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Samiam1114
Samiam1114 Member Posts: 17
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Hello All, 

I have a question! Has anyone here smoked weed or ate edibles during the chemo treatment? At home of course. Just curious if it actually helps/works. Thank you!

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  • Evarista
    Evarista CSN Member Posts: 336 Member
    edited November 2020 #2
    Conversations with your team

    This question came up with my medical team during my R-EPOCH chemo.  While they were legally constrained from providing recomendations, they did emphasize what seemed to be a very important points: Do not smoke anything!  They did mention that there is a synthetic prescription version used for controlling nausea/vomiting: Marinol. Never needed to pursue this, so cannot offer further input.

    I would also be asking my team about the total-body itching, if that is still an issue.

  • Samiam1114
    Samiam1114 Member Posts: 17
    edited November 2020 #3
    Thanks

    Thank you Evarista. I was just curious! Going to see my Hematology Oncologist next week. My chest has hives on it & is still itchy. It could be my nerves too. I'm getting married on Saturday & with being diagnosed with HL. It's A LOT!

  • PBL
    PBL CSN Member Posts: 379 Member
    edited November 2020 #4
    Smoking is a risk

    Hi,

     

    I was about to answer exactly the same as Evarista - NO SMOKING (whatever the stuff) is essential :

    for one, smoking does promote lymphoma

    and two, while chemotherapy for lymphoma causes your immune system to essentially shut down for a few days each cycle, it makes you especially vulnerable to the development of other cancers (as well as infections, of course).

    As regards hives, it may very likely be a symptom of your lymphoma, and you'll know for sure after treatment has been initiated. If it stops, it was...

    I had outbreaks for about seven or eight years prior to my diagnosis and treatment. After that - gone!

    Hang in there, and have a lovely wedding celebration.

    PBL

  • Samiam1114
    Samiam1114 Member Posts: 17
    edited November 2020 #5
    PBL said:

    Smoking is a risk

    Hi,

     

    I was about to answer exactly the same as Evarista - NO SMOKING (whatever the stuff) is essential :

    for one, smoking does promote lymphoma

    and two, while chemotherapy for lymphoma causes your immune system to essentially shut down for a few days each cycle, it makes you especially vulnerable to the development of other cancers (as well as infections, of course).

    As regards hives, it may very likely be a symptom of your lymphoma, and you'll know for sure after treatment has been initiated. If it stops, it was...

    I had outbreaks for about seven or eight years prior to my diagnosis and treatment. After that - gone!

    Hang in there, and have a lovely wedding celebration.

    PBL

    PBL

    Thank you PBL for your input! I will definitely NOT be smoking. Can't risk anything else going wrong ?‍♀️ Thank you for the well wishes xoxo

  • Burni
    Burni Member Posts: 20 Member
    edited November 2020 #6
    Sam

    Did you have a pet scan recently ranything with dye?I had an allergic reaction and had itching and hives.

  • Burni
    Burni Member Posts: 20 Member
    edited November 2020 #7
    Sam

    Did you have a pet scan recently ranything with dye?I had an allergic reaction and had itching and hives.

  • Samiam1114
    Samiam1114 Member Posts: 17
    edited November 2020 #8
    Burni said:

    Sam

    Did you have a pet scan recently ranything with dye?I had an allergic reaction and had itching and hives.

    Burni

    Hi Burni! I accidentally hit report for inappropriate instead of reply ?‍♀️?‍♀️?‍♀️ I have not had a PET Scan yet. I see the Oncology Hematologist on the 19th & it can't come soon enough. I want more answers!!!

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 CSN Member Posts: 3,830 Member
    edited November 2020 #9
    Samiam1114 said:

    Burni

    Hi Burni! I accidentally hit report for inappropriate instead of reply ?‍♀️?‍♀️?‍♀️ I have not had a PET Scan yet. I see the Oncology Hematologist on the 19th & it can't come soon enough. I want more answers!!!

    Itch

    HL at times causes systemic itching, i.e. 'itching all over,' but what you have described seems NOT systemic, but rather localized.  HL itching normally does not show hives or indeed anything on the skin.   It could indeed be allergic or a reaction, as mentioned above.

    Besides HL (in which systemic itching is pretty uncommon/rare), liver issues are the most common cause of long-term itching.   You will be tested routinely for ALT/AST, which will indicate liver wellness.    I had HL itching, and STILL DO TODAY, 10 years after ending chemo.    My doctors cannot identify a cause, and say it is just one of those odd, permanent things that HL occasionally does to some individuals.  But I have never had hives or welts of any form.   I also was diagnosed with P.T.G.C. last month, a condition immediately linked to NLPHL and follicular NHL, so there is indeed SOMETHING going on with my immune system.

     

  • John W.
    John W. Member Posts: 2
    edited December 2020 #10
    Medical marijuana

    Hi Samiam1114,

    I asked my oncologist for a medical marijuana referral and was approved about 2 weeks later for a medical card. Medical marijuana helped with nausea, improved my appetite and sleep, and a general more positive mood. I did not smoke flower. I used thc capsules, rso oil, and sometimes a vaporizer for immediate relief. It can be expensive though depending on the state where you reside. For me it was a game change but it’s not for everyone and some people get paranoia from it. 

  • aj59
    aj59 Member Posts: 3
    edited December 2020 #11
    In response

    Hi. I'm new to this discussion but wanted to share that I have been using both the 1:1 (equal parts CBD &THC) tinctures & Indica tinctures to help me manage pain & for sleep. I have found both to be very effective. 

  • Murayage
    Murayage Member Posts: 1 Member
    #12

    Some people have mentioned that using CBD products, like a cbd vape pen, can provide relief during chemo treatment. It could be worth considering, but it's always a good idea to consult with your doctor first. Everyone's experience is unique, so what works for one person may not work for another.

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