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Still NED

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

After my first ever colonoscopy 10 days ago (all clear) and my quaterly CT scans and blood work yesterday and today, I continue to dance with NED.

Since it has been 2 years since I stopped chemo with no recurrence, my onc wants to go to scans every 6 months instead of 3. Since my cancer does register on CEA, I will have bloodwork done after 3 months at least this first time.

I have developed an allergic reaction to the CT IV contrast and we tried the meds for it this time and they did NOT help at all. Within minutes of the contrast going thru my bloodstream, I was doing my best Larry the Lobster imitation (red from head to toe and very itchy). A couple of IVs of benedryl cleared it up, but we won't do that again. As I told the nurses yesterday after my reaction, "if this is the worst thing that happens in the next 24 hours, I'll take it"!!!!!!

I'm relieved, fortunate and very lucky!!!!!!

Lisa P.

PS. My post comes out Tuesday.

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

YEA YEA YEA YEA YEA YEA YEA!!!!!!

MAJOR NAKED HAPPY DANCE!!!!!!!!!

You rock, my dear!!!!!!!!

(I have reactions to the contrast, too...I guess we just can't be scanned anymore...'cause we are meant to be NED 4-ever!!!!!!!!)

BIG FLUFFY NED hugs!!!!!
Kathi

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

sounds great to me!!!!!!!

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Lisa, Lisa, Lisa!!!!!! Oh Happy Days!

Congratulations and whoopee!! I'm soooooo happy for you and for me, cause your my friend and I want you around here for a long, long time, because I need you to kick me in the Butt when my chemo is finished and I get on my nutrition life change!!!

Great news.

Love,

Kerry

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

You know I will do whatever I can to help you!!!!! Who knows, it might even involve a road trip........

Gives my best to Ms Maggie and Mr Drysdale.

Love, Lisa

PS. Only 1 more round until you get YOUR GOOD NEWS!!!!!!!!

shmurciakova's picture
shmurciakova
Posts: 910
Joined: Dec 2002

Yea! That is awesome news. I figured you would be fine but I know full well how nerve racking it is!
I usually get .25 ml of IV Benadryl before my scan and that takes care of the allergy issue. I had a couple of mosquito bite sized hives one time and ever since then they gave me Benadryl. It is kinda nice because then I am all drugged out and don't worry as much!
Did you mean your PORT comes out Tuesday? I did not know you still had one. Geez, get rid of that thing. You don't need it any more! Yea!
-Susan H.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Thanks Susan,

I took predisone and had benedryl beforehand but still reacted to it. The nurse said he has been working there 10 years and I was only the second one to react after doing the meds....special or weird....how bout both!!!!!

Yes I meant port. I get a little superstition and don't want to jinx anything but my onc was pretty persuasive.

Thanks again, Lisa

spongebob's picture
spongebob
Posts: 2599
Joined: Apr 2003

Congrats, Darlin'!

See what happens when you study? CONGRATS! Lemme know when you order your pink bowling shirt. You know, Actually I think they should be either blue or brown - I'm getting a little sick of pink... I mean, great cause and all, but PUH-LEEZ, let's spread the love around a little bit! I mean, it is called T AND A, right? Oh boy, do I see a great ad campaign in the offing if we could pair up colon cancer and breast cancer...

(I know, "Bob, go back to Jr. High School.")

Cheers!

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Funny you bring up the whole pink thing. We discussed it at CP4 and all agree that women get other cancers not just breast and they need to figure out how to spread the money around to others. I will not wear pink nor blue, I still want brown as our color!!!!!!

While at the hospital today, they actually had a warning about how many merchandisers are selling pink stuff without a penny going to any kind of breast cancer "stuff".

I wish they would let us do a bootie cancer commercial!!!!!!!

Hugs and thanks,

Lisa

finner
Posts: 232
Joined: Jan 2005

Thats brillo brillo brillo. I am so happy for you. Best of luck with port removal. Wow, that is such good news.

XXXXX
Margo

valeriec's picture
valeriec
Posts: 350
Joined: Oct 2006

Lisa,
This is awesome, wonderful, and amazing news! I am soooooooo happy for you. Good luck with port removal. I know all will be fine. Thanks for all your support with my mom..very much appreciated.
God Bless,
ValerieC

spongebob's picture
spongebob
Posts: 2599
Joined: Apr 2003

Heya, Valerie -

How's mom doing?

betina61's picture
betina61
Posts: 644
Joined: Aug 2006

Congratulation Lisa,so happy for you, is so good to share these wonderful news.

DK2006
Posts: 126
Joined: Jan 2006

Congratulations!!
Thanks for sharing this great news!!
Best wishes,
Donna

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kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

I was reading Vogue magazine this afternoon and it appears that "brown" and various shades of "brown" are the IN color this year!!

Kerry

spongebob's picture
spongebob
Posts: 2599
Joined: Apr 2003

A friend just brought me a bag of chocolate covered macadamia nuts from Hawai'i. I LOVE them - I tae half the bag in one crazy sitting (I guess I lost my mind for a moment) - TELL ME about different shades of brown....!!!

Uh-Oh... gotta RUUUUuuuunnnnnnn

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

wellllllll, there's light brown, dark brown, medium brown, light tan, dark tan, medium tan. Some browns come with a tinge of green (Yuck) or red.

We can wear it proudly!!

Kerry

spongebob's picture
spongebob
Posts: 2599
Joined: Apr 2003

Yep - seen 'em all today. Even the shade with a tinge of green. Fortunately I wasn't WEARING them!

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

That's wonderful news Lisa. You are an inspiration to the rest of us in how one can change the diet and lifestyle and kick the beast in the ***.

Dick

stage4mom
Posts: 22
Joined: Aug 2006

Congratulations, Lisa, I am so happy for you. You are an inspiration to us all.

Jane

Betsydoglover's picture
Betsydoglover
Posts: 1254
Joined: Jul 2005

Lisa -

I am SO HAPPY for you. Go out and paint the town!

You are my inspiration. I am three weeks shy of one yearsoff chemo - two years off and NED is so awesome!

Get than damn port out Tuesday and start putting this behind you!

Happy Dance (as they say)

Betsy

HowardJ
Posts: 484
Joined: Jan 2005

Great news!!! Thank you for sharing!

Howard

fedester
Posts: 757
Joined: Jul 2004

hey lisa,
great news, go celebrate and have a good time.
you go girl.
all the best
bruce

JADot's picture
JADot
Posts: 720
Joined: Jan 2006

Whoohooo!!!! You go girlfriend!!!!

Whatever you've been doing it must be working great! So keep on keeping on Lisa!!!!

You rock, Lisa!!!! Huge congratulations on NED.

Cheers,
Ying

Glv49
Posts: 206
Joined: May 2005

That is such wonderful news... Congratulations.. and hopes for many years of NED!! Get that port out, just had my out last week.. and got my stitches out yesterday!

Gail in PA

jams67's picture
jams67
Posts: 927
Joined: May 2006

Yeah! I'm so glad your results are negative. I too, am getting a CT every 6 mo. now, and it makes me feel a little exposed. I rejoyce and am apprehensive at the same time. It's a long time to not know what is going on in there. I am allergic to the dye also. I took steroids and benedryl before the test and didn't have much of a reaction, just felt a little sluggish for a few days after. jams

oneagleswings
Posts: 425
Joined: Jan 2005

Oh Lisa..I am so very very happy for you.
Blessings
Bev

mikew42
Posts: 114
Joined: Mar 2004

Lisa,

That is such great news. Congratulations on the 2 year mark. Mike

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Thank you to everyone and I am not sure how good I will be able to type but my oncologist called about an hour ago. I could tell by his voice that he was pretty happy. As I said before, my cancer shows up on the CEA tumor marker. It was the lowest it had ever been in Feb of this year @ 2.1 but then went up to 2.3 in August, I watch it like a hawk!!!!!!

BUT IT WAS ONLY 1.2 TODAY!!!!!!! HUGE !!!!!!!!!

I have company coming tomorrow and my house is clean so I am going to take a nice hot bath and enjoy the moment and can't wait to hear who has good news next!!!!!!!

Again, thanks everyone!!!!!!!

Lisa P.

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

((((((((lisa))))))))) Ron.

hicarm
Posts: 57
Joined: Nov 2005

Lisa, I know I am a bit late to congratulate you. But I am SOOOO happy for you. You are an inspiration,and such generous spirit helping others. I wish you all the best.

Carm

jsabol's picture
jsabol
Posts: 1156
Joined: Dec 2003

Hi Lisa,
Hope it's not too late to pile on for the celebration. CONGRATUALTIONS!!!!!! Wishing you years and years of all the best, Judy

usakat's picture
usakat
Posts: 625
Joined: Jul 2006

Hello Lisa,
Excellent news! Sorry to hear of your reaction to the contrast, but very happy to hear of you and NED. Its always great to hear such good news. Thanks for the update.
Hugs, Katie

CAMaura
Posts: 719
Joined: Feb 2005

Incredibly happy for you, Lisa! I am on the pretreatment right now (for tomorrow's CTs)...I am so sorry that you had a reaction. The Prednisone really sucks - maybe you are lucky to NOT have it again...
Best to you and have a good celebration - Maura

crazylady
Posts: 544
Joined: Jun 2004

Hi Lisa,
Congratulations on your continuing NED! I hope you're planning a great celebration.
Jamie

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

Woohoo!!! keep that good news coming.

Where I work you are given 2 doses of oral medrol the night before and the morning of the scan. It usu. helps.

Maureen

kangatoo's picture
kangatoo
Posts: 2115
Joined: Feb 2004

Sorry Scouty....I'm last again as usual but I guess better late than neva. CONGRATS honey!We both wish you to be NED forever gal!
btw......yah sure yah wouldna consider white with "brown stripes?" huh? huh?...lol!
huggs...Ross n Jen

goldfinch's picture
goldfinch
Posts: 737
Joined: Oct 2003

Lisa,
I'm soo happy for you, but I must admit it's due to some selfishness on my part. If you can be victorious, so can I. My onc told me that he's never seen naturopathic medicine work for this. I told him I'd like to be his first (I should have said I "intend" to be his first, because I do). I had a cat scan last week. Shows small growth in all the lesions, but I kind of expected that. I hd the scan earlier than I wanted because of some symptoms i was having (a cough and chest heaviness). Of course the symptoms were gone by the time of the scan. My next scan is Jan 2. I intend for things to stabilize or start shrinking by then. I will have been on the naturopathic stuff for a good solid 3.5 months.
Anyway...COngrats!!! Enjoy. Sorry to hear about the trouble with the imaging agent.
Mary

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

WOOHOO!!!!!

I raise my Phospho -Soda to you (colonoscopy on Monday) in celebration of a job well done!!

You have worked so hard scouty and I am so very proud of you.

to a long long life.

cheers!

peace, emily who can't drink the stuff either

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

Lisa,

I'm so proud of you! Congrats on your success!!!
May you have many, many more!!!!!!!!!!!!!

Hugs,
Stacy

Kanort's picture
Kanort
Posts: 1275
Joined: Jan 2004

Dearest Lisa,

Fabulous news, Lisa!!!! And the CEA level......Awesome!!! Getting the port out will be a freeing experience. You deserve all of these great results because you worked so hard to earn them. Take that road trip so we can celebrate with you.

Love,

Kay

tkd3g
Posts: 768
Joined: Aug 2004

Hi Lisa,

I am allergic to the contrast as well. Kind of stinks, but what are you gonna do?!

So, CONGRATULATIONS!!!!

NED is getting to be quite the dancer!!!

So happy for you, Lisa. Keep up the good work.

All my love,

Barb

taraHK
Posts: 1961
Joined: Aug 2003

Congratulations. Just thrilled by this news -- and by your follow-up good news. Yipee!!!

alta29's picture
alta29
Posts: 435
Joined: Mar 2005

Sweet !!!!!!! God bless
Ileana

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