CSN Login
Members Online: 3

You are here

Great news!

CSN is getting an upgrade. All of your posts will still be here, but the website will have a new look, new features and be mobile-friendly. To prepare for the changes, the site will be down briefly at the end November. We’ll continue to provide updates as we get closer.    

The port

SnapDragon2's picture
SnapDragon2
Posts: 585
Joined: Nov 2019

I got the port out and it feels so good!

Trubrit's picture
Trubrit
Posts: 5530
Joined: Jan 2013

That is good news. 

I hope you heal well, and soon it will be nothing more than a little scar on your chest. 

Tru

abita's picture
abita
Posts: 1074
Joined: Dec 2017

Awesome!

Erica2016's picture
Erica2016
Posts: 28
Joined: Oct 2016

Thats great news! 

SnapDragon2's picture
SnapDragon2
Posts: 585
Joined: Nov 2019

Thanks you all!

I have to say I am finally getting good sleep now.  The port was so uncomfortable.

beaumontdave's picture
beaumontdave
Posts: 1178
Joined: Aug 2013

Yeah, I left mine in there longer after it wasn't needed, as my onc said they'd given chemo's best shot with the FOLFOX, after the original colectomy. They took it out at the second liver resection, so I suppose that showed some confidence, but I don't really know, as it seemed like I was the one reminding theem that it was still there..........................................Dave

SnapDragon2's picture
SnapDragon2
Posts: 585
Joined: Nov 2019

Mhmm,  I would remind them and request it to be flushed and was either ignored or they just thought it wasn't important.  Maybe more money to be made if/when it gets clogged and they can send you down the hall to the other specialist for the unclogging procedure.  Makes me wonder.  Idk.  My surgeon asked me last time it was used for chemo and last it was flushed which kind of took me off guard.  I told him last June and hasn't been flushed since then.  He said "Ya wow, OK, lets get it out."  I was so excited I hugged him :)  

SandiaBuddy's picture
SandiaBuddy
Posts: 1200
Joined: Apr 2017

Congratulations!

myAZmountain
Posts: 421
Joined: Apr 2018

I got "DE-Ported"  three times !  So nice when they are removed! Congrats!

 

abita's picture
abita
Posts: 1074
Joined: Dec 2017

that is kind of sad. I was looking to schedule my port removal, and I was sucker punched with the recurrence. 2 and a half years ago.

SnapDragon2's picture
SnapDragon2
Posts: 585
Joined: Nov 2019

Three times!!!  I wonder if you might hold the record :)

I think thats the way to go if possible.  Hopefully I won't ever need one again.

Annabelle41415's picture
Annabelle41415
Posts: 6733
Joined: Feb 2009

Mine hurt the whole time as I'm on the thinner side and it was protruding from my collar bone.  Bet you feel liberated now.  It's a great feeling.  Congratulations.

Kim

DanNH's picture
DanNH
Posts: 161
Joined: Feb 2021

I am happy for you and pray that you will never need another! God bless!

SnapDragon2's picture
SnapDragon2
Posts: 585
Joined: Nov 2019

Thanks you all!  It is a great feeling.  Actually slept really good on my right side last night.

Dan, stay ahead of/beat back the beast doing all you are doing.  Keep looking for answers to improve.  You don't find all the answers in one place.  Keep the extensive bloodwork on a datasheet to look for trends good and bad for more improvements where needed.  I wish your wife the best!

DanNH's picture
DanNH
Posts: 161
Joined: Feb 2021

2nd Chemo Monday! Thanks for the inspiration!

yetti's picture
yetti
Posts: 70
Joined: May 2019

Hello ! Does anyone know how long a person is able to keep a port ? Or how long it is safe to have one ?  I  Am actually a stage 4 endometerial cancer survivor but I read all the forums !  I saw this about the port and was interested !   I guess Im the opposite I'm in no hurry to remove the port !  I have always had an issue with blood draws ! I'm considered a hard stick. I have always had anxiety over it most of my 59 years of life ! My port has only had a few issues, I had to go to get a port o gram to determine why they were not able to draw blood from it !  I have had my port since  July 22 2018, I ended up with a pulmonary embolism Bc of the cancer ♋️  I had to stay in the hospital for a week with an Iv of med to dissolve the pulmonary embolism in my lung ! It was seen on a ct guided biopsy (out  patient ) and then was admitted through ER, i only had the clothes on my back !  I had painful blood draws done every 5 hrs ! Which collapsed every vein I had I was black and blue,  purple from my hands to my elbows ! They couldn't even find a vein to use for iv to do a IVC filter implant and the PORT , the had to send me back to my room for a very painful procedure , they used a machine to find a large vein in my upper arm and put in a high speed catheter in which to use for IVs  and I told them any and all blood 🩸 draws from that point on !  The very next morning the lab draw person shows up to poke me several times in my arm and top of hand !  I told her you are going to access thie catheter for labs ! If you cant do it send some body else who knows how  !  I still continue to require port access for ct scans , pet scans, mri , and even for the colonoscpy  i had sept 2019 I arrange it in advance !  Then  one time they tried to find a vein in my arm  ! I stopped them , "I HAVE A PORT ACESS IT , look at the instructions that you had for 2 weeks  !  No port acess no procedure,  they tried to say there was no one who could acess it  ! I said port acess was pre arranged! If you can't  I won't do thr procedure today and I start getting up to leave  ! Guess what ? They manage to find someone PDQ !    I have also learned from this cancer that you have to advocate for yourself !! I also have my port flushed every 6 weeks  I would have never survived chemo without it !  Sincerely Yetti 

 

     

SnapDragon2's picture
SnapDragon2
Posts: 585
Joined: Nov 2019

I have no idea how long you are suppose to keep the port after chemo.  A nurse in my surgeons clinic has one.  She told me it was recommended for her to keep it 5 yrs with flushes every 6wks.  She gets it out this summer.  It might depend on type of cancer and stage, Idk.  In my case the cancer center I went to was bare min.  It was just a chemo filling station is the best way to put it.  I was ignored or brushed off and it was my surgeon who brought up removing it.  

YES, you have to be your own advocate!  Good for you!  Learn all you can and use that knowledge for the best outcome.

Trubrit's picture
Trubrit
Posts: 5530
Joined: Jan 2013

I think it depends on your Oncologist. 

My Oncologist wanted my port out after my first clear scan. He said it is dangerous to keep in, as it ups the chances of blood clots.  

I had mine removed promptly, and then my next scan was not so favourable, and discovered metastesis. Luckily for me, I didn't need to get the port re-installed. 

It is wonderful to be port free. Mine was never comfortable, being situated right under my bra strap.

I still have twinges in the area where it was placed, so I'll never be able to forget about it. 

Tru

 

Annabelle41415's picture
Annabelle41415
Posts: 6733
Joined: Feb 2009

Guess it all depends on treatment.  If you are continuing with treatment then it might be a good thing to keep the port in.  If you aren't using it anymore, your oncologist will let you know when it can come out.  Also, it is up to the doctor about flushes because not all of them recommend the same protocol.  My doctor took mine out one month after my treatment ended and a clear scan.

Kim

bmorton
Posts: 10
Joined: Feb 2021

I spoke to a woman the other day who has had her port in for 22 years.  I have had mine for 2 years.

 

SnapDragon2's picture
SnapDragon2
Posts: 585
Joined: Nov 2019

What is the reason for having it 22 yrs?

BTW:  the dr who put mine in said he was the only one who could remove it.  I don't think so.  My body my port bought and paid for, my property :)

Mine was causing thyroid irritation and inflammation (might be why thyroid levels are out of whack and deveoloped some nodules), causing stenosis in the main vein that also leads to your heart.  Dangerous in my case.

Annabelle41415's picture
Annabelle41415
Posts: 6733
Joined: Feb 2009

That would be dangerous.  Some people just don't adjust well to the port either.  They have infection problems, blockage, or it just malfunctions.  My port hurt terribly as it was right on my collar bone and anytime it was touched it would send pain through it. 

Kim

yetti's picture
yetti
Posts: 70
Joined: May 2019

22 years !  I'd be 81 if I waited till then !  I think I'd be comfortable. Removing it at my five year cancerversay !  i Was Dx June 28 of 2018. It will be 3 yr cancerversary June 28 2021 so June of 2023 is 5 years !  

Kazenmax's picture
Kazenmax
Posts: 454
Joined: Feb 2016

Good for you!

Its such a good feeling!

k

bmorton
Posts: 10
Joined: Feb 2021

Reason for having:  Maybe fear of cancer recurrance?

 

yetti's picture
yetti
Posts: 70
Joined: May 2019

I don't keep the port. Due to being afraid of a reccurence!  I keep it to use for blood draws and ct scans or pet or any thing requiring vein access ! The reason is Bc I will not be using this port for treatment again Bc I don't plan to have treatment.  Chemo or radiation if it recurs. I did it once It was the worse experience of my life and 👨‍🦲 I refuse to do it again !

bmorton
Posts: 10
Joined: Feb 2021

I am not sure I understand?  Why would you not want the port for future access in case treatment is needed? Many of us, for sue, are traveling the same path!

 

yetti's picture
yetti
Posts: 70
Joined: May 2019

Because I'm not doing more chemo !  Regardless if it recurs it recurs  But Im not doing chemo again !  Not hard to understand needed or not needed I've done chemo. Worst exp in my life won't do it again !

Subscribe to Comments for "The port"