CT Scan

shortmarge
shortmarge Member Posts: 291
First off, THANKS LINDA!!!! This is great.

I have my first CT Scan tomorrow. If all is good I'll be starting my three month visits. But there will be no "IF", I will be starting my three month visits. I'm looking forward to NED being my best friend for life!!!!

Have a great day everyone.

MIND, BODY AND SOUL.

Hugs!
«13

Comments

  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    May you be Dancing With NED tomorrow!!
    MARGE: Please post as soon as you know. I am sure you'll be dancing with NED, but please don't keep us in suspense. I feel like I'm holding my breath when I wait for CT-scan results. I don't realize how scared I was until I get the news and that sigh of relief whooshes out of me. ((((Marge)))) I know it'll be N.E.D.

    I'm curious if it will feel wierd to not be looked at by a doctor for what will seem, in comparison to the close monitoring of treatment, like a long time. Or will you put it on your calendar like your 6-month dental cleaning, and never think of it until the day before? I hope, once my hair grows in and I don't have that daily reminder, that some days I can forget I ever had cancer. (Of course that 8" belly scar will remind me, but I don't see my belly that often.) Three months with NO oncologist. How restful it would be to simply put cancer out of your mind for days and weeks and months at a time! Is that even possible? I would love to think so.
  • deanna14
    deanna14 Member Posts: 732

    May you be Dancing With NED tomorrow!!
    MARGE: Please post as soon as you know. I am sure you'll be dancing with NED, but please don't keep us in suspense. I feel like I'm holding my breath when I wait for CT-scan results. I don't realize how scared I was until I get the news and that sigh of relief whooshes out of me. ((((Marge)))) I know it'll be N.E.D.

    I'm curious if it will feel wierd to not be looked at by a doctor for what will seem, in comparison to the close monitoring of treatment, like a long time. Or will you put it on your calendar like your 6-month dental cleaning, and never think of it until the day before? I hope, once my hair grows in and I don't have that daily reminder, that some days I can forget I ever had cancer. (Of course that 8" belly scar will remind me, but I don't see my belly that often.) Three months with NO oncologist. How restful it would be to simply put cancer out of your mind for days and weeks and months at a time! Is that even possible? I would love to think so.

    God Bless you Marge!
    I pray that you stay NED for life! I pray that we all stay NED for life.
    I know most have you have already been through this, but my scalp.... ouch! How long does that last or does it go away. My hair is almost gone, you can see my scalp right through what is left.
    Linda, I too hope, pray and look forward to that feeling...
  • Ro10
    Ro10 Member Posts: 1,561 Member
    Marge I hope you are dancing
    Marge I hope you are dancing with NED tomorrow. What a wonderful thing that would be. Hope all goes well. Deanna did you try applying baby oil to you head? I read that helps. They also said a satin pillow case may be more comfortable. Time to pamper yourself. I have not personal experience yet, but only what I have read in books. HUGS to all.
  • deanna14
    deanna14 Member Posts: 732
    Ro10 said:

    Marge I hope you are dancing
    Marge I hope you are dancing with NED tomorrow. What a wonderful thing that would be. Hope all goes well. Deanna did you try applying baby oil to you head? I read that helps. They also said a satin pillow case may be more comfortable. Time to pamper yourself. I have not personal experience yet, but only what I have read in books. HUGS to all.

    Thank you again Ro!
    Thanks again Ro. I'm going to try the baby oil, now that you said that, I think I remember Marge or Linda talking about using baby oil. I have been sleeping with a satin sleep cap to keep the hair from getting all over. I tried taking it off last night, but I go chilled. Wow, it's amazing how quickly I got cold with the almost bald head sticking out of the covers. LOL. I let you know how it goes with the baby oil.
  • shortmarge
    shortmarge Member Posts: 291
    deanna14 said:

    Thank you again Ro!
    Thanks again Ro. I'm going to try the baby oil, now that you said that, I think I remember Marge or Linda talking about using baby oil. I have been sleeping with a satin sleep cap to keep the hair from getting all over. I tried taking it off last night, but I go chilled. Wow, it's amazing how quickly I got cold with the almost bald head sticking out of the covers. LOL. I let you know how it goes with the baby oil.

    Veins
    My veins did not want to cooperate today. They finally got one but it was uncomfortable. They had to use heat and still had a hard time. But it's done and I will let you know when I find out the results.

    Always in my prayers.

    MIND, BODY AND SOUL.

    Hugs
  • lindaprocopio
    lindaprocopio Member Posts: 1,980

    Veins
    My veins did not want to cooperate today. They finally got one but it was uncomfortable. They had to use heat and still had a hard time. But it's done and I will let you know when I find out the results.

    Always in my prayers.

    MIND, BODY AND SOUL.

    Hugs

    My veins are just about shot, too.
    The chemo really messes up your veins. They can get the needle in, but then it bumps up against scar tissue and they have to try another. It takes more 'sticks' each time for me. And they do the heat wraps ahead of time and I try and help by being well-hydrated and massaging my arms (although I don't know if I do that right) the night before. I'm hoping I have 2 more good veins left for my last 2 chemo rounds, and I don't know what they'll do if I need more blood tramsfusions and for my CT-scan. It's such a tough decision about getting a port, and I guess you don't know if you made the right call until the whole thing is over. I think ity's probably too late for me to change my mind, with my counts so low and this close to the end. But you have 3 months now for your veins to recover. 3 MONTHS!!! That's sooooo awesome! Please post as soon as you get the good news!
  • deanna14
    deanna14 Member Posts: 732

    My veins are just about shot, too.
    The chemo really messes up your veins. They can get the needle in, but then it bumps up against scar tissue and they have to try another. It takes more 'sticks' each time for me. And they do the heat wraps ahead of time and I try and help by being well-hydrated and massaging my arms (although I don't know if I do that right) the night before. I'm hoping I have 2 more good veins left for my last 2 chemo rounds, and I don't know what they'll do if I need more blood tramsfusions and for my CT-scan. It's such a tough decision about getting a port, and I guess you don't know if you made the right call until the whole thing is over. I think ity's probably too late for me to change my mind, with my counts so low and this close to the end. But you have 3 months now for your veins to recover. 3 MONTHS!!! That's sooooo awesome! Please post as soon as you get the good news!

    Hang in there
    Hang in there girls. Linda, you are almost done for a while. Marge you are already done for a while. That is so awesome. I can't wait until I can say that! Chemo number 2 on Monday.
  • Kris Ann
    Kris Ann Member Posts: 26
    Good luck to you Marge!! I
    Good luck to you Marge!! I pray you will be NED!! Positive thoughts! I am taking my mom to her check up on Feb. 25th. I will keep you all posted on her.
  • pjba11
    pjba11 Member Posts: 188
    Kris Ann said:

    Good luck to you Marge!! I
    Good luck to you Marge!! I pray you will be NED!! Positive thoughts! I am taking my mom to her check up on Feb. 25th. I will keep you all posted on her.

    prayers please
    Just a moment for an update. We are in trouble here, back from the hospital yesterday with severe pancreatic pain constant still. Scheduled to go back for MRCP. They are talking about pancreatic cancer. I pray that 'it' is something else. He is so strong for me ... even now loaded with pain killers he is out grinding feed for our cattle. He just keeps going. Never complaines. Please remember us in your prayers. This is a tuff one. Trying to keep up with your posts too. God bless you all ....may you have divine help with each hurdle you must endure. Peggy
  • shortmarge
    shortmarge Member Posts: 291
    pjba11 said:

    prayers please
    Just a moment for an update. We are in trouble here, back from the hospital yesterday with severe pancreatic pain constant still. Scheduled to go back for MRCP. They are talking about pancreatic cancer. I pray that 'it' is something else. He is so strong for me ... even now loaded with pain killers he is out grinding feed for our cattle. He just keeps going. Never complaines. Please remember us in your prayers. This is a tuff one. Trying to keep up with your posts too. God bless you all ....may you have divine help with each hurdle you must endure. Peggy

    Prayers
    Peggy, you and your husband are in my prayers, always.

    Hugs
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    pjba11 said:

    prayers please
    Just a moment for an update. We are in trouble here, back from the hospital yesterday with severe pancreatic pain constant still. Scheduled to go back for MRCP. They are talking about pancreatic cancer. I pray that 'it' is something else. He is so strong for me ... even now loaded with pain killers he is out grinding feed for our cattle. He just keeps going. Never complaines. Please remember us in your prayers. This is a tuff one. Trying to keep up with your posts too. God bless you all ....may you have divine help with each hurdle you must endure. Peggy

    (((((Peggy)))))) I pray it's not cancer.
    Here I was, coming in here to post a complaint about how OLD I look since I got cancer, how much I've AGED in the past 5 months, how bizarre my eyebrows look...boo hoo hoo. Then I read your post, Peggy, and it really puts my little whinings into perspective. Big big hugs to both you and your husband. ((((Peggy)))). I can well imagine how terrifying this is for the 2 of you,...the possibility that you may go through this again, with roles reversed. Try not to go there yet in your mind, Peggy, not until you know for sure what's up. There's a good chance it WON'T be cancer, and you need to hang onto hope and just wait until you have a clear diagnosis.

    I don't know what a MRCP is, but I will look it up so my prayers can be specific and focused. Hang tight, dear girl. Is there any research or anything at all I can do to help?
  • Ro10
    Ro10 Member Posts: 1,561 Member
    pjba11 said:

    prayers please
    Just a moment for an update. We are in trouble here, back from the hospital yesterday with severe pancreatic pain constant still. Scheduled to go back for MRCP. They are talking about pancreatic cancer. I pray that 'it' is something else. He is so strong for me ... even now loaded with pain killers he is out grinding feed for our cattle. He just keeps going. Never complaines. Please remember us in your prayers. This is a tuff one. Trying to keep up with your posts too. God bless you all ....may you have divine help with each hurdle you must endure. Peggy

    Continued prayers for you and your family.
    Peggy my heart goes out to you and your husband. I hope the MRCP came back with just pancreatitis. It is still painful, but not as hard as if it is cancer. You both remain in my prayers.
    Deanna I hope your 2nd chemo session goes well for you. Marge have you got your CT scan results yet? I hope they are good. Linda hope you are feeling stronger, too. Theresa hope all is well with you, too.
    I am on day 10 after my first chemo, and have had not any problems. I was sooooo hungry for a week, but I guess a double dose of steroids will do that.
  • shortmarge
    shortmarge Member Posts: 291
    Ro10 said:

    Continued prayers for you and your family.
    Peggy my heart goes out to you and your husband. I hope the MRCP came back with just pancreatitis. It is still painful, but not as hard as if it is cancer. You both remain in my prayers.
    Deanna I hope your 2nd chemo session goes well for you. Marge have you got your CT scan results yet? I hope they are good. Linda hope you are feeling stronger, too. Theresa hope all is well with you, too.
    I am on day 10 after my first chemo, and have had not any problems. I was sooooo hungry for a week, but I guess a double dose of steroids will do that.

    Hungry
    I would get up at about 3 in the morning and have a bowl of cereal. Couldn't stop eating! Hopefully I will hear from my doctor today about the CT scan. Not worried. I'm am going to Florida on the 18th for some R&R. Great sunshine, great oranges and lots of family.

    All are in my prayers.

    MIND, BODY AND SOUL!

    Hugs.
  • Ro10
    Ro10 Member Posts: 1,561 Member

    Hungry
    I would get up at about 3 in the morning and have a bowl of cereal. Couldn't stop eating! Hopefully I will hear from my doctor today about the CT scan. Not worried. I'm am going to Florida on the 18th for some R&R. Great sunshine, great oranges and lots of family.

    All are in my prayers.

    MIND, BODY AND SOUL!

    Hugs.

    Marge ,Hope you get good news
    Hope the news is good so you can enjoy your trip to Florida. What part of Florida are you going to. Glad you did not come last week because it was so cold last week. It was warmer in Illinois than it was here. The fruit is wonderful here. Get some of Plant City Strawberries if you can. I am sure you and your family really need the R&R after all of you have been through. Hope you will be feeling well enough to enjoy the trip.

    Peggy you and your husband remain in thoughts and prayers. Hope you have some news by now as the unknown can be so anxiety producing.

    Linda hope you are feeling a little stronger now. Liver and raisins are high in iron. Don't know if you like liver or not.

    Deanna hope your second chemo treatment went well. I read in my Crazy Sexy Cancer Tips book that there is a "Bald is Beautifu" site. I have not checked it out yet. When you feel better you mibhgt want to check it out. I keep reading that "hair" does not make the person you are, but I bet it feels very different to not have hair. Mine has not started coming out yet. I am on day 11 post chemo and continue to do very well. I guess maybe because I have not had the radiation that you others had first might make a difference for me.

    Theresa I hope you are doing okay. We have not heard from you for a while.

    HUGS to all of you.
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    Ro10 said:

    Marge ,Hope you get good news
    Hope the news is good so you can enjoy your trip to Florida. What part of Florida are you going to. Glad you did not come last week because it was so cold last week. It was warmer in Illinois than it was here. The fruit is wonderful here. Get some of Plant City Strawberries if you can. I am sure you and your family really need the R&R after all of you have been through. Hope you will be feeling well enough to enjoy the trip.

    Peggy you and your husband remain in thoughts and prayers. Hope you have some news by now as the unknown can be so anxiety producing.

    Linda hope you are feeling a little stronger now. Liver and raisins are high in iron. Don't know if you like liver or not.

    Deanna hope your second chemo treatment went well. I read in my Crazy Sexy Cancer Tips book that there is a "Bald is Beautifu" site. I have not checked it out yet. When you feel better you mibhgt want to check it out. I keep reading that "hair" does not make the person you are, but I bet it feels very different to not have hair. Mine has not started coming out yet. I am on day 11 post chemo and continue to do very well. I guess maybe because I have not had the radiation that you others had first might make a difference for me.

    Theresa I hope you are doing okay. We have not heard from you for a while.

    HUGS to all of you.

    I didn't have my radiation first either.
    Hi, Ro! I didn't have my radiation yet either, and will be having that in April and May AFTER all of my 6 rounds of chemo. Every oncologist is different and I think they look at your surgery pathology and plan your treatment schedule based on what direction it looks like the cancer spread was trying to go. Both the radiation & chemo oncs wanted me to have ALL of my chemo first, even though I lobbied at the start of treatment and again after my 3rd chemo round for the 'sandwiched' schedule that you are having (and that Peggy had.) The radiation oncologist said he didn't want to compromise my bone marrow with radiation in case it would prevent me from having all 6 rounds of chemo, and I think my history of anemia prior to cancer may have played into the decision to do the radiation last. And they are clearly more worried about more distant mets for me, than mets in the more localized pelvic region where they feel pretty confident about my de-bulking surgery. The chemo onc keeps reassuring me that chemo kills cancer everywhere, whereas radiation only kills cancer where you point it, and we'll get to the radiation when we get to it. That chemo better be working!!! I have no choice but to believe that it is. For all of us.
  • deanna14
    deanna14 Member Posts: 732

    I didn't have my radiation first either.
    Hi, Ro! I didn't have my radiation yet either, and will be having that in April and May AFTER all of my 6 rounds of chemo. Every oncologist is different and I think they look at your surgery pathology and plan your treatment schedule based on what direction it looks like the cancer spread was trying to go. Both the radiation & chemo oncs wanted me to have ALL of my chemo first, even though I lobbied at the start of treatment and again after my 3rd chemo round for the 'sandwiched' schedule that you are having (and that Peggy had.) The radiation oncologist said he didn't want to compromise my bone marrow with radiation in case it would prevent me from having all 6 rounds of chemo, and I think my history of anemia prior to cancer may have played into the decision to do the radiation last. And they are clearly more worried about more distant mets for me, than mets in the more localized pelvic region where they feel pretty confident about my de-bulking surgery. The chemo onc keeps reassuring me that chemo kills cancer everywhere, whereas radiation only kills cancer where you point it, and we'll get to the radiation when we get to it. That chemo better be working!!! I have no choice but to believe that it is. For all of us.

    Did someone say hungry?
    I'm happy to hear that I'm not the only one with the munchies. I am trying to drink more and eat more fruits and veggies. I know I should be drinking a lot of water, but it is the one thing that tastes nasty. Like pond water! I have been using SF kool aid and crystal light which the chemo nurses said would be okay as long as I'm getting enough fluid. Even decaf tea is good is what I was told today.
    Hang in there Linda, and be patient. After only one chemo, my counts had dropped a lot, they said it was b/c I had already had the radiation. I so well know the feeling of wanting to finish this and get on with our lives. And... the chemo is working!!!!
    Marge, I am praying that the CT is good news.... the waiting is so hard. You deserve that vacation and I hope you have an excellent time. Think of us (just once), while you are walking on the beach. I'm so happy for you that you are getting a well deserved vacation.
    Love to all...
  • shortmarge
    shortmarge Member Posts: 291
    deanna14 said:

    Did someone say hungry?
    I'm happy to hear that I'm not the only one with the munchies. I am trying to drink more and eat more fruits and veggies. I know I should be drinking a lot of water, but it is the one thing that tastes nasty. Like pond water! I have been using SF kool aid and crystal light which the chemo nurses said would be okay as long as I'm getting enough fluid. Even decaf tea is good is what I was told today.
    Hang in there Linda, and be patient. After only one chemo, my counts had dropped a lot, they said it was b/c I had already had the radiation. I so well know the feeling of wanting to finish this and get on with our lives. And... the chemo is working!!!!
    Marge, I am praying that the CT is good news.... the waiting is so hard. You deserve that vacation and I hope you have an excellent time. Think of us (just once), while you are walking on the beach. I'm so happy for you that you are getting a well deserved vacation.
    Love to all...

    How Long
    How long did it take to get your results from CT Scan. I'm still waiting....
  • pjba11
    pjba11 Member Posts: 188

    How Long
    How long did it take to get your results from CT Scan. I'm still waiting....

    CT
    Hello Marge, Thank you for all of your support for my husband. My CT scans are read and presented to me within 4 hours. I do my bloodwork, use the same site for my scan IV then I go shopping for 4 hours then meet with my oncologist to review my scans / ca 125. I live 90 miles from the hosp. so they are great about letting this all happen in a day. I go again Friday for my overdue scan. My husband was in the hosp when I had to miss my appointment. Hello to all of you other sisters too. I am trying to keep up with the posts and hear the latest. God bless you all you are carrying me again. We are leaving for Mayo on Sunday. My husband is not doing well at all. Peggy
  • deanna14
    deanna14 Member Posts: 732
    pjba11 said:

    CT
    Hello Marge, Thank you for all of your support for my husband. My CT scans are read and presented to me within 4 hours. I do my bloodwork, use the same site for my scan IV then I go shopping for 4 hours then meet with my oncologist to review my scans / ca 125. I live 90 miles from the hosp. so they are great about letting this all happen in a day. I go again Friday for my overdue scan. My husband was in the hosp when I had to miss my appointment. Hello to all of you other sisters too. I am trying to keep up with the posts and hear the latest. God bless you all you are carrying me again. We are leaving for Mayo on Sunday. My husband is not doing well at all. Peggy

    So good to see your post
    Peggy, it's nice to see you post. I am sorry that your husband is not doing well. Know that my thoughts and prayers are with you and your husband.

    Marge, the last CT scan I had, I finally called the doctor's office for the results and they had them. They just hadn't called to give them to me.
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    deanna14 said:

    So good to see your post
    Peggy, it's nice to see you post. I am sorry that your husband is not doing well. Know that my thoughts and prayers are with you and your husband.

    Marge, the last CT scan I had, I finally called the doctor's office for the results and they had them. They just hadn't called to give them to me.

    I think it was 3 days before I got my CT scan results.
    I got my last CT scan on a Friday, and they had my results for me when I was getting my chemo the next Monday. For my first CT-scan it was 5 days I think; I remember calling a couple of times, impatient to know. (((Marge)))