Older members please shout out

2

Comments

  • Helen321
    Helen321 Member Posts: 1,459 Member
    edited July 2020 #22
    abrub said:

    13 years since Stage 4 diagnosis

    and still doing well (tho back on chemo since September.)

    Alice

    Alice WOOOT!!!!!

    Alice WOOOT!!!!!

  • Helen321
    Helen321 Member Posts: 1,459 Member

    Hi from Old-Timer Marbleotis

    Hi Everyone,

    I joined in 2012.  I was a stage 3 signet cell colon cancer patient.  I am now 8 years NED.  Some days I just cannot believe that.

    For newcomers - sorry you are here but this forum will help you with just about everything.  We have all been through some much and there is always someone to share or just listen.  This site got me through some very scary and dark times.

    HELLO!  Yes it did!!

    HELLO!  Yes it did!!

  • Helen321
    Helen321 Member Posts: 1,459 Member
    edited July 2020 #24
    Oh goodness, thinking back to

    Oh goodness, thinking back to 2012, the year from hell.  And then 2013, which made 2012 seem like a walk in the park.  There aren't enough anti-anxieties in the world to get me to tihnk of those times often.  There are many of us still here.  I chose to go organic, I gave up wine, bbq, sugar.  All the things on the no list.  I did the treatments suggested and drastic surgeries.  I at broccoli sprouts on peanut butter sandwiches and drank almond milk.   I'm not sure if any of it was necessary or helpful or what to this day.  I'm still here.  Every day is a mental struggle as I was young and the doctors pretty much disfigured my body.  But I'm here.  And I dance.  And I have moment of joy and moments of depression.  I try to remind myself often of the days I was afraid of death and how I pulled through it.  I miss some of the OGs.  Buzzard, Dochawk, VickiLG, nanab, Johnnybegood, Leena, Barbebarb, even crazy, pushy Pete.  I have such a long list.  We were all just trying so desperately to survive.  My favorite will always remain how we were allowed to let go every Friday with one post.....What are you doing this weekend?  Everyone would drop their cancer for a day and talk about their weekend.  And then we'd pick back up on worrying on Monday and everyone would go back to arguing with Pete.  Every board should have that post and at least one crazy person=)  It really did pass the time and get us through some tough times.  

    To everyone still fighting, keep fighting!  There are a lot of people who do survive from stage I to stage IV.  I don't have all the body parts I used to have, I've been to hell and back, but I'm here and now it doesn't hurt as much as it used to.  I have some health issues but they're becoming more and more routine and manageable.  it's exhausting, it's overwhelming and you just want it to stop but you are worth fighting for, you can do it! 

  • wolfen
    wolfen Member Posts: 1,324 Member
    edited July 2020 #25
    Oldies, But Goodies

    Helen, so good to hear from you and I absolutely love your post. Glad to hear you are doing well, still kicking butt and taking names. You brought a smile tinged with sadness remembering our wonderful old friends. I miss my Johnnybegood every day.

    Take care,

    Wolfen

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited July 2020 #26
    Helen321 said:

    Oh goodness, thinking back to

    Oh goodness, thinking back to 2012, the year from hell.  And then 2013, which made 2012 seem like a walk in the park.  There aren't enough anti-anxieties in the world to get me to tihnk of those times often.  There are many of us still here.  I chose to go organic, I gave up wine, bbq, sugar.  All the things on the no list.  I did the treatments suggested and drastic surgeries.  I at broccoli sprouts on peanut butter sandwiches and drank almond milk.   I'm not sure if any of it was necessary or helpful or what to this day.  I'm still here.  Every day is a mental struggle as I was young and the doctors pretty much disfigured my body.  But I'm here.  And I dance.  And I have moment of joy and moments of depression.  I try to remind myself often of the days I was afraid of death and how I pulled through it.  I miss some of the OGs.  Buzzard, Dochawk, VickiLG, nanab, Johnnybegood, Leena, Barbebarb, even crazy, pushy Pete.  I have such a long list.  We were all just trying so desperately to survive.  My favorite will always remain how we were allowed to let go every Friday with one post.....What are you doing this weekend?  Everyone would drop their cancer for a day and talk about their weekend.  And then we'd pick back up on worrying on Monday and everyone would go back to arguing with Pete.  Every board should have that post and at least one crazy person=)  It really did pass the time and get us through some tough times.  

    To everyone still fighting, keep fighting!  There are a lot of people who do survive from stage I to stage IV.  I don't have all the body parts I used to have, I've been to hell and back, but I'm here and now it doesn't hurt as much as it used to.  I have some health issues but they're becoming more and more routine and manageable.  it's exhausting, it's overwhelming and you just want it to stop but you are worth fighting for, you can do it! 

    You miss Pete?!!!!

    Just kidding!

    Pete was one on his own, I think. 

    All of those names of frends now passed that you mentioned. And Craig - The Lion. Ren, WinterMarie, LilPep (Pepe), Lisa, John, John Anderson, Lizzard (Grace), BigMan4Christ; and so many, too many more.  And we don't forget husbands of members like LindaK, LivininNH, Kathy's, Angelsbaby, GeoTina and Your husband, Wolfen. Our most recent losses, Barb, Karen & JanJan.  None of them forgotten by us old timers.  We mourn their loss and live our promise to honour them by living life to its fullest. 

    Its good to see you here Helen and Wolfen. 

    Tru

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Helen321 said:

    Oh goodness, thinking back to

    Oh goodness, thinking back to 2012, the year from hell.  And then 2013, which made 2012 seem like a walk in the park.  There aren't enough anti-anxieties in the world to get me to tihnk of those times often.  There are many of us still here.  I chose to go organic, I gave up wine, bbq, sugar.  All the things on the no list.  I did the treatments suggested and drastic surgeries.  I at broccoli sprouts on peanut butter sandwiches and drank almond milk.   I'm not sure if any of it was necessary or helpful or what to this day.  I'm still here.  Every day is a mental struggle as I was young and the doctors pretty much disfigured my body.  But I'm here.  And I dance.  And I have moment of joy and moments of depression.  I try to remind myself often of the days I was afraid of death and how I pulled through it.  I miss some of the OGs.  Buzzard, Dochawk, VickiLG, nanab, Johnnybegood, Leena, Barbebarb, even crazy, pushy Pete.  I have such a long list.  We were all just trying so desperately to survive.  My favorite will always remain how we were allowed to let go every Friday with one post.....What are you doing this weekend?  Everyone would drop their cancer for a day and talk about their weekend.  And then we'd pick back up on worrying on Monday and everyone would go back to arguing with Pete.  Every board should have that post and at least one crazy person=)  It really did pass the time and get us through some tough times.  

    To everyone still fighting, keep fighting!  There are a lot of people who do survive from stage I to stage IV.  I don't have all the body parts I used to have, I've been to hell and back, but I'm here and now it doesn't hurt as much as it used to.  I have some health issues but they're becoming more and more routine and manageable.  it's exhausting, it's overwhelming and you just want it to stop but you are worth fighting for, you can do it! 

    Good to see your post

    Oh my goodness, it was so good to see your post.  Yes, we had "what are your plans for the weekend".  Pete used to push us to lengths we never knew, did every test possible to man, yet he was on here every chance to give us his treatment data, new studies that have been introduced to him and how he handled them.

    I've been here a long time, so I've seen so MANY people that have passed.  I've cried many times on here when there was a passing.  It was so hard becoming "family" with so many that you have never met, but thought you knew right here on the board. 

    Once again, it's so good to see your post.  I'm glad you are doing well and living life.  Please come back and update us again-we would love to have you share some of your journey.

    Hugs!  Kim

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited July 2020 #28
    wolfen said:

    Oldies, But Goodies

    Helen, so good to hear from you and I absolutely love your post. Glad to hear you are doing well, still kicking butt and taking names. You brought a smile tinged with sadness remembering our wonderful old friends. I miss my Johnnybegood every day.

    Take care,

    Wolfen

    Old Past Members

    Wow it's so great to see your post as well.  I'll never forget the picture of your daughter on her front porch and then again with her horse.  We were diagnosed about the same time and remember her posting such positive posts even though she was going through so much.  She loved her horses and it made her so happy to be able to go out there and ride.  Also remember your hubby and the struggles he had and how much you have gone through with his loss as well.  Wishing you the best, dear.  Thank you again for your post - hope you are doing well.

    Hugs!  Kim

  • Helen321
    Helen321 Member Posts: 1,459 Member
    edited January 2021 #29
    Trubrit said:

    You miss Pete?!!!!

    Just kidding!

    Pete was one on his own, I think. 

    All of those names of frends now passed that you mentioned. And Craig - The Lion. Ren, WinterMarie, LilPep (Pepe), Lisa, John, John Anderson, Lizzard (Grace), BigMan4Christ; and so many, too many more.  And we don't forget husbands of members like LindaK, LivininNH, Kathy's, Angelsbaby, GeoTina and Your husband, Wolfen. Our most recent losses, Barb, Karen & JanJan.  None of them forgotten by us old timers.  We mourn their loss and live our promise to honour them by living life to its fullest. 

    Its good to see you here Helen and Wolfen. 

    Tru

    lol I miss Pete.  i loved

    lol I miss Pete.  i loved Pete, he was a special kind of nuts.  I never knew why people didn't get that and just ignore him.  I read his blog about his life.  He led a fascinating life.  I miss them all and think of them often.  Pepe hit me very hard.  Quite a few people did.

  • Helen321
    Helen321 Member Posts: 1,459 Member
    edited January 2021 #30
    wolfen said:

    Oldies, But Goodies

    Helen, so good to hear from you and I absolutely love your post. Glad to hear you are doing well, still kicking butt and taking names. You brought a smile tinged with sadness remembering our wonderful old friends. I miss my Johnnybegood every day.

    Take care,

    Wolfen

    Of course Wolfen, and your

    Of course Wolfen, and your JohnnyBeGood with her beautiful horse.  So many of our friends.   You helped me through some really hard times, even through your own suffering and loss and I love you for that.  

  • Helen321
    Helen321 Member Posts: 1,459 Member
    edited January 2021 #31

    Good to see your post

    Oh my goodness, it was so good to see your post.  Yes, we had "what are your plans for the weekend".  Pete used to push us to lengths we never knew, did every test possible to man, yet he was on here every chance to give us his treatment data, new studies that have been introduced to him and how he handled them.

    I've been here a long time, so I've seen so MANY people that have passed.  I've cried many times on here when there was a passing.  It was so hard becoming "family" with so many that you have never met, but thought you knew right here on the board. 

    Once again, it's so good to see your post.  I'm glad you are doing well and living life.  Please come back and update us again-we would love to have you share some of your journey.

    Hugs!  Kim

    Kim, there was a period of

    Kim, there was a period of time that was really harsh.  Leena Boyd.  Vickie.  I think her sign on was VickieLG.  Just so many more people.  I miss them a lot and think of them all the time.  Such good people.  I post all the time.  Less profit, more cure.  They are the reason I say that.  We really do need some sort of progress in this disease.

  • Helen321
    Helen321 Member Posts: 1,459 Member
    edited January 2021 #32

    Good to see your post

    Oh my goodness, it was so good to see your post.  Yes, we had "what are your plans for the weekend".  Pete used to push us to lengths we never knew, did every test possible to man, yet he was on here every chance to give us his treatment data, new studies that have been introduced to him and how he handled them.

    I've been here a long time, so I've seen so MANY people that have passed.  I've cried many times on here when there was a passing.  It was so hard becoming "family" with so many that you have never met, but thought you knew right here on the board. 

    Once again, it's so good to see your post.  I'm glad you are doing well and living life.  Please come back and update us again-we would love to have you share some of your journey.

    Hugs!  Kim

    Kim, there was a period of

    Kim, there was a period of time that was really harsh.  Leena Boyd.  Vickie.  I think her sign on was VickieLG.  Just so many more people.  I miss them a lot and think of them all the time.  Such good people.  I post all the time.  Less profit, more cure.  They are the reason I say that.  We really do need some sort of progress in this disease.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited January 2021 #33
    Helen321 said:

    lol I miss Pete.  i loved

    lol I miss Pete.  i loved Pete, he was a special kind of nuts.  I never knew why people didn't get that and just ignore him.  I read his blog about his life.  He led a fascinating life.  I miss them all and think of them often.  Pepe hit me very hard.  Quite a few people did.

    Oh, I hope someone says that about me, one day

    he was a special kind of nuts

    Except put she, as I am female.

    It is good to see you posting, Helen.

    Tru

  • fedester
    fedester Member Posts: 753 Member
    edited February 2021 #34
    Checking in

    Good evening survivors,

    dx stage 2 May 2004 , chemo 6 months . Reoccurrence 2009 no chemo . I am 

    sadden by the loss of all . I am well other issues now but not cancer . I check in from time to time to read posts . I pray for all who are here . There is light at the end of the tunnel . 
    Stay strong , believe in the man upstairs and never ever give up.

    Regards 

    Bruce 

  • grammadebbie
    grammadebbie Member Posts: 464
    edited March 2021 #35
    One of the Oldies


    Greetings everyone!   Those were the days my friends.  I was diagnosed IIIC in 2007.  Wasnt real active in writting but lurked alot!  It is so good to see so many of you are still active on the site.  So I have been NED for all this time and so very thankful.  I am on my way to the Onc. for results.  PET scan showing to areas suspicious of active malignancy in colon.   Appreciate your prayers.  

     

     

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    One of the Oldies


    Greetings everyone!   Those were the days my friends.  I was diagnosed IIIC in 2007.  Wasnt real active in writting but lurked alot!  It is so good to see so many of you are still active on the site.  So I have been NED for all this time and so very thankful.  I am on my way to the Onc. for results.  PET scan showing to areas suspicious of active malignancy in colon.   Appreciate your prayers.  

     

     

    You have my prayers

    I am sorry to hear this and hope that the PET is picking up shadows and not anything worse.  

    Are they doing a colonoscopy as a followup? 

    Keep us informed. 

    Tru

  • pamness
    pamness Member Posts: 524 Member
    edited March 2021 #37
    Hello from 2007

    I was diagnosed in January 2007.  Stage 3a, colon cancer.  Surgery, folfox radiation.  Obviously, I am still here.  My battle was pretty standard, with a brief pit stop with breast cancer in 2013.  I check on every so often to see what is posted.  I can only repeat what others have said.  Be strong,be brave and keep fiighting.  Maglets, I remember your posts from back in the day.   

    My thoughts and prayers are with everyone battling this horrible disease.

    Pam

  • DanNH
    DanNH Member Posts: 184 Member
    edited March 2021 #38
    Thank-you Mary!

    My wife was just diagnosed with Adenocarcinoma, stage 4. She got her port Wednesday and starts chemo on Tuesday of next week. Your message and all of the responses from the long term members is more uplifting than I can describe!

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    My wife is chemo free for 2.5

    My wife is chemo free for 2.5 years after 2 surgeries and 8 years of personalized immunochemo.  Still does some  extra supplements and IV vitamin C.

  • darcher
    darcher Member Posts: 304 Member
    edited March 2021 #40
    Semi_old
    I don't consider my self as a real old timer. Been here since mid 2017 so maybe that qualifies me as semi? But, I bet I'm the only one that can say getting colon cancer saved my life. The brain tumor which would have killed me in a couple months was discovered because of this. I guess that puts me in a unique position although sad because nearly everyone else who's had both didn't survive. In any event, I'm still standing! That's our theme song.
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited March 2021 #41
    darcher said:

    Semi_old
    I don't consider my self as a real old timer. Been here since mid 2017 so maybe that qualifies me as semi? But, I bet I'm the only one that can say getting colon cancer saved my life. The brain tumor which would have killed me in a couple months was discovered because of this. I guess that puts me in a unique position although sad because nearly everyone else who's had both didn't survive. In any event, I'm still standing! That's our theme song.

    You are "old"

    You are old - and you count.  You have been here for quit some time and remember you.  It sounds like you have gone through a lot as well and so glad that a terrible diagnosis was a "blessing in disguise."  Glad that you are still coming around and sharing your story.  It's good to hear from you.

    Kim