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Hi, old friends!

Darron
Darron CSN Member Posts: 310 Member
in Kidney Cancer #1

i just read iof Fox’s passing. Those of you who recognize my name have been here a while. Those that are new(er) to the site, will not recognize my name at all, not know my story. My apologies for not being the solid support like Iceman has been for such a long time. 

I do want to simply share my progress. I am an BMS 1106 ( I think that is it) phase I trial patient from 2013. We all know it as Opdivo, or Nivolumab now. I started taking it in combination with sutent in February 2013.

i still cintinue on infusions every 3 weeks of Opdivo. I still take 37.5 mg if Sutent, 4 weeks in, two weeks off. Most importantly, I have not seen any evidence of cancer in my quarterly scans since August 26, 2014.

I Have Been in treatment over 6 years and well over 4 years cancer free.

Believe in yourselves, believe in your treatments!

 

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Comments

  • Allochka
    Allochka CSN Member Posts: 1,089 Member
    edited March 2019 #2
    Hello Darron,

    Hello Darron,

    I'm one of those who knows you and your story, and I'm thrilled to read your good news! So happy to hear positive stories from fighters like you! 

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  • Retcenturion
    Retcenturion CSN Member Posts: 240 Member
    edited March 2019 #3
    Thank you

    Thank you for Posting Darrin. Your story is encouraging for many like me who don't know you.

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  • ChristineCD
    ChristineCD CSN Member Posts: 11
    #4
    Thank you

    For someone who is relatively new to all this and a lurker, it helps to hear success stories from those who have lived with this for many years. Thank you for sharing! 

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  • stub1969
    stub1969 CSN Member Posts: 995 Member
    #5
    Good to see you again

    When I was first diagnosed back in August 2016 I spent days reading through the posts on this site.  I read your posts many times and I'm familiar with your journey.  It's always good to see you and hear how things are going.  I'm happy to hear your good news that the meds continue to be effective for you.  

    Thanks for checking in!

    Stub

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  • marosa
    marosa CSN Member Posts: 334 Member
    #6
    I rembember you Darron!

    Good to hear from you and with such good news!

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  • Positive_Mental_Attitude
    Positive_Mental_Attitude CSN Member Posts: 454
    #7
    I remember you too, and I am

    I remember you too, and I am very happy that your treatments have been successful.  This Board could use good news like yours.  Thank you for sharing.

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  • Manufred
    Manufred CSN Member Posts: 241 Member
    #8
    Trail Blazer

    Thanks to early trial participants like you, I was able to reap the benefits of NIvo (Opdivo) through a later Phase III trial (Checkmate 214).  I did that for 3 years and we decided no more was needed.  Full story on my profile page.

    Wonderful  to hear you are still NED after so long.

    Thanks again and best wishes, Fred 

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  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    #9
    Welcome Home, Darron~

    Welcome Home, Darron~

    Hope you know it is good to hear from folks from time to time. 

    It is wonderful that you stopped by!

    Glad your treatment has been working for you. You seem to have

    a great attitude~keep on keeping on

    Healing hugs, Jan

     

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  • ImNotDeadYet
    ImNotDeadYet CSN Member Posts: 244
    #10
    Great to read this

    Thanks for sharing your update. It's rather encouraging to see that there is hope for long-term management of this beast. 

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  • Wehavenotimeatall
    Wehavenotimeatall CSN Member Posts: 488 Member
    edited March 2019 #11
    Great to hear Darren.

    Keep going 

    beautiful smile

     

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  • Darron
    Darron CSN Member Posts: 310 Member
    #12
    Manufred said:

    Trail Blazer

    Thanks to early trial participants like you, I was able to reap the benefits of NIvo (Opdivo) through a later Phase III trial (Checkmate 214).  I did that for 3 years and we decided no more was needed.  Full story on my profile page.

    Wonderful  to hear you are still NED after so long.

    Thanks again and best wishes, Fred 

    Your profile

    I read your profile. I am envious that you have stopped taking Nivo. The Nivo doesn’t bother me, but the Sutent still makes for some nagging side effects. I am still terrified that if I stop taking the combo, Ill see a progression. It is a risk I still don’t want to take. Part of the fear is from the fact that I am not sure I can get a Nivo Sutent combo off the trial. Insurance could always say they are not paying for both Drugs. 

    Glad to see good results!

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  • APny
    APny CSN Member Posts: 1,995 Member
    #13
    I remember you too. Great

    I remember you too. Great news on your current status. Keep it up!

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  • Dominick0711
    Dominick0711 CSN Member Posts: 99 Member
    #14
    This is inspiring Darron and

    This is inspiring Darron and as I am having some major anxiety heading into my first series of scan post surgery a story like this gives me incredible hope! Thank you for sharing and wishing you a continued cancer free future!

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  • Deanie0916
    Deanie0916 CSN Member Posts: 638 Member
    #15
    Hi Darron

    I joined several years after you. I'm thankful to hear your good testimony. Hope you have NED for a long time to come.

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