Newly diagnosed

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Comments

  • JanJan63
    JanJan63 Member Posts: 2,478 Member

    Thank you

    Thank you Jan for such a nice welcome to the group. I am glad to see a Canadian here as some medical terms,procedures and ways of treatment can be a bit different in the USA and in Canada. Are there members from other countries as well? I just wonder...

    Most people on here are from

    Most people on here are from the states but we have several members from other countries. You're right, what we have available here in Canada is a bit limited to what they have in the states. Our process of approving meds and treatments takes so long. Also, meds have slightly different names here than in the states. But at the same time we have access to unlimited treatments without concern for coverage or limitations so it's a trade off. I can't imagine making a treatment decision based on what we could afford.

    Jan

  • abrub
    abrub Member Posts: 2,174 Member
    Alice514 said:

    Hello Suzy,

    Hello Suzy,

    Yes, my surgeon said the same thing about a year. That it would be a marathon. Thank you for the recommendation for the SITZ bath. I will look into it. Seems like it would be best to be as prepared as possible before I even begin treatment. You sound like you are doing well so far.

     

    And your English is perfect. 

    I have a bidet seat

    I love my bidet seat on my toilet - warm water wash that has saved me many times!  That's another possibility.

  • Alice514
    Alice514 Member Posts: 21
    Butt said:

    When I got diagnosed I suddenly lost appetite. It was shock. Eventually I started eating.

    My stomach seems willing, but

    My stomach seems willing, but my brain is getting in the way. Last night I jumped off the wagon and got q drive thru fried chicken  sandwich after work. I had been eating very cleanly the past month. But I figured a fast food chicken sandwich was better than not eating and could help jump start things a bit.

  • Inspired2013
    Inspired2013 Member Posts: 45
    Alice514 said:

    My stomach seems willing, but

    My stomach seems willing, but my brain is getting in the way. Last night I jumped off the wagon and got q drive thru fried chicken  sandwich after work. I had been eating very cleanly the past month. But I figured a fast food chicken sandwich was better than not eating and could help jump start things a bit.

    One of the things that made

    One of the things that made chemo easier to deal with is to only eat things that sounded good. If the thought of eating certain things made you nauseous, then dont eat it, no matter what it is. One of my chemo nurses gave me that advice about halfway through and it definitely made things a little easier. 

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    abrub said:

    I have a bidet seat

    I love my bidet seat on my toilet - warm water wash that has saved me many times!  That's another possibility.

    Cold bidet spray

    My bidet is cold. Certainly wakes me up of a morning Panicking animated emoticon . I've never had the expereince of a warm one, I bet its nice.  I'm used to cold, and I am loath to be without one when I am away from home.  

    The Sitz bath was perfect during treatment, because it was vrey soothing to sit with my burned rear in the warm water, but the bidet is definitely the better option afterwards. 

    Tru

  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    Trubrit said:

    Welcome, Alice

    This will be short and sweet, because I am at work, and not really supposed to be on the computer. 

    You are experiencing all the normal reactions to diagnosis.  Its a ride, and you have just jumped on. 

    My personal experience with that night time anxiety, whcih led to many sleepless nights and the feeling my head was going to explode, led me to find a guided imagery cd on Amazon. I put it on when I went to bed, and I followed the instructions. It was miraculous!  It worked for me, and is worth trying. You never know, it may work for you, and save you seeing a psychiatrist. 

    Thats a start to my advice. HA!  I have to sign off.  Just wanted to let you know that your emotions are normal, and that IT GETS BETTER, especially once you start treatment. Weird as that sounds, and it will be a ride and a half, you know you are 'doing something' and that alone helps.

    Others will be along soon (weekends can be slow), and I'll be back. 

    Welcome to the forum nobody wants to join.

    Tru

    Guided Imagery

    Hi Tru -

     

    Can you tell me which specific CD you are using?  There are so many.

     

    Thanks

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited March 2019 #28

    Guided Imagery

    Hi Tru -

     

    Can you tell me which specific CD you are using?  There are so many.

     

    Thanks

    Here you go

    https://smile.amazon.com/dp/1881405591/?coliid=I37BXVJ9NHFXFG&colid=3IKG5KF6HQH73&psc=0&ref_=lv_ov_lig_dp_it

    A Guided Meditation to Help You With Chemotherapy by Belleruth Naparstek. 

    For me persoanlly, it was nothing short of miraculous. 

    Tru

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    I think I've mentioned this

    I think I've mentioned this on the forum before but just in case I'll mention it again. My friend has a daughter that had cancer at 9 years old. She's now 26, by the way. Anyway, she said that their pediatric oncologist told them to give her Slurpees for nausea. She suggested ti to me but I hadn't had one since I was a teenager and thught it would be too sweet. A couple of weeks later a chemo nurse said the same thing. So I tried it. They helped so much! The experts think it's the ice when I've asked about it. I get orange, grape, or peach. Supposedly root beer helps, too, but yuck.

    Jan

  • Alice514
    Alice514 Member Posts: 21
    Trubrit said:

    Cold bidet spray

    My bidet is cold. Certainly wakes me up of a morning Panicking animated emoticon . I've never had the expereince of a warm one, I bet its nice.  I'm used to cold, and I am loath to be without one when I am away from home.  

    The Sitz bath was perfect during treatment, because it was vrey soothing to sit with my burned rear in the warm water, but the bidet is definitely the better option afterwards. 

    Tru

    I just installed mine

    I just installed mine yesterday. It is just a simple model I got on Amazon, but the reviews were good so I decided to take the pluge (pun intended). Unfortunately, my hot water nozzle is across the room from the toilet, so warm warter won't be an option. Yes, the cold water is a little bracing, but not too bad. 

  • Lan53
    Lan53 Member Posts: 13
    edited April 2019 #31

    Hi, I was recently diagnosed with rectal cancer and have been reading the posts, this sounds the same as what I am facing. I receive my treatment plan this week and am very nervous to say the least of what the future holds. I hope some of you may respond as I think this is very informative so far. I have been reading different sites and came upon this one.

    Thoughts and prayers for everyone,

    Lan

  • Princey
    Princey Member Posts: 17
    About working:  My husband

    About working:  My husband was diagnosed in June 2018.  Stage iii.  Rectal cancer.  He has done the chemo, and all the radiation.  He has a CAT scan today to see how things are going and then to schedule surgery.  He is a truck driver.  Local only.  Not over the road.  He hasn't missed a day of work yet through any of the treatments, and as you can imagine, driving a truck is a pretty physical job.  Sitting, bouncing, getting in and out of the truck all day long.  I will say, he doesn't feel fantastic by any stretch of the imagination, but he's slogging through, day after day.  Hope this helps

     

  • Lan53
    Lan53 Member Posts: 13
    edited April 2019 #33
    Princey said:

    About working:  My husband

    About working:  My husband was diagnosed in June 2018.  Stage iii.  Rectal cancer.  He has done the chemo, and all the radiation.  He has a CAT scan today to see how things are going and then to schedule surgery.  He is a truck driver.  Local only.  Not over the road.  He hasn't missed a day of work yet through any of the treatments, and as you can imagine, driving a truck is a pretty physical job.  Sitting, bouncing, getting in and out of the truck all day long.  I will say, he doesn't feel fantastic by any stretch of the imagination, but he's slogging through, day after day.  Hope this helps

     

    Thank you for the info!

    Thank you for the info, I was told I could continue my daily work load and have a very good end result. I hope and pray for good results, prayers for your husband.

     

    Thank you!