I have a question! Has anyone here smoked weed or ate edibles during the chemo treatment? At home of course. Just curious if it actually helps/works. Thank you!
This question came up with my medical team during my R-EPOCH chemo. While they were legally constrained from providing recomendations, they did emphasize what seemed to be a very important points: Do not smoke anything! They did mention that there is a synthetic prescription version used for controlling nausea/vomiting: Marinol. Never needed to pursue this, so cannot offer further input.
I would also be asking my team about the total-body itching, if that is still an issue.
Thank you Evarista. I was just curious! Going to see my Hematology Oncologist next week. My chest has hives on it & is still itchy. It could be my nerves too. I'm getting married on Saturday & with being diagnosed with HL. It's A LOT!
I was about to answer exactly the same as Evarista - NO SMOKING (whatever the stuff) is essential :
for one, smoking does promote lymphoma
and two, while chemotherapy for lymphoma causes your immune system to essentially shut down for a few days each cycle, it makes you especially vulnerable to the development of other cancers (as well as infections, of course).
As regards hives, it may very likely be a symptom of your lymphoma, and you'll know for sure after treatment has been initiated. If it stops, it was...
I had outbreaks for about seven or eight years prior to my diagnosis and treatment. After that - gone!
Hang in there, and have a lovely wedding celebration.
Hi Burni! I accidentally hit report for inappropriate instead of reply 🤦♀️🤦♀️🤦♀️ I have not had a PET Scan yet. I see the Oncology Hematologist on the 19th & it can't come soon enough. I want more answers!!!
HL at times causes systemic itching, i.e. 'itching all over,' but what you have described seems NOT systemic, but rather localized. HL itching normally does not show hives or indeed anything on the skin. It could indeed be allergic or a reaction, as mentioned above.
Besides HL (in which systemic itching is pretty uncommon/rare), liver issues are the most common cause of long-term itching. You will be tested routinely for ALT/AST, which will indicate liver wellness. I had HL itching, and STILL DO TODAY, 10 years after ending chemo. My doctors cannot identify a cause, and say it is just one of those odd, permanent things that HL occasionally does to some individuals. But I have never had hives or welts of any form. I also was diagnosed with P.T.G.C. last month, a condition immediately linked to NLPHL and follicular NHL, so there is indeed SOMETHING going on with my immune system.
I asked my oncologist for a medical marijuana referral and was approved about 2 weeks later for a medical card. Medical marijuana helped with nausea, improved my appetite and sleep, and a general more positive mood. I did not smoke flower. I used thc capsules, rso oil, and sometimes a vaporizer for immediate relief. It can be expensive though depending on the state where you reside. For me it was a game change but it’s not for everyone and some people get paranoia from it.
Hi. I'm new to this discussion but wanted to share that I have been using both the 1:1 (equal parts CBD &THC) tinctures & Indica tinctures to help me manage pain & for sleep. I have found both to be very effective.
Joined: May 2017
Conversations with your team
This question came up with my medical team during my R-EPOCH chemo. While they were legally constrained from providing recomendations, they did emphasize what seemed to be a very important points: Do not smoke anything! They did mention that there is a synthetic prescription version used for controlling nausea/vomiting: Marinol. Never needed to pursue this, so cannot offer further input.
I would also be asking my team about the total-body itching, if that is still an issue.
Joined: Nov 2020
Thanks
Thank you Evarista. I was just curious! Going to see my Hematology Oncologist next week. My chest has hives on it & is still itchy. It could be my nerves too. I'm getting married on Saturday & with being diagnosed with HL. It's A LOT!
Joined: Jul 2016
Smoking is a risk
Hi,
I was about to answer exactly the same as Evarista - NO SMOKING (whatever the stuff) is essential :
for one, smoking does promote lymphoma
and two, while chemotherapy for lymphoma causes your immune system to essentially shut down for a few days each cycle, it makes you especially vulnerable to the development of other cancers (as well as infections, of course).
As regards hives, it may very likely be a symptom of your lymphoma, and you'll know for sure after treatment has been initiated. If it stops, it was...
I had outbreaks for about seven or eight years prior to my diagnosis and treatment. After that - gone!
Hang in there, and have a lovely wedding celebration.
PBL
Joined: Nov 2020
PBL
Thank you PBL for your input! I will definitely NOT be smoking. Can't risk anything else going wrong 🤦♀️ Thank you for the well wishes xoxo
Joined: Aug 2020
Sam
Did you have a pet scan recently ranything with dye?I had an allergic reaction and had itching and hives.
Joined: Nov 2020
Burni
Hi Burni! I accidentally hit report for inappropriate instead of reply 🤦♀️🤦♀️🤦♀️ I have not had a PET Scan yet. I see the Oncology Hematologist on the 19th & it can't come soon enough. I want more answers!!!
Joined: May 2012
Itch
HL at times causes systemic itching, i.e. 'itching all over,' but what you have described seems NOT systemic, but rather localized. HL itching normally does not show hives or indeed anything on the skin. It could indeed be allergic or a reaction, as mentioned above.
Besides HL (in which systemic itching is pretty uncommon/rare), liver issues are the most common cause of long-term itching. You will be tested routinely for ALT/AST, which will indicate liver wellness. I had HL itching, and STILL DO TODAY, 10 years after ending chemo. My doctors cannot identify a cause, and say it is just one of those odd, permanent things that HL occasionally does to some individuals. But I have never had hives or welts of any form. I also was diagnosed with P.T.G.C. last month, a condition immediately linked to NLPHL and follicular NHL, so there is indeed SOMETHING going on with my immune system.
Joined: Aug 2020
Sam
Did you have a pet scan recently ranything with dye?I had an allergic reaction and had itching and hives.
Joined: Dec 2020
Medical marijuana
Hi Samiam1114,
I asked my oncologist for a medical marijuana referral and was approved about 2 weeks later for a medical card. Medical marijuana helped with nausea, improved my appetite and sleep, and a general more positive mood. I did not smoke flower. I used thc capsules, rso oil, and sometimes a vaporizer for immediate relief. It can be expensive though depending on the state where you reside. For me it was a game change but it’s not for everyone and some people get paranoia from it.
Joined: Dec 2020
In response
Hi. I'm new to this discussion but wanted to share that I have been using both the 1:1 (equal parts CBD &THC) tinctures & Indica tinctures to help me manage pain & for sleep. I have found both to be very effective.