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33 treatment

Tom M.
Posts: 212
Joined: May 2019

Had my 33rd treatment today. Even though I handle it all well, how long does this go on? My blood works, good Cea is in normal range 3.9. There will be no liver resection thanks to the lung nodules. Have anyone else had this many treatments?

abita's picture
abita
Posts: 1070
Joined: Dec 2017

I haven't counted, but I have been getting chemo since Nov 2017, with short breaks for my surgery, when I was supposed to be "cured", and when I switched oncologists. So. I feel like I must have hadd 33 by now. Probably many more than that :)

abita's picture
abita
Posts: 1070
Joined: Dec 2017

And in answer to what I think was the hidden question, yes, it feels like a hamster wheel. I feel like my life resets every 14 days. I feel immense pressure to get things done on the last couple days because I will be wiped for the first 5 or 6.

Tom M.
Posts: 212
Joined: May 2019

I know Abita, the day after my FU5 bag removal I get super tired for 2-3 days then recharge and before you know it time to go again. I guess we should be greatful for handling it well. Some have it worse.

abita's picture
abita
Posts: 1070
Joined: Dec 2017

true. It is like when some people ask me why I never seem angry like why me. I say, little kids get cancer. so many get cancer. Why not me? I feel like it is important for me to stay positive and to realize that my situation is better than many others. 

I am not on folfox anymore, but yeah, those are my worst days also. I think it is the effect of the chemo, and maybe the steroid wears off. I just schedule in a lot of sleep time those days. Soemtimes on those two days, I wouldn't even brush my teeth or hair. Just grab coffee, feed the cats, and crawl to my desk to work until quitting time, then pop food in the microwave, feed cats again, realize my teeth are yucky and brush them, then get in bed

 

NewHere's picture
NewHere
Posts: 1340
Joined: Feb 2015

Not all the same.  

12 FOLFOX

24 FOLFORI (most with Avastin)

10 LONSURF

So I would bet at least 42 (in case FOLFORI overestimate).  36 were through my port.  LONSURF is a two week cycle of pills.  I also was in a trial where I probably had about 1/2 dozen infusions.  But I am not counting those.Laughing

yetti's picture
yetti
Posts: 65
Joined: May 2019

I really have to say how brave you both survivors are ! Im also a cancer survivor. Had chemo,  hysterectomy ,more chemo. Which was every 3 weeks aug -nov end. 2018 Break until jan16. 2019 then 3 more feb to March 29 last chemo !  Then a 2nd opinion Bc the onc wouldn't tell me how many more chemos.! Got a NED report.  I was ready to just quit chemo Bc I felt like it was never going to end !  I was determined to be done !  So I understand sorta what you both have gone through, my hat is off to you both !

SnapDragon2's picture
SnapDragon2
Posts: 582
Joined: Nov 2019

All 3 of you are tough cookies for sure!

I've had 6weeks 5FU pump, 7 folfox's, 8 mths so far of ADAPT protocol.

Tom M.
Posts: 212
Joined: May 2019

We're all tuff and we all got each others backs.

PamRav's picture
PamRav
Posts: 323
Joined: Jan 2017

I hear you! I was diagnosed at the end of December 2016. Since then I have had 39 chemo treatments. At various times and  various cocktails. So I've tolerated better than others, I'm just coming off of six months of four Fox which was a very tough one in my opinion.  I've had short periods of remission the first one was almost a year but they've been getting shorter and shorter. Right now we're just playing whack a mole, I have a scans every 3 months and that determines if I have chemo or not. I'm tired of doing chemo also, but I have to remind myself to be happy that it's still working.

abita's picture
abita
Posts: 1070
Joined: Dec 2017

I am sorry for your long term chemo, but I am happy that you get some reprieves. I hope those are long enough to get some stuff done, and to do some things that bring you joy that might be harder to do during chemo fatigue.

ThomasH's picture
ThomasH
Posts: 104
Joined: Jun 2016

Like NewHere I've had 12 FOLFOX, and I'm now up to 33 FOLFIRI and counting.

 

I can so relate to the "Life resetting every 14 days" I have such a regular cycle that it has almost taken on a convenience of knowing how I will be out of commision on any given day.

chemo day 1-3 is almost nothing but sleeping

day 4-5 is a mix of sleeping and starting to do more things, but I have a lot of intestinal inflamation on these days so doing anything is pretty uncomfortable. also I'm usually tied to a bathroom for the first 6 days or so.

I always get a migraine on day 7, plus or minus a day

Day 8-10 I have bleeding sinuses and mouth sores to varying degrees, but the inflamation has generally subsideed.

My second week is the good week, and I can do most normal things again.

 

Is anyone else this regular?

Thomas

abita's picture
abita
Posts: 1070
Joined: Dec 2017

Absolutely. I know how each day will be. My most fatigued days are the 4th and 5th though. 

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

That is a lot of treatments, however I'm so relieved to hear that you are tolerating it well.  There are some that can do that and continue working, while others can't handle it at all.  Keep up fighting spirit and attitude.  Wishing you the best.

Kim

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