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Introducing myself

Shella677
Posts: 8
Joined: Mar 2021

I just had my first oncologist appt today to go over my final biopsy results and ct scan of my neck that was ordered from my ENT.  it was found I have cancerous nodes and  the cells likely stem from my lung as there is also a 1.6 cm lump on my right lung that can be seen from the neck scan. Next step for me is a PET scan and MRI of my brain. My biopsy is also  being sent away for ngs, which I am not familiar about.  I asked if he were to estimate stage  he said stage 3c or 4.

Being a 39 year old  mom, wife , daughter, sister, etc it is hitting hard as I know it has for all of you. The grief hits in waves and when it does it is debilitating.  I try to remind myself I don't have all the answers yet nor a treatment plan but it seems the news  I hear just keeps getting worse and worse.

At this point I will take any advice, success stories, or resources. In the meantime I will be browsing this forum. Thanks for having me!

 

hollybk63
Posts: 1
Joined: Jun 2013

Hi Sheila- I had seen your original post on the lymphoma group but saw that the diagnosis had been changed,   What are they saying that your lunf cancer is?  You had no scheduled treatment plan the last time you posted but it has now been almost 2 weeks.   I hope that you are doing well.   Prayers. Keep us updated.   Holly 

Shella677
Posts: 8
Joined: Mar 2021

Hi Holly,  it is non small cell lung cancer stage IV.  MRI was clear and PET scan showed 1 spot on my right lung as well as many lymph nodes scattered about, diaphragm up. I saw my oncologist today and we are still waiting on my biomarker results to come back to determine treatment. Right now looking at chemo/immunotherapy and radiation down the road. Or chemotherapy pill, radiation down the road. He also threw in the second opinion today for clinical trials. So I will be visiting the University of VA to see if there is anything available for me. So no treatmen plan yet, but soon! Thank you for thinking of me

br_bernardo's picture
br_bernardo
Posts: 25
Joined: Jun 2021

Praying for you - give us an update if possible!

Patty2222
Posts: 1
Joined: May 2021

Has anyone had side effects of swelling, cellulitis, or severe anemia on Keytruda? I am new here

Holymoly1
Posts: 1
Joined: Jun 2021

Hi Patty.. I am new here also. I have stage 4b lung cancer with two small metastasis to two ribs. I have been getting Keytruda along with others since May 21,2020 so over a year. A couple months ago my ankles and feet started swelling a little. My PCP gave me a prescription of furosemide which is a water pill and is controlling it nicely. My oncologists stated it could be a side effect of the chemo.

Gottocare
Posts: 1
Joined: May 2021

Hi. Just joined. I feel for everyone. Hope to get to know some of you. As I feel pretty alone as I'm sure many of you feel. I guess I'm just here for support and conversation.

I have stage 4 nsc been on keytruda for 1 yr 6 mos. with the grace of God I'm still here. But the big issue ? J haven't told my daughters (Early 20's) They are thriving and happy. My question is..... is it so bad not to tell them when I'm good right now? what is the point? Idk any advise? Thanks a lot. Peace

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