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Husband has glioblastoma - how to deal with children?

KEJenkins
Posts: 2
Joined: Sep 2019

My husband was diagnosed in June with glioblastoma, grade IV. He's had surgery. They removed about 65%. He is currently undergoing radiation and chemotherapy with Temodor. He's 39. The tumor is in his cerebellum. We found out about the diagnosis because he started having a tick in his hand where he couldn't stop his hand shaking. I never would have imagnied that was due to a brain tumor. We have two young girls ages 6 and 10. They know he was in the hospital and had brain surgery for a tumour. They don't know about the bad prognosis. We're hopeful that he can beat this--or at least for several years to come. But, the girls see him sick and tired on the couch, or doubled over as he walks. I'm not sure how much I should be talking about what is going on with him. Or preparing them for the worst case scenario? Anyone else have any stories about glioblastoma in a family with young children?

 

Thanks,

Kelly

JBBW
Posts: 30
Joined: Aug 2017

Kelly,

I am sorry for your situation.  My cancer isn't like your husband's and I don't have children but I couldn't just pass your post by.
I know you probably have found these resources already but I thought I would post them just so I can try to show support.

I looked at the sites and found they have details on the page and links to other resources and aren't just spaming.

https://www.dana-farber.org/for-patients-and-families/care-and-treatment/support-services-and-amenities/family-connections/for-the-patient/talking-with-children-about-cancer/

https://www.cancersupportcommunity.org/blog/2016/08/talking-kids-about-cancer

 

Good Luck,

 

JBBW

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