The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

7 month old was diagnose with ALL

LilySwallow
LilySwallow CSN Member Posts: 1
edited March 2014 in Leukemia #1
Hello,
My daughter was diagnosed with ALL in December and I am having a hard time finding other parents with an infant with Leukemia. I am just looking for someone to share the experience with.
Thanks
Amy
Like Care

Comments

  • ammc30
    ammc30 CSN Member Posts: 2
    #2
    Amy,
    My name is also Amy and my Mom was just diagnosed with ALL philadelphia Chromosome positive type. Our roles are reversed and I can only imagine what you are going thru as I am a Mother of 2 (age 12 and 9). What hospital are you at and do you know the full diagnose's? I am new at this forum and to ALL also. I would love to talk.
    Like Care
  • Waving
    Waving CSN Member Posts: 43
    #3
    Can I suggest also trying the forums on the Leukemia & Lymphoma Society website at www.leukemia-lymphoma.org/hm_lls. If you go to the home page and click on the link Discussion Boards, that will take you to their forums index page and you can scroll down the page to find a suitable forum for your situation. One is called 'When a Child Has Cancer'.
    Another website you may find valuable is "ACOR's Leukemia Links" at http://leukemia.acor.org .
    Like Care
  • Angelbaby3
    Angelbaby3 CSN Member Posts: 1
    #4
    Hi,
    My 2 year old was diagnosed with ALL pre B cell in September of 2005. I would be glad to talk with you and it would help me out as well to talk with someone who is also going trough the same thing with a young child.
    Right now my daughter has just finished her reinduction 1 and we are currently at home for treatment. How far along is your daughter? What is her name so I can add her to my daughters prayer list.
    My daughter is Carrie and she is now almost 3 and is doing very well.
    Jennifer
    Like Care
  • Tranpham
    Tranpham CSN Member Posts: 2
    #5
    My 7 year old son was diagnosed with ALL in October of 2005. Now he is a high risk group and needs a bone marrow transplant in the near future. A world-wide search for a compatible donor is under way.

    He is currently at home. I'm very glad if many parents change us more experiences.
    Thanks!
    TranPham
    Like Care

Discussion Boards