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  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #42
    CRashster said:

    How

    how was your trip?

    Thanks for asking

    Trip was amazing! I saw more people than I realized I know! It was humbling and emotional at times. I am so fortunate to have so many wonderful people in my life. It was truly a huge silver lining to the dark cloud of cancer. I can't put into words how touched I was by the warmth, caring, and love I felt from so many friends and family members. It's six months later, and I'm still blown away. And overall  I held up pretty well. There were a couple of days where I felt crappy,  but overall, it was an amazing trip. One of the highlights of my 54 years on this planet. 

  • Iggyrip
    Iggyrip Member Posts: 44
    #43
    Still here

    I'm still here. I have been receiving Immuno therapy treatment and havenot posted much. Glad there are many folks doing well. 

  • polishpipes10
    polishpipes10 Member Posts: 3
    #44
    Hi Everyone New Here!

    Hey Everyone,

     

    New here from Los Angeles , CA Just puting my hello's out there in hopes to spark a few conversations to get the ball rolling. Look forward to meeting some of you.

     

     

  • Max57
    Max57 Member Posts: 177 Member
    #45
    I am here !

    I am here !

  • icemantoo
    icemantoo CSN Member Posts: 3,362
    #46
    polishpipes10 said:

    Hi Everyone New Here!

    Hey Everyone,

     

    New here from Los Angeles , CA Just puting my hello's out there in hopes to spark a few conversations to get the ball rolling. Look forward to meeting some of you.

     

     

    polish

    Welcome to our little group which no one in their right nind would look forward to joining. Start a new forum post and tell us about your journey so we can welcome and help you.

     

     

     

    icemantoo

  • Trucker1
    Trucker1 Member Posts: 82
    #47
    Hanging around!

    Trucker still on the scene! 1.5 year scans on Tuesday--wish me NED!!!

  • ChristineCD
    ChristineCD Member Posts: 11
    #48
    Hello

    I am here...mostly a lurker since August of 2018 but I check in almost daily! I check in at smartpatients.com also.

  • Cybball
    Cybball Member Posts: 111
    #49
    I'm here.  :)
     

    I'm here.  :)

     

  • Glidergal365
    Glidergal365 Member Posts: 93
    #50
    Still here!

    I haven't logged on in a while. Been so busy with school and work. It'll be one year this month since I had my surgery and I found out this week I'm pregnant with my first child at 41! I'm nervous and excited and figured if I can make it through a nephrectomy I can do anything :) Glad to see so many familiar names still on here too. Kiss Hope everyone is doing well! 

    Jenn

  • Bart1978
    Bart1978 Member Posts: 28 Member
    #51
    Here

    present

  • eug91
    eug91 CSN Member Posts: 471 Member
    #52
    Glidergal365 said:

    Still here!

    I haven't logged on in a while. Been so busy with school and work. It'll be one year this month since I had my surgery and I found out this week I'm pregnant with my first child at 41! I'm nervous and excited and figured if I can make it through a nephrectomy I can do anything :) Glad to see so many familiar names still on here too. Kiss Hope everyone is doing well! 

    Jenn

    CONGRATULATIONS!

    Yay mom-to-be! 

  • donna_lee
    donna_lee CSN Member Posts: 1,059 Member
    #53
    You have to re-check in every week.

    If you have told the computer to remember you with the password, it will for that calendar week.  And on Monday, it starts over.  But it shouldn't make you re-do your bio page.  Contact CSN if you are still having problems.

    donna_lee.  And yes, I lost my pix, but need to put up a new one anyway.

  • JerzyGrrl
    JerzyGrrl CSN Member Posts: 760 Member
    #54
    I'm (back) here

    Shucks, I missed out on all the excitement associated with the crash. 

    I'm 2 years and 4 months post-neph. Still getting visits from Uncle Ned. I've graduated to once a year scans. 

    I'm working on downsizing, might do some traveling. You know the t-shirt Fox (RIP) wore in his photo? It's from Motorcycle Week in Laconia, New Hampshire. There's a hill west of Laconia, with beautiful views of Lake Winnipesauke and the main road to Laconia. I've been doing some traveling in my quiet times, meditating on that view (my stepfather is buried near there, so I know the area a bit). It's quite lovely and peaceful. 

  • Deanie0916
    Deanie0916 CSN Member Posts: 628 Member
    #55
    Deanie0916

    Present, thankful to be so.

  • randyradiohill
    randyradiohill Member Posts: 68 Member
    #56
    Still Here...

    I'm still here...got my 6 month scan next week.  Scanxiety is kicking in again.  Here's hoping for NED!

  • Hoss79
    Hoss79 Member Posts: 78 Member
    #57
    I’m here. Just moved up my
    I’m here. Just moved up my annual scan by 3 months because of some pains. Scanxiety just kicked in!!
  • LanceHeal
    LanceHeal Member Posts: 57
    #58
    Here

    Newbie but here

  • penitent
    penitent Member Posts: 79
    #59
    Son in law still here :-)

    My SIL John was dx'ed three years ago with Stage IV, grade 4, 60% sarcomatoid RCC (which is really not good) but has now been NED for a full year after immunotheraphy.  That's the great news...the not-so great news is that the intense SBRT radiation of a tumor near his trachea about 18 months ago apparently did major tissue damage to the trachea tissue and he has almost no air transfer without having to be temporarily dilated (twice now) by balloon during bronchoscopies.  The docs are scratching their collective heads as to how to deal with this...resection, transplant, or what.  They've never seen this kind of situation before.

    So, a case of no evidence of cancer for a full year after end of treatment (yea!!!), but how do we deal with the radiation 'side effect'.  One thing at a time I guess.

     

    Penitent

  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    #60
    Still here after 5+ yearsand

    Still here after 5+ yearsand 5 years now NED!!

    Sending healing hugs to all!

    Jan

     

  • Blessedx10
    Blessedx10 Member Posts: 5
    #61
    Still here!!!

    Still here!!!

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