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Stunned, crushed and numb

Twinzma
Posts: 213
Joined: Jan 2018

Literally just hung up the phone with the oncologist. Jim's cancer has all grown, the remaining mets in the liver, the tumor in the colon and now there is big time lymph involvement and a nodule on the lung NO ONE TOLD US ABOUT the last scan has also grown. I want to be angry, I want to cry I just am too shell shocked at this moment. We are being referred to another cancer institute thank God she can fast track an appoinment for us.  My kids are in the pool swimming with their friend right now, they are having such a wonderful time.......they know the call was coming in and I just can't tell them, I have to but I am just gonna watch them have a little more fun before I crush them. Cancer SUCKS it sucks your hopes away, it sucks your dreams away, I just sucks all around. Cry

Trubrit's picture
Trubrit
Posts: 4886
Joined: Jan 2013

You are in shock, and rightly so. It is all bad news, no fluffing over it. 

I am glad that you are allowing your children their pleasure moments. Time enough to share the news later. 

We continue to support and pray for Jim, you and the children, as you move forward with the next step. May you get in with the new Cancer institue. 

And go ahead, cry, and be angry. Let it out so that you can regroup and have the energy you need to support Jim through the next step. 

Tru

abita's picture
abita
Posts: 656
Joined: Dec 2017

I am so sorry. I know that you will find a treatment plan for him that will work at this new place. And glad it is fast tracked. But I know how devastating news such as this is so for now, I am so sorry that y'all have this pain.

SandiaBuddy's picture
SandiaBuddy
Posts: 907
Joined: Apr 2017

I am so sorry about the tough news.  I am glad you let the children play.  Carefree Summer days are a rare and valuable commodity of youth.  Cancer is painful to everyone it touches.  I really have no words to convey my sympathy.

Kazenmax's picture
Kazenmax
Posts: 357
Joined: Feb 2016

Ah God! I'm so sorry. I wish there was something wise I could say but there's no diminishing the suck of this.

So unfair. I hope you find the strength to get through all this. I wish I could help in some way.

Msboop15's picture
Msboop15
Posts: 81
Joined: Apr 2019

I am so sorry to hear your news.  Just breaks my heart for all of you.  I wish there was something I could do.  I am glad they are fast tracking you to a new Cancer Institute.  I hope and pray someone there can help your husband.  

Elaine 

Canadian Sandy's picture
Canadian Sandy
Posts: 519
Joined: Jul 2016

Sorry to hear this twinzma.....prayers sent for all of you.

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

i hate cancer too it’s a sneaky joy stealer. I hope a new center can help you both. Hold on telling the kids as long you can without lying let them have fun. Again I am so sorry. Xoxo

Annabelle41415's picture
Annabelle41415
Posts: 6241
Joined: Feb 2009

I'm so sorry to hear this and for having to tell you children, that has to be the worst possible news that you could deliver to them. This has to be a sad day but let the other doctor see what he can do for him.  Never give up hope.  Wishing your husband well.

Kim

Twinzma
Posts: 213
Joined: Jan 2018

It did occur to me shortly after posting this, all of the stories here, while it is not good, so many have indeed come back from so much worse news. For now we will think of this as a hiccup until the next scans. He had several months of no infusions of the dreaded Folfri so that was a nice reprieve for him. So onto the next strong drug..or maybe the institute has a trial. I did do a few searches last night they do seem to have many clinical trials for late stage. Hopefully he can be included in one of them. 

I told the kids only after they asked and after their friend went home. Funny how they are twins and so opposite, one stayed quite and sulked off to his room the other....God bless him....asked me if I was okay how did Dad take the news! He was worried about us! I told him we were all going to be fine, that if there was something out there to help Dad we would find it and if not we will worry about it then. He then replied...."Mom, if they don't Dad will be in good hands, Papa is in heaven waiting for all of us" 13 years old and he said it best. Yup if we can't find the answers, then it will still be okay. 

 

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

What a wonderful young man! Kids can have such clarity, it's great. I'm sorry you got this news. I hope for the best outcome for this. I got some bad news the other day and at first I get all sad and rail against cancer and then I get over it and just think about how I'm going to get through this latest crap, too. But it's so hard, isn't it. It's hard not to let it crush you.

Hugs,

Jan

Joan M's picture
Joan M
Posts: 383
Joined: Oct 2016

There are so many treatments beyond the standard initial lines of therapy.  I had Y90 and ablations for my liver and there is also radiation available for lung tumors. 

I don't know what all he has been on, but don't give up until he has tried every last possible treatment.

myAZmountain
Posts: 275
Joined: Apr 2018

So hard to keep fighting sometimes when you are more beaten up than a screen door in a hurricane--your hubby has been a warrior and I know he will continue to fight!! Praying that the new treatment center will be a better fit  and they can offer better treatment options--never give up!

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