no iodine diet how did you feel.

wknox
wknox Member Posts: 20
edited March 2014 in Thyroid Cancer #1
can any one offer insite on the two weeks prior to RAI treatment. Ive been having strange symptoms, like my hands swelling and an immediate weight gain of 10 lbs. any one else have any strange things happen. cant wait to hear from you..
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Comments

  • gmthul
    gmthul Member Posts: 19
    no iodine diet how did you feel
    I have had strange symptoms as well, but I think it is from the lack of levothyroxine, not the low-iodine diet. I have had chronically low calcium levels since my surgery, but now they are critical and I have had to eat Tums like candy to keep the tingling and muscle cramps at bay. I have also struggled with weight gain. Another survivor told me to eat ONLY when hungry and to eat about 1/4 your normal portion, then wait 15 minutes and only eat more if you are still hungry. So far using that method I have managed to lose weight instead of gaining during my hypothyroid phase.

    Good luck.
    Gen Thul
  • shortstuff00
    shortstuff00 Member Posts: 27
    Iodine diet
    I feel tired and get very board of this diet. I have been on it about 4 times now. I just eat lots of fruit and salads. coming off the meds make me very emotional.

    take care
    betsy
  • wknox
    wknox Member Posts: 20
    thank you for your response. its so important to have a support system.
  • wknox
    wknox Member Posts: 20

    Iodine diet
    I feel tired and get very board of this diet. I have been on it about 4 times now. I just eat lots of fruit and salads. coming off the meds make me very emotional.

    take care
    betsy

    thank you for your respose its so important to have asupport group. wknox
  • meagz
    meagz Member Posts: 5

    Iodine diet
    I feel tired and get very board of this diet. I have been on it about 4 times now. I just eat lots of fruit and salads. coming off the meds make me very emotional.

    take care
    betsy

    iodine diet cookbook
    I remember getting really tired of the diet and also gaining a lot of weigh, feeling really tired and depressed. Especially during my isolation after the rai, cause i was lonely and eating abnormal food.

    but then a friend suggested a cookbook you can find it at www.thyca.org or just search under google (low iodine diet) and its like the 4th option.

    Anyways it has a lot of really good ideas, ways to make things more appetizing. By no means does it replace salt but it helped a lot.

    you can also use kosher salt (its not iodized)

    hope this helps those of you that are going through this. I know its hard and frustrating so stay strong!

    My best wishes to you all!

    Meagan
  • wknox
    wknox Member Posts: 20
    rai
    hi thank you for your kind words of wisdom. im coming up to the isolation stage. somehow we will get through this as im going to try and stay in my home with the family staying secluded. thanks again. w knx
  • shortstuff00
    shortstuff00 Member Posts: 27
    wknox said:

    rai
    hi thank you for your kind words of wisdom. im coming up to the isolation stage. somehow we will get through this as im going to try and stay in my home with the family staying secluded. thanks again. w knx

    No Iodine
    When do you have your treatment? I am having mine on the 24th of this month. This is what I keep in my room to help me. I keep water bottles lots about 24 and I take Phylips of Magnisa, cramp free so I can keep it out of my bowels. You dont want it sitting in your bladder or your bowels. So the first day I drink tons of water and clean my self out. Then next day its lemon drops. That helps get it out of your saliva glans. I eat them all day for about two days. The first couple of day you want to take a lot of showers too. Get it out of your skin. Ok now its the third day and I start to eat real food wooo hooo and take calcium pills and drink lots of orange jucie. This helps with your potasium and calsium levels. When you start eating it wont taste very good but every day will get better. oh you need a good hand soap for the bathroom to wash your hands alot. We do every thing paper like paper plates and and platic knives and forks so you can just throw them away. Let me know if you need any help with any thing. Hang in there it goes by fast. I read books and catch up on tv. I will have a computer in my room this time so I can talk to family.

    You are in my thoughts

    shortstuff00
  • wknox
    wknox Member Posts: 20

    No Iodine
    When do you have your treatment? I am having mine on the 24th of this month. This is what I keep in my room to help me. I keep water bottles lots about 24 and I take Phylips of Magnisa, cramp free so I can keep it out of my bowels. You dont want it sitting in your bladder or your bowels. So the first day I drink tons of water and clean my self out. Then next day its lemon drops. That helps get it out of your saliva glans. I eat them all day for about two days. The first couple of day you want to take a lot of showers too. Get it out of your skin. Ok now its the third day and I start to eat real food wooo hooo and take calcium pills and drink lots of orange jucie. This helps with your potasium and calsium levels. When you start eating it wont taste very good but every day will get better. oh you need a good hand soap for the bathroom to wash your hands alot. We do every thing paper like paper plates and and platic knives and forks so you can just throw them away. Let me know if you need any help with any thing. Hang in there it goes by fast. I read books and catch up on tv. I will have a computer in my room this time so I can talk to family.

    You are in my thoughts

    shortstuff00

    Hi short stuuff, thank you so very much fo that information. I have my body scan tomorrow and i guess i'll GLOW the rest of the weekend, lolo... How was it trying to stay way from your family? I have three teenagers and a wonderful husband. I'm making meals today between naps of course. Who would have thought that the little heart shaped thing in your throat did so much work! I'm looking forward to more energy and more food options,definatly. I'm so cold lately, where you like that. Did you have a total thyroidectomy? This past Monday I had the first pill and scan, Tuesday I was showing 5% of still having cancer cells left. Back to the paper plates, did eveyone eat off of them or just you? Thanks for listening and the advise. God Bless you. wknox
  • shortstuff00
    shortstuff00 Member Posts: 27
    wknox said:

    Hi short stuuff, thank you so very much fo that information. I have my body scan tomorrow and i guess i'll GLOW the rest of the weekend, lolo... How was it trying to stay way from your family? I have three teenagers and a wonderful husband. I'm making meals today between naps of course. Who would have thought that the little heart shaped thing in your throat did so much work! I'm looking forward to more energy and more food options,definatly. I'm so cold lately, where you like that. Did you have a total thyroidectomy? This past Monday I had the first pill and scan, Tuesday I was showing 5% of still having cancer cells left. Back to the paper plates, did eveyone eat off of them or just you? Thanks for listening and the advise. God Bless you. wknox

    second scan
    I was hard being away from my family. My son was at collage in florida and I live in oregon. He came home for xmas on the 23 and I had my treatment on dec 26. After 3 days you can come out of your room but you need to stay 5 feet away from family. No hugs. So I would come out for a hour or so and sit in a chair away from them but in the same room. That was nice. But after the 7th day hugs all day. I only eat off paper plates because of the radiation. I was told to put them in a trash bag and when I was done they had to be sealed up for one month before they could be thrown out. We talked through the door and played games though the door. I have a ds hand game and my son had one and you can talk on them, write notes. We did that all day. I would wake up and my husband would be in my room by the door watching me. I would tell him to get out because it was not safe. He said he was just checking on me. So he didnt follow the rules all the way. He would come in to make sure I was ok. Take lots of showers and you have to wash your cothes and sheets. Some times if you dont take anough showers and change your sheets you can get a rash. I did not want that. I think I got a little one. Oh on the second or thrird day your jaws hurt not bad just a little from the treatment, just keep eating your sour candy and it goes away. Dont expect food to taste good for about 3 to 4 days after that is normal too. I went in right after xmas so I didnt get to have the big xmas dinner and when I did I didnt taste good. But it goes by very fast and you will be out and having so much fun with your family again. Its not so bad you will see. I would call them when I was hungry and it was nice being feed all the time. I think I was cold too. When you go and take your pill they will go over every thing again.
    Are you still on the diet???

    Take care

    shortstuff00
  • shortstuff00
    shortstuff00 Member Posts: 27
    wknox said:

    Hi short stuuff, thank you so very much fo that information. I have my body scan tomorrow and i guess i'll GLOW the rest of the weekend, lolo... How was it trying to stay way from your family? I have three teenagers and a wonderful husband. I'm making meals today between naps of course. Who would have thought that the little heart shaped thing in your throat did so much work! I'm looking forward to more energy and more food options,definatly. I'm so cold lately, where you like that. Did you have a total thyroidectomy? This past Monday I had the first pill and scan, Tuesday I was showing 5% of still having cancer cells left. Back to the paper plates, did eveyone eat off of them or just you? Thanks for listening and the advise. God Bless you. wknox

    low iodine
    Yes I had a total. They took both sides. I had cancer on both sides.
  • wknox
    wknox Member Posts: 20
    yes im still on that lovely no-iodine diet; the diet you wish you could brake but you know you can't. If only every diet could be so demanding we'd all be thin lololo..... May i ask are you getting ready to repeat the no iodine to be checked or do you still have cancer? Its ok if you dont want to answer i know its personal. I would like to thank you so very much for "all" your woderful information.
    After the body scan and radiation tomorrow we'll stop and get the milk of magnesa, oj and more lemon drops. TTYL.God Bless WKnox
  • wknox
    wknox Member Posts: 20
    Hi Shorty. How are you? Day
    Hi Shorty. How are you? Day 4 for me after receiving my Radioative pill. Thus far, hot, cold. tired, awake, a little upset stomach. I return Wednesday for my body scan. On Friday I start back on synthroid and cytomel, I can't wait..Just wanted to say Hello. Very bored today as everyone is either working or in school. TTYL.Wknox
  • shortstuff00
    shortstuff00 Member Posts: 27
    wknox said:

    Hi Shorty. How are you? Day
    Hi Shorty. How are you? Day 4 for me after receiving my Radioative pill. Thus far, hot, cold. tired, awake, a little upset stomach. I return Wednesday for my body scan. On Friday I start back on synthroid and cytomel, I can't wait..Just wanted to say Hello. Very bored today as everyone is either working or in school. TTYL.Wknox

    no iodine
    woo hoo Day 7 for me. ok I had a hard time. This time was very rough. I took my pill on the 24th and it was hard. My jaws hurt so much and they swelled up. I ate my sour candy but wow. It really ate my tummy this time. I think I still dont have my taste back. I can eat now but it dont taste good and my stomic still hurts. This was new and weird on the third day my eyes swelled up????? Like I said its day 7 and im still feeling bad. I started my synthroid on day 3 so hope it starts working. I think because I just had neck surgery and then my treatment 10 days apart was too much at one time. I hope this weekend I will feel good and get out of the house. Im so tired but you know how that is. I will go back to work Nov 7th and I work at Target so I need to get up and going because this is our busy time..... I have my scan on friday. I better have killed it this time, I really dont think I could do this a third time... I wonder why they had you wait on your synthroid????? I was told to start mine on the third day. hummmm Well good luck now we wait 6 months and start this again. I pray that they see nothing in 6 months.


    God bless you
    Shortstuff
  • shortstuff00
    shortstuff00 Member Posts: 27
    wknox said:

    yes im still on that lovely no-iodine diet; the diet you wish you could brake but you know you can't. If only every diet could be so demanding we'd all be thin lololo..... May i ask are you getting ready to repeat the no iodine to be checked or do you still have cancer? Its ok if you dont want to answer i know its personal. I would like to thank you so very much for "all" your woderful information.
    After the body scan and radiation tomorrow we'll stop and get the milk of magnesa, oj and more lemon drops. TTYL.God Bless WKnox

    no iodine
    My doc dont know if its cancer or just tissue left from the first time. My blood test come back with no cancer cells. but my scan said yes????? So they had me go have a ultra sound and they didnt see anything. I was having surgery on my neck, I was getting my c 5-7 disks removed and then new ones put in and then fuse them. I asked that doc to look at my thyroid to see what he saw when he went in there because he went in right above my thyroid scar.... He said no wow so I dont know what is there????? Cancer or just tissue. They are giving me the same dose that I got the first time so it must be something there.... So now I have two lovley scars to tell stories with lol. I try to come up with funny ones or scarry, It depends who im talking too. lol

    take care

    shortstuff
  • wknox
    wknox Member Posts: 20
    after the rai when do you start feeling like a human
    Hi shorty im so sorry your having such a time of things this time, i cant beleive your ready to go to work. I cant seem to get moving.
    My balance is off a bit as is my sight, taste, everything. I dont think i'll repeate any of this. The diet wasn't bad but as they say "The Cure is Worst than the Cause"..I took your advise and did a laxitive after i saw my full body can and were it all ended up.
    Shorty, your in my thought and prayers, may peace be with you. Please take care, Wendy
  • shortstuff00
    shortstuff00 Member Posts: 27
    wknox said:

    after the rai when do you start feeling like a human
    Hi shorty im so sorry your having such a time of things this time, i cant beleive your ready to go to work. I cant seem to get moving.
    My balance is off a bit as is my sight, taste, everything. I dont think i'll repeate any of this. The diet wasn't bad but as they say "The Cure is Worst than the Cause"..I took your advise and did a laxitive after i saw my full body can and were it all ended up.
    Shorty, your in my thought and prayers, may peace be with you. Please take care, Wendy

    no iodine
    Ok im still hafe dead. I still have no taste and having trouble keeping food down. I still have been hafe in bed or on the couch. I still dont feel good. I hope to be able to start working on the 7th, but I dont know. It takes you meds about a month to get in your system. Then your doc will lower or raise it. Make sure you get your blood taken every month to see your levels and get your meds right.

    Wendy I asked if anyone has done this three times and I was told yes. I told my guy that has done all my scans and gave me all my radio active iodine pills that I would not be seeing him any more after my scan on friday. He laughed and said see you in 6 months. I said no im done. wow I could not make it though it again.

    Let me know how you do on your meds and good luck on your next set of test in 6 month.

    Betsy
  • wknox
    wknox Member Posts: 20
    Hi Betsy
    I feel the same as

    Hi Betsy
    I feel the same as you I dont care to go through this again either. It wasn't the diet it was the radioative pill and being hypothyroid. Like i said the cure is worst than the cause!
    They have me on 150 synthroid and cytomel twice a day. I like the cytomel better than the synthroid as the synthroid gives me a headache. I still have no taste buds either and the buds i do have likes very rich, salty foods. Not something I usually eat.
    I'm actualy beginnning to warm up and feeling less tired so I know the meds are beginning to work. I'm not ready to go back to work as my equlibrium is off a bit.
    Betsy, I can't thank you enough for being here for me during a very scary time in my life. Your words were my strength, and I'm so grateful for you. If there is ever anything I can do for you please never hesitate. Thank you my friend. I'll be thinking of you when you go back to work and I'll be pulling for you! God Bless you, Wendy
  • hamster_53
    hamster_53 Member Posts: 9
    RAI
    I am scared and confused . Is it alright for me to hang out in my living room? My family and dog will be away for the 3 days.However when they come home will my house be a threat to their health ? Should I cover my couch ans bed with plastic ? Oh and I am aspirin allergic what laxitive should I use ? Help I go in Feb.6th .
  • erolyn
    erolyn Member Posts: 21
    wknox said:

    rai
    hi thank you for your kind words of wisdom. im coming up to the isolation stage. somehow we will get through this as im going to try and stay in my home with the family staying secluded. thanks again. w knx

    mood swings
    so I just got done with RAI (HOORAY!!!) and started my cytomel/synthroid today, but I'm still having some symptoms that concern me.

    I've been having mood swings and they're getting worse...I'm really really happy sometimes, and then kind of depressed. And I could handle all that, if it weren't for the fact that for the past few days when I wake up, I'm actually depressed to the point of physical pain. Like I feel sick to my stomach, and my chest hurts and it takes awhile before I can move. Is this normal? I mean I know there's nothing to be done about it but wait for the drugs to kick in, but it's kind of starting to scare me. Also I go back to college in a few days, and I don't know how I'm going to wake up and go to my classes like this...any insight here at all would really be appreciated.
  • wknox
    wknox Member Posts: 20

    no iodine
    woo hoo Day 7 for me. ok I had a hard time. This time was very rough. I took my pill on the 24th and it was hard. My jaws hurt so much and they swelled up. I ate my sour candy but wow. It really ate my tummy this time. I think I still dont have my taste back. I can eat now but it dont taste good and my stomic still hurts. This was new and weird on the third day my eyes swelled up????? Like I said its day 7 and im still feeling bad. I started my synthroid on day 3 so hope it starts working. I think because I just had neck surgery and then my treatment 10 days apart was too much at one time. I hope this weekend I will feel good and get out of the house. Im so tired but you know how that is. I will go back to work Nov 7th and I work at Target so I need to get up and going because this is our busy time..... I have my scan on friday. I better have killed it this time, I really dont think I could do this a third time... I wonder why they had you wait on your synthroid????? I was told to start mine on the third day. hummmm Well good luck now we wait 6 months and start this again. I pray that they see nothing in 6 months.


    God bless you
    Shortstuff

    hot flashes
    hey girl how are you feeling. we havent spoke since October. i just saw my endo dr. and low and behold she found some nogel i have an ultra sound and needle aspiration at the end of the month. hey got a question. did you ever have hot flashes after all this treatment? im burning up, help. oh my repeat no iodine and the uptake are in april. my neck feels really funky hard to swollow sometimes is this normal. caint wait for your response. ttyl. w knox