3 months of Chemo vs. 6 Months

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  • SandiaBuddy
    SandiaBuddy Member Posts: 1,381 Member
    #22
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    IDEA study

    Link to recent publication re: IDEA study (6mo v. 3 mo).

  • ron50
    ron50 Member Posts: 1,723 Member
    edited April 2019 #23
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    Friendinpenn said:

    I remember you! BIG FISH!!!!!

    I don't know if we ever chatted, but I remember you on this site....mainly because of the big fish!!!  Anyways.....I had colon, liver and lung cancer.....stage IV.....and now at over 10 years remission.....I'm clear....What a miracle.....so blessed

    I go for my yearly cancer center checkup on Thursday.....That got me back on this site....I'm glad you're doing well.....I know I will be too....

    Just wanted to say hello from a long ago friend from the forum.....Keep doing what you're doing my friend......JIM 

    good to see you again Jim

    Glad to see you doing so well.  I turned 69 this month and at the end of last year I bought a four meter kayak. So I'm still chasing big fish though it is almost a case of hand to fin combat now. Wishing you well for the future. Ron.

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #24
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    shu273 said:

    suggestions for preparing for Chemo

    We are meeting the Oncologist tomorrow and challenging him to treat for three months vs. 6 months and to prescribe the pill form of capecitibine and oxaliplatin. There was a study called the IDEA study that showed it was as effective as 6 months and obviously less toxic simply due to reduction of treatment by 50%. They do it in Washington D.C.. So, if we have to fly for treatments we will. Just hoping our Oncoligist will be open to this treatment plan. We already drive three hours each way and that makes for a very long day. He is alo participating in a trial for Lidocaine injections. 50% of the people on the trial get placibo and the other get the Lidocaine. The hope is the Lidocaine will help with the Nueropathy that 70% of people experience from the Oxaliplatin. 

    Any advise on tips for dealing with the effects of chemo before and after each treatment is welcome. So far all we have been told is drink lots of water the day after and avoid cold objects and take hot baths and rest.

    Andrea

    There is a lot of experience

    There is a lot of experience already posted in the cancer forums for side effects.   One could get started on the chemo and decide on the 3 - 4 months part later.  You should be always be able pull out of the treatment if you don't let them intimidate you or are prepared to change doctors.

    We used targeted cimetidine (a cheapo ulcer drug with a CA199 target) with other chemistry and daily oral chemo for stage 4 to do better than standard.  So they are not omniscient gods.    

  • bretman
    bretman Member Posts: 2
    edited July 2019 #25
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    shu273 said:

    suggestions for preparing for Chemo

    We are meeting the Oncologist tomorrow and challenging him to treat for three months vs. 6 months and to prescribe the pill form of capecitibine and oxaliplatin. There was a study called the IDEA study that showed it was as effective as 6 months and obviously less toxic simply due to reduction of treatment by 50%. They do it in Washington D.C.. So, if we have to fly for treatments we will. Just hoping our Oncoligist will be open to this treatment plan. We already drive three hours each way and that makes for a very long day. He is alo participating in a trial for Lidocaine injections. 50% of the people on the trial get placibo and the other get the Lidocaine. The hope is the Lidocaine will help with the Nueropathy that 70% of people experience from the Oxaliplatin. 

    Any advise on tips for dealing with the effects of chemo before and after each treatment is welcome. So far all we have been told is drink lots of water the day after and avoid cold objects and take hot baths and rest.

    Andrea

    3 month chemo

    Hello Andrea,  Can you tell me where to find more information on the 3 mos chemo in

    Washington D.C.?  Doctor wants to do 6 mos FOLFOX  Have read CAPOX is effective in 3 month treatment.

    Thanks, Edie

  • nuc
    nuc Member Posts: 44 Member
    #26
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    bretman said:

    3 month chemo

    Hello Andrea,  Can you tell me where to find more information on the 3 mos chemo in

    Washington D.C.?  Doctor wants to do 6 mos FOLFOX  Have read CAPOX is effective in 3 month treatment.

    Thanks, Edie

    https://www.nejm.org/doi/full

    https://www.nejm.org/doi/full/10.1056/NEJMoa1713709

     

    HTH

  • Steelkiwi686
    Steelkiwi686 Member Posts: 73 Member
    #27
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    Mmj

    MMJ helps me enormously in regards to easing chemo side effects. Just know it’s out there in legal states if you need it. 

    I use it for nausea, cramping, neuropathy, sleeping, appetite stimulation to control weight loss etc 

    i do not at all consider it a substitute for treatment but it does improve my day to day experiences 

    im stage 4 diagnosed a year ago tomorrow and in my opinion I’m doing great.  

    Best wishes to both of you 

    Fluids, Fluids,Fluids and I eat whatever I want for now. 

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