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newly diagnosed

katedev
katedev Member Posts: 1
hi, i'm new to this site. i was diagnosed in may with non-hodgkins lymphoma. i have an indolent, or slow-growing, type and they are just watching it for now. is there anyone there who has this type? it seems so scary to not treat it and to just watch it. i have 4 children and i am so scared!

Comments

  • angewalt
    angewalt Member Posts: 8
    My husband has non-hodgkins lymphoma B-Cell. We have been fighting the cancer for a year now. He is currently having a stem cell transplant which will hopefully put him in remission. I have never heard of any one just watching cancer grow. Usually they want to get it as soon as possible. I'm not trying to scare you even more but maybe you should get a second opinion. You shouldn't be scared once you leave the Drs. You should feel a little better. I'm here if you want to talk more. Ange
  • mariaru
    mariaru Member Posts: 6
    Hi. I am not familiar with this type of "indolent" cancer but I did have Non-Hodgkin's lymphoma. I see that it has been about a month and a half since you wrote your message. Any new info medically speaking? Do they really feel it's stable? How are you feeling? Would you consider a 2nd opinion? Write me if you'd like to talk more about it.
  • patti5
    patti5 Member Posts: 1
    Hi. I was diagnosed with NHL, intermediate growing, 4 years ago. I have been in remission almost 3 years and have a 5-year old daughter. I am now 35. It is rare (seems to me) to come across a mom diagnosed with this. I hope you are well. I know how hard it is and if you ever have questions or want to talk with another mom who went through chemo, please email me at [email protected] God bless! Patti Pridham
  • jjhull
    jjhull Member Posts: 1
    angewalt said:

    My husband has non-hodgkins lymphoma B-Cell. We have been fighting the cancer for a year now. He is currently having a stem cell transplant which will hopefully put him in remission. I have never heard of any one just watching cancer grow. Usually they want to get it as soon as possible. I'm not trying to scare you even more but maybe you should get a second opinion. You shouldn't be scared once you leave the Drs. You should feel a little better. I'm here if you want to talk more. Ange

    I had a stem cell transplant a year ago for non-hodgkins. How is your husband doing after his?
  • rllk
    rllk Member Posts: 3
    I was diagnosed with stage IV non-Hodgkins Lymphona(slow growing type). However since mine was so advanced and wide spread I had 8 months of chemotherapy. I have been in remission since my last treatment in Dec. 1997. I understand you anxiety about just watching it. I know in some ways it was a relief to have the chemo because I felt that I was doing something about it. However, I know you want to wait on treatment as long as possible since time between treatments becomes less and less until it no longer responds to treatment. Also, it seems as if each day they are making strides toward better and better treatments. I know you are scared, I am too! Hang in there.
  • marypax
    marypax Member Posts: 4
    When I was diagnosed with NHL, my case was presented at a tumor board-
    a group of doctors sitting around discussing cases, and giving opinions. One doctor suggested just watching it, another said chemo and radiation, and still another advised to start with just radiation. I did just radiation; but if I were you, I'd question your doctor why he feels watching it is the best option. I would also get a second opinion, or even a third if the first two don't agree.
  • hattie
    hattie Member Posts: 2
    How are things going for you? My family is faced with this too and I am wondering how you have faired.