had phenegran and Zordat (sp?) is it as well, and those did nothing! I thought I was going to die, all I could think of was if this was how it's going to be for the next 11 chemo treatments I have to go through, I'm never going to make it....

But the home health nurse came on Friday to unhook me from the pack (I had it last Wednesday) and by that night I started to drink alittle more, and then the next day, I was able to feel abit better, like Buzzard said, it took me those 4 days to get back to feeling ok, I still feel alittle lightheaded, and weird I guess you could say, but I can't even sleep well now, and I feel like I have to go to the bathroom every hour! it's so annoying.

I did just call my doctor though and left a message saying I would like a better anti-nausea medicine for next time, and also asked for some sleeping aid.

I hope the next time is better, I'm also afraid of it getting worse over time...my second chemo appt is next Wednesday, and I'm really scared of it, I just dread that nausea..

Hugggs to you!
~Donna

irene77's picture
irene77
Posts: 28
Joined: Dec 2008

Thanks everyone will try all your suggestions. Donna sounds like we are almost in the same place of chemo treatment, however I have been able to sleep well, especially after taking the anti nausea medicine before going to bed. My problem is remembering that the fanny pack is hooked to me when I suddenly have to go to the bathroom in the middle of the night, I hooked it on my bed-post before going to sleep. One time the tube was pinched and the beeper went off. Taking a shower is another story. I am sooo tired all the time.
God bless all of you, Irene

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Along with the nausea drugs (I took Kytril - it helped) my nurses suggested sucking on cold cantaloupe. It has a natural emend in it. It also helps with the lip sores. I know it helped me, and kept something in my tummy without having to eat a lot.

I also used to forget my fanny pack in the night. I never set off the beeper, but did drop it a time or two!

Good luck. Vicki

tiny one
Posts: 467
Joined: Jan 2009

Make sure you tell your Dr this. There are alot of different meds out there. I used to keep a small piece of spearment gum in my mouth. Also how about lemon drops and lemonade. I've heard that having a massage sometimes helps with the pain and nausea of chemo. I'm sorry that you're having this side effect, because I know that it's miserable.

Mike49's picture
Mike49
Posts: 269
Joined: Nov 2008

I agree with all the advice you have been given, my nausea was the worst the first time. I don't much like Zofran because I get a weird headache. I did find some relief from sprouted wheat toast, Ezekial Bread sometimes I didn't even toast it. I also found broth like soups overcame the taste in my mouth.

I hope your fight improves, its not easy, every time somebody tells me how I look like I am doing well with my treatment, I think, you should feel it from this side. We'll make it together, Hope tomorrow is better than today.

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pamness
Posts: 515
Joined: Nov 2007

Hi: I guess I am now a vetran of these boards - I started treatment in March of 2007 and am currently ned - stage 3A.

I had a very hard time with nausea during folfox. They started me with zolfran, compazine and attivan. By my second treatment I was on Emend for 3 days along with steroids for three days - I used zolfran, compazine and attivan to back up the emend. I was usually somewhat nauseous for 7 or 8 days - but it was under control so long as I stayed ahead of it with the meds. The crash from the steriods on day 4 was an issue but defintely better than the nausea.

Once I was off the oxali. the nausea was better and I went to just zolfran, compazine and attivan - pretty much as needed.

I had to push my oncologist about the anit nausea meds - I would suggest anyone with nausea problems do that.

I ate what I could during treatment. I could most easily eat bland food - carbohydrates were easier than most everything else. Applesause, soup, cake and believe it or not, pizza margherita, went down fairly well. I drank tons of water and watered down gatorade and mineral water. I also used ensure from time to time.

Good luck, my nutritionist and oncologist - told me to eat what I could and not to worry about too much else.

Bottom line - do what works for you - it is a very finite period of time (treatment). Good news the nausea started with the first treatment and never really got worse. I just learned how to manage it.

Pam

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

I stand by the old ancient herbal remedy. MaryJane (pot). It works wonders with fighting nausea and enhancing appetite. I know that it is illegal in most states and even in states where it IS legal, the DEA will not allow people to use this herbal remedy. I've tried Kytral, Emend, Zofran (but none of them stay lit: ha-ha) Seriously, it does work but it is illegal. I am a little surprised no one else mentioned it before me.
~phil

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

A couple of friends I have suggested the same exact thing, pot does cure the nausea, it's too bad they don't prescribe it here, but it's good if you know where to get it from :)

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

It's not like we are not going through ENOUGH bad stuff that they have to make what can help us, HIV patients and numerous others illegal. Hmmm, I wonder if the drug companies have anything to do with this??? A cheap remedy that is better than any pill that is virtually free if you harvest your own. Nah, they wouldn't do that and out govt wouldn't allow it either
(yeah, right)

*Of course I do not condone the use of any illegal substance nor do I use it, it's a friend of a friend of a friend...

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

way to cover your ***! I know you mentioned this on an earlier post, and I said I certainly considered it cause I had used it back in my younger wilder days and it ALWAYS worked when I came down with the flu. However, not living in CA anymore, and being in my middle to end 40s, finding such stuff without the possibility of getting sent to jail would be quite a feat for me! Although, when I first went on chemo, I had 2 people I knew come up to me and tell me they could get me some if I wanted some! I suppose if I really was interested, I could have gotten my hands on some, but being on the right side of the law now, I would be more afraid of getting caught (although I can see the argument in court... sir, I am a law abiding citizen, but I found myself vomiting uncontrollably from chemo with no relief from the medications my oncologist was suggesting. I found this joint on my doorstep one day and in desperation decided to try it. It not only managed the nausea but I was able to eat again for the first time in 2 weeks...) I would have to be sure I shaved my head before the appearance and went without makeup, for sure! More pity that way! Anyhow, Emend did the job so I never wound up having to take my friends up on the offer!
mary

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

I realize there are different schools of thought on this. There's a great song by John Mayall called "The Laws Must Change" and they mention pot. I would not be thrilled to have to face "the man" especially for something as silly (IMO) as this. Hey, whatever floats your boat. I wonder if it were legal how many people living with cancer and undergoing treatment would try it. I would think many would.

Anyway, this is not helping the originator of this post I'm sure. There are many ways to deal with this it seems but whatever works for you is the way to go. I wish you the best of luck in dealing with this horrible side effect of treatment.
~p

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

I was afraid to mention this because of how controversial it really is, however...I always hated the way it made me feel (I never inhaled tho) ... I have had a few friends offer it to me now that I was diagnosed, and well, it works, and is less expensive than some of the precription drugs...'nuf said.

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

It is controversial and I believe it shouldn't be. Emend, which many people swear by, costs about $180 per pill w/o insurance. That's just crazy. I tried them and they were nothing special. Certainly not nearly as effective as the herbal remedies (for me). Another plus to "it" is that it changes one's mood, for the better in my case. The fact that alcohol and other drugs that are not beneficial are so widely accepted in our society just blows my mind. I'm glad that you have found some relief, I am sorry that you have to deal with cancer but if you can take the edge off, that's great.

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Other than trying it when I was a teen and it was the "cool" thing to do, I never got addicted to it and seemed to outgrow the novelty at the time... and hadn't really thought much about it one way or the other since. But after being diagnosed with cc and nausea was one of my big fears... I had some on standby. When the nausea hit, I used my standby stash and was amazed at how quickly it worked... when the expensive prescription meds really didn't do anything. For all I know, if I hadn't taken the prescription meds, it might have been a lot worse, but taking them I still had the nausea. But one or two puffs of the herbal remedies and I had NO nausea whatsoever!

Like you, Phil, I have a really hard time understanding why the prescription drugs that don't necessarily do the trick, AND alcohol which, other than for pleasure, has no benefits to society are legal and widely accepted in our society... yet something like pot which has been proven to have a lot of benefits for those who have serious illnesses, are illegal and taboo.

Up here, we have what is called the Compassionate Care Club. If you get a form filled out by your doctor that states your condition and that he/she feels that cannabais would benefit in relieving the illness symptoms, then you get a Compassionate Care Club membership card. With that card, you can buy the pot (or baked goods) at much cheaper prices than on the street AND it is much cleaner. If you are found to have the drug in your home or on your person by the police, if you show your Compassionate Care Club card, then they don't pursue charges or harassing you ;) But then, I think, although marijuana is still considered an illegal drug here, we tend to be a bit more lenient and if you do not have a compassionate care club card but can prove you do have a serious illness (and then get your doctor's support after the fact), you won't get hassled either.

I'm surprised more States/places don't have this Compassionate Care Club concept. Yes, the drug is illegal... but that is illegal for recreational use. If a substance works for serious illness, then any State/country can make exceptions to the rule and that's what I have such a hard time digesting... why would they let people suffer when there's such an easy solution to a bad symptom?

Huggggs,

Cheryl

kmygil
Posts: 881
Joined: Feb 2007

He got it absolutely right. Hydration and Emend. Zofran did NOTHING for my nausea, and neither did the 3 others, but Emend certainly brought it down to almost nothing. Because I was feeling so bad, I didn't make myself drink enough water, so that made me feel worse and I had to be hydrated at the doctor's office. My blood pressure was down to something like 72/50. So drink a lot of water and get Emend. Also, don't ignore your nutrition. If you can't eat, try the supplemental drinks, althought they can be pretty yucky at room temperature. Do what you have to do to get through this in the best shape possible.

Hugs and prayers,
Kirsten

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

that will be $2.95 payable in cash check or debit card.................hehe....

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

Buzz was right about the Sunkist orange soda.. I been addicted to it ever since he mentioned it, and it goes down real nice :)

XOX
~Donna

ldot123's picture
ldot123
Posts: 276
Joined: Apr 2008

Hi there,
Maybe you could ask the oncologist if the dosage can be adjusted. That happened to me the first time around and when things got changed, I felt much better.

Lance

Madre's picture
Madre
Posts: 124
Joined: Apr 2008

When I had my first chemo I actually ended up in the emergency room with severe stomach pains - chemo side effect. The nausea was bad, I took compazine and ativan. I then got reflux so I was on tagement too (since chemo is done no more reflux). After round 5 they started emend and decedron. My friend suggested pink lemonade because even water wouldn't go down, and it worked, kept my fluids up and the sugar helped too. I ate a lot of watermelon too. Good luck!!

irene77's picture
irene77
Posts: 28
Joined: Dec 2008

Madre
I have also been having stomach pains and reflux guess thats part of the chemo, have been taking omeprazole for the reflux. Get my second treatment of chemo on Monday Doc said he will switch me to Emend and compozine, however I am still waiting for the apporval on Emend. The anti nausea pills make me feel dizzy and light headed. Catch 22 get rid of one thing and get another. Felt pretty good this week hate to go back on Monday for second treatment.
Thank you again for all your suggestions.

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

I get my second chemo treatment right behind you on Wednesday! so I'm there with you trying to bounce back over the weekend...and it's true, just when you start feeling really good, then you have to go to chemo again and start feeling bad all over again, but look at it this way.. at least it's also one more round we got down and one less to go, and at least we know, we WILL feel good again :)

Good luck on Monday! hope things turn out better!

Hugggsss!
~Donna

irene77's picture
irene77
Posts: 28
Joined: Dec 2008

Guess I am behind one week, Donna did you get very sick with your second treatment? or was it some what the same as the first. Also watching the Oscars tonight, I useto have an Oscar party at my house for the past two years. Taking care of myself this year. Missing my friends, life is different.
Praying for you
Irene

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

...My 2nd will be this Wednesday, as your pump is being removed, mine will be put in, I'm just behind you a couple days with treatment :)

I always thought I took pretty good care of myself pre-cancer..I even quit smoking 6 years ago.. and thought, "watch me get cancer anyway"...and wouldn't you know it? it happened!

We don't have a party, what we do is make a list of all the nominees in the categories, I print off enough for each family member, check off who we think we will win, and bet $3 in a pool...whoever guesses the most people right in the category wins the pot :)

Life is definitely differently, but not everything, that has been a tradition for many years since my mom started that when I was a kid, and that's something fun we do for the Oscars every year now...I try to keep some things as normal and still fun as possible for us, since they know it's going to be mom's "sick" time this weekend...

My prayers and hugs are with you!
~Donna

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

I have to chuckle a little with the dialog between you and Donna. I go in tomorrow for my 170 something treatment and this week or next week is my 5 year anniversary of starting treatments so I have had a hell of a lot of them over the last 5 years. I think I mentioned in an earlier post about how I deal with nausea. All I know is that it's not a $180 pill, it's been about for thousands of years as a medicine, and it WORKS for nausea and appetite. Amazingly in this day and age it's still controversial. I guess enough politicians have not had to deal with chemo yet, maybe then they will wise up. I hope your treatments go well and go quickly and effortlessly. I am not making fun of you, I guess I just can't believe how many times I've done this. It seems like many people have taken their pumps out. I still have mine in since they can not be put back in in the event they need to be. I guess my glass is half empty at the moment. Must be dry mouth...

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

...If my posts can bring a chuckle or crack a smile to anyone, that just brings a smile to my face as well lol...honestly, I am taking your advice as well, am "prepared" with it as well, and it is sitting in my drawer waiting to be "used", so just so you know, I will be trying it this week if I have too ;)

Hugsss to you Phil!
~Donna

fez1
Posts: 47
Joined: Jul 2006

Irene,
You need to experiment with other meds. My husband used Zofran, Kytril, Emend and finally got some relief with good old fashioned Compazine. He took it with Ativan around the clock. At chemo he got Aloxi, Ativan, Decadron and Atropine. When he got home he started with the Compazine and Ativan. He also used Decadron for 3 days after chemo. Docotrs sometimes begin slow to see how you react since everyone is different. Ask for a different regimen before your next chemo. Also, every chemo treatment was different. What chemo drugs are you getting right now???

Carol

polarprincess
Posts: 210
Joined: Aug 2008

i read through this fast so maybe i missed it, but at my treatment center we get aloxi and decadron in the infusion. I have not had issues with nausea through 8 treatments and they have a 97% success rate with this combination in colon cancer patients for preventing nausea.. has anyone tried the aloxi??

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

You are right, it is the standard and it works for the majority of people. It didn't do squat for me, which is why we changed to the big guns! In fact, I had the gambit... Kytril, Zofran, compazine, phenergan ... none of it did anything, although at least phergan put me to sleep! Emend and decadron did the trick for the nausea as well as crying jags.
mary

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

I get that combo also, and have had no problems, except for the inability to sleep for 72 hours and I have cured that with advil pm. I have emend in a drawer from when i THOUGHT I was constipated and was experiencing the nausea (great doctors in ER huh?).

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