MMMT Uterine Cancer

I was diagnosed with MMMT Uterine cancer in Dec. 2019.  I had a radical hysterectomy in January 2020 followed by 3 rounds of carbo/taxol chemo and 25 external radiation and then another 3 rounds of chemo.  After the surgery it was diagnosed at stage 1B but I was told that this protocol was recommended for all stages of this cancer because recurrences can happen at any stage.  As of Dec. 17th, 2020, following a CT scan and then an MRI, I was notified that there was no evidence of disease.  What a wonderful Christmas present!  I will now have a CT scan every 6 months to check for a recurrence.  I have found that the best resource for MMMT is a Facebook group that has over 900 members who either have this type of cancer or are supporting someone who does.  These women are from all over the world and share their experiences and treatments and support.  Our moderator, Gillian Broome even keeps statistics which she shares with the members periodically.  The statistics from this group are much more positive than those you may find online.  I urge anyone with MMMT to join this group - you will not regret it!!

Thank you, terry48.  I think I am in the minority of those not to have a FB account.  I would definitely get one to get the information and support you have told us about if I had MMMT.  Such a rare cancer to have such a focus is wonderful to hear.  

What a wonderful way to end the year!  So glad you are NED!